Guest guest Posted January 10, 2011 Report Share Posted January 10, 2011 Hello Tonni, has the gastro in charge of your tx checked your thyroid? the meds from tx some times mess with the thyroid. mine was hypo before tx dropped really low during tx and then shot up double after tx. Just a thought. Yes I had heart flutters and chest pain. The attributed the chest pain to chronic broncitis but when my thyroid is in normal range I dont have chest pain. From: Tonni <tbrende7@...>Subject: [ ] new to group Date: Sunday, January 9, 2011, 10:25 PM Diagnosed in 2007 via registered mail after donating blood...worst way to learn you are registered with Center for Disease control for having a disease that you think is like aids...never gonna get to kiss my kids again withotu fear.....never claimed to be smart. Drove around for hours just crying and thinking and found a center that had big words that read HEP C Support...went in and got informed...went hoem and told family, after removing toothbrush and razor and calling doc to schedule everyone for testing....thank God I am only one affected.After 3 attempts to get to the bottom of what all this meant and each attempt costing me more labs and treatment of the coldest kind...I quit trying....I actually got yet another head cold so bad I finally went thru the ER at a local by your income hospital...everythign changed from there..too many appointments if you ask me, bt hey, it had been about 10 plus years, so went with it....Started treatments...got great lowering numbers, but no clear.....really had no issues with treatments, shots or pills (although felt pills were worse, for never felt any change with shots)...then the heart palpitations started, about 14 weeks in....then they got worse and oh my, had to lay down to make them stop, thought heart was gonna jump from chest when I sat up, even staretd skipping beats....17 weeks in, doctor stopped treatment and said liver disease is betetr than heart disease, I agreed...so, no longer doing treatments, almost 2 years now and this bone pain is killing me...I have a son that is 12 that is a quad, I am his arms and legs, yet some days my muscles wrinkle and my bones feel like they ar egonna break any second.....tried tordol, 1000mg ibuprofen works better...I know, I know, but pain gets unbearable and you go for what works...like right now, butt to ankles, but at the center of the bone not all of it and then them hands .....it was thought to be rheumotoid arthritis by GI, but that doc gave me lyrica and said ti was nerve pain....it worked wonderfully, at first...is it that I cna do more now, so I do and then it seems the pills don't work cause then I am in major pain all over, maybe...either way, it is gettign harder and harder to handle, for ibuprofen don't touch it any more...valium 10 mg does relax enough to sleep although those are not perscribed and cried for in desperation, but nothign touches pain at its core....seeing both docs soon and praying one of you all know this pain and somethign besides burning baths that help ease the pain, yet it also is safe for this liver...thanks------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2011 Report Share Posted January 10, 2011 Tonni,Your doctor may have been a little quick to jump the gun on stopping treatment... Did they find out why you were having those issues? I had heart palpitations and chest pains but I was severely anemic and in need of a transfusion. The Ribavirin tends to cause a rapid heart rate on its own. Some doctors, who don't do a LOT of hep C treatment tend to see these side effects and immediately take the patient off treatment when all they need to do is correct what is causing it. This is where you benefit from a Hepatologist versus a Gastroenterologist during treatment. The Hepatologist does more hep C treatment than the Gastro does and knows what to expect and the ins and outs and tricks of the treatment just because of the sheer volume of treatment they do. Most gastro's want to spend their day in the GI lab so they don't do as much with Hep C. Just a thought... Hugs,Teri From: Tonni Brende <tbrende7@...>Subject: Re: [ ] new to group - Tonni Date: Monday, January 10, 2011, 9:40 AM Thank you for all the research...will get to it tonight...snow day for kids the pain is not joint pain, but truly like I can feel the inner lining of where the blood would flow thru the bones..the major foot and hand pain beyond the bone pain, yes, the lyrica has worked for that, but nothing but a burning tub soak has touched the bone pain. I continue to think of retreating, but truly afraid of the heart issue...they say it could have turned into heart disease, but that it could have been treated with medication.....after treatments stopped, I got the H1N1 and I got the palpitations back bad, but I also had a very bad head cold....could the palpitations been from all my head colds and not treatment??????????????????? Just lingering thought. When I heard of a new treatment, I was ready to jump, thne I heard it was just adding a pill to the old and all hope died, as doc said I can not go back on what I already did, so she felt it not for me. Well, I finally saw ENT and they say I have 2 spurs pressing on my septum, one on each side, so surgery is Feb 18th..a bit nervous, for my sister in law in SD just dies the evening of an outpatient ENT surgeyr...but if my time, my time...anyway, I am going to reapproach if this surgery seems to make a difference on my head colds, for I knwo I can't prove which one caused the issue, but if one disappears, maybe I can convince them???? Thanks again for everything Tonni Brende Wife, Mother, Grandma too... " Life is not about waiting for the storms to pass... it's about learning how to dance in the rain. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2011 Report Share Posted January 10, 2011 without insurance, our by your income hospital is all I have and thru GI is all they have to offer..they run labs every 6 months, which is truly how often I visit....the palpitations were minor int he beginning and very sporadic, btu then got to the point that only lying down slowed them...they did the stress test and saw the palpitations and the skipped beats...at that time they said we would see if it went away on it's own, which it did, and had it not, that they could medicate to stop them.... Tonni Brende Wife, Mother, Grandma too... "Life is not about waiting for the storms to pass... it's about learning how to dance in the rain." athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful. http://johnathanourgift.synthasite.com/index.php From: Tonni Brende <tbrende7@...>Subject: Re: [ ] new to group - Tonni Date: Monday, January 10, 2011, 9:40 AM Thank you for all the research...will get to it tonight...snow day for kids the pain is not joint pain, but truly like I can feel the inner lining of where the blood would flow thru the bones..the major foot and hand pain beyond the bone pain, yes, the lyrica has worked for that, but nothing but a burning tub soak has touched the bone pain. I continue to think of retreating, but truly afraid of the heart issue...they say it could have turned into heart disease, but that it could have been treated with medication.....after treatments stopped, I got the H1N1 and I got the palpitations back bad, but I also had a very bad head cold....could the palpitations been from all my head colds and not treatment??????????????????? Just lingering thought. When I heard of a new treatment, I was ready to jump, thne I heard it was just adding a pill to the old and all hope died, as doc said I can not go back on what I already did, so she felt it not for me. Well, I finally saw ENT and they say I have 2 spurs pressing on my septum, one on each side, so surgery is Feb 18th..a bit nervous, for my sister in law in SD just dies the evening of an outpatient ENT surgeyr...but if my time, my time...anyway, I am going to reapproach if this surgery seems to make a difference on my head colds, for I knwo I can't prove which one caused the issue, but if one disappears, maybe I can convince them???? Thanks again for everything Tonni Brende Wife, Mother, Grandma too... "Life is not about waiting for the storms to pass... it's about learning how to dance in the rain." Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2011 Report Share Posted January 10, 2011 very interesting and added to my list of questions...what would thyroid be on the lab sheet, do you know, caus eI may already have had it tested ????? Tonni Brende Wife, Mother, Grandma too... "Life is not about waiting for the storms to pass... it's about learning how to dance in the rain." athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful. http://johnathanourgift.synthasite.com/index.php From: Tonni <tbrende7@...>Subject: [ ] new to group Date: Sunday, January 9, 2011, 10:25 PM Diagnosed in 2007 via registered mail after donating blood...worst way to learn you are registered with Center for Disease control for having a disease that you think is like aids...never gonna get to kiss my kids again withotu fear.....never claimed to be smart. Drove around for hours just crying and thinking and found a center that had big words that read HEP C Support...went in and got informed...went hoem and told family, after removing toothbrush and razor and calling doc to schedule everyone for testing....thank God I am only one affected.After 3 attempts to get to the bottom of what all this meant and each attempt costing me more labs and treatment of the coldest kind...I quit trying....I actually got yet another head cold so bad I finally went thru the ER at a local by your income hospital...everythign changed from there..too many appointments if you ask me, bt hey, it had been about 10 plus years, so went with it....Started treatments...got great lowering numbers, but no clear.....really had no issues with treatments, shots or pills (although felt pills were worse, for never felt any change with shots)...then the heart palpitations started, about 14 weeks in....then they got worse and oh my, had to lay down to make them stop, thought heart was gonna jump from chest when I sat up, even staretd skipping beats....17 weeks in, doctor stopped treatment and said liver disease is betetr than heart disease, I agreed...so, no longer doing treatments, almost 2 years now and this bone pain is killing me...I have a son that is 12 that is a quad, I am his arms and legs, yet some days my muscles wrinkle and my bones feel like they ar egonna break any second.....tried tordol, 1000mg ibuprofen works better...I know, I know, but pain gets unbearable and you go for what works...like right now, butt to ankles, but at the center of the bone not all of it and then them hands .....it was thought to be rheumotoid arthritis by GI, but that doc gave me lyrica and said ti was nerve pain....it worked wonderfully, at first...is it that I cna do more now, so I do and then it seems the pills don't work cause then I am in major pain all over, maybe...either way, it is gettign harder and harder to handle, for ibuprofen don't touch it any more...valium 10 mg does relax enough to sleep although those are not perscribed and cried for in desperation, but nothign touches pain at its core....seeing both docs soon and praying one of you all know this pain and somethign besides burning baths that help ease the pain, yet it also is safe for this liver...thanks------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2011 Report Share Posted January 10, 2011 Thyroid is a seperate test. And all the symtoms you listed could also be thyroid .. Don't know if hereditary, but my 30+ son also has it in his hands.....ummm? http://facebook.com/people/andTrudy-Kinsey/1340460877 " " A well- behaved woman never made history " ...Mae West http://oktravels.wordpress.com http://allrecipes.com/cook/TrudyK/profile.aspx On Jan 10, 2011, at 2:28 PM, Tonni Brende <tbrende7@...> wrote: This message cannot be displayed because of the way it is formatted. Ask the sender to send it again using a different format or email program. text/html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2011 Report Share Posted January 10, 2011 TSHOn Mon, Jan 10, 2011 at 2:28 PM, Tonni Brende <tbrende7@...> wrote: very interesting and added to my list of questions...what would thyroid be on the lab sheet, do you know, caus eI may already have had it tested ????? Tonni Brende Wife, Mother, Grandma too... " Life is not about waiting for the storms to pass... it's about learning how to dance in the rain. " athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful. http://johnathanourgift.synthasite.com/index.php From: Tonni <tbrende7@...>Subject: [ ] new to group Date: Sunday, January 9, 2011, 10:25 PM Diagnosed in 2007 via registered mail after donating blood...worst way to learn you are registered with Center for Disease control for having a disease that you think is like aids...never gonna get to kiss my kids again withotu fear.....never claimed to be smart. Drove around for hours just crying and thinking and found a center that had big words that read HEP C Support...went in and got informed...went hoem and told family, after removing toothbrush and razor and calling doc to schedule everyone for testing....thank God I am only one affected. After 3 attempts to get to the bottom of what all this meant and each attempt costing me more labs and treatment of the coldest kind...I quit trying....I actually got yet another head cold so bad I finally went thru the ER at a local by your income hospital...everythign changed from there..too many appointments if you ask me, bt hey, it had been about 10 plus years, so went with it....Started treatments...got great lowering numbers, but no clear.....really had no issues with treatments, shots or pills (although felt pills were worse, for never felt any change with shots)...then the heart palpitations started, about 14 weeks in....then they got worse and oh my, had to lay down to make them stop, thought heart was gonna jump from chest when I sat up, even staretd skipping beats....17 weeks in, doctor stopped treatment and said liver disease is betetr than heart disease, I agreed... so, no longer doing treatments, almost 2 years now and this bone pain is killing me...I have a son that is 12 that is a quad, I am his arms and legs, yet some days my muscles wrinkle and my bones feel like they ar egonna break any second.....tried tordol, 1000mg ibuprofen works better...I know, I know, but pain gets unbearable and you go for what works...like right now, butt to ankles, but at the center of the bone not all of it and then them hands .....it was thought to be rheumotoid arthritis by GI, but that doc gave me lyrica and said ti was nerve pain....it worked wonderfully, at first...is it that I cna do more now, so I do and then it seems the pills don't work cause then I am in major pain all over, maybe...either way, it is gettign harder and harder to handle, for ibuprofen don't touch it any more...valium 10 mg does relax enough to sleep although those are not perscribed and cried for in desperation, but nothign touches pain at its core.... seeing both docs soon and praying one of you all know this pain and somethign besides burning baths that help ease the pain, yet it also is safe for this liver...thanks------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2011 Report Share Posted January 10, 2011 TSH, T3, T4 or free T4 From: Tonni <tbrende7@...>Subject: [ ] new to group Date: Sunday, January 9, 2011, 10:25 PM Diagnosed in 2007 via registered mail after donating blood...worst way to learn you are registered with Center for Disease control for having a disease that you think is like aids...never gonna get to kiss my kids again withotu fear.....never claimed to be smart. Drove around for hours just crying and thinking and found a center that had big words that read HEP C Support...went in and got informed...went hoem and told family, after removing toothbrush and razor and calling doc to schedule everyone for testing....thank God I am only one affected.After 3 attempts to get to the bottom of what all this meant and each attempt costing me more labs and treatment of the coldest kind...I quit trying....I actually got yet another head cold so bad I finally went thru the ER at a local by your income hospital...everythign changed from there..too many appointments if you ask me, bt hey, it had been about 10 plus years, so went with it....Started treatments...got great lowering numbers, but no clear.....really had no issues with treatments, shots or pills (although felt pills were worse, for never felt any change with shots)...then the heart palpitations started, about 14 weeks in....then they got worse and oh my, had to lay down to make them stop, thought heart was gonna jump from chest when I sat up, even staretd skipping beats....17 weeks in, doctor stopped treatment and said liver disease is betetr than heart disease, I agreed...so, no longer doing treatments, almost 2 years now and this bone pain is killing me...I have a son that is 12 that is a quad, I am his arms and legs, yet some days my muscles wrinkle and my bones feel like they ar egonna break any second.....tried tordol, 1000mg ibuprofen works better...I know, I know, but pain gets unbearable and you go for what works...like right now, butt to ankles, but at the center of the bone not all of it and then them hands .....it was thought to be rheumotoid arthritis by GI, but that doc gave me lyrica and said ti was nerve pain....it worked wonderfully, at first...is it that I cna do more now, so I do and then it seems the pills don't work cause then I am in major pain all over, maybe...either way, it is gettign harder and harder to handle, for ibuprofen don't touch it any more...valium 10 mg does relax enough to sleep although those are not perscribed and cried for in desperation, but nothign touches pain at its core....seeing both docs soon and praying one of you all know this pain and somethign besides burning baths that help ease the pain, yet it also is safe for this liver...thanks------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2011 Report Share Posted January 10, 2011 found TSH doen back in March 2009 done twice in one day??? 0.45 and then a 1.42????? Tonni Brende Wife, Mother, Grandma too... "Life is not about waiting for the storms to pass... it's about learning how to dance in the rain." athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful. http://johnathanourgift.synthasite.com/index.php From: Tonni <tbrende7@...>Subject: [ ] new to group Date: Sunday, January 9, 2011, 10:25 PM Diagnosed in 2007 via registered mail after donating blood...worst way to learn you are registered with Center for Disease control for having a disease that you think is like aids...never gonna get to kiss my kids again withotu fear.....never claimed to be smart. Drove around for hours just crying and thinking and found a center that had big words that read HEP C Support...went in and got informed...went hoem and told family, after removing toothbrush and razor and calling doc to schedule everyone for testing....thank God I am only one affected.After 3 attempts to get to the bottom of what all this meant and each attempt costing me more labs and treatment of the coldest kind...I quit trying....I actually got yet another head cold so bad I finally went thru the ER at a local by your income hospital...everythign changed from there..too many appointments if you ask me, bt hey, it had been about 10 plus years, so went with it....Started treatments...got great lowering numbers, but no clear.....really had no issues with treatments, shots or pills (although felt pills were worse, for never felt any change with shots)...then the heart palpitations started, about 14 weeks in....then they got worse and oh my, had to lay down to make them stop, thought heart was gonna jump from chest when I sat up, even staretd skipping beats....17 weeks in, doctor stopped treatment and said liver disease is betetr than heart disease, I agreed...so, no longer doing treatments, almost 2 years now and this bone pain is killing me...I have a son that is 12 that is a quad, I am his arms and legs, yet some days my muscles wrinkle and my bones feel like they ar egonna break any second.....tried tordol, 1000mg ibuprofen works better...I know, I know, but pain gets unbearable and you go for what works...like right now, butt to ankles, but at the center of the bone not all of it and then them hands .....it was thought to be rheumotoid arthritis by GI, but that doc gave me lyrica and said ti was nerve pain....it worked wonderfully, at first...is it that I cna do more now, so I do and then it seems the pills don't work cause then I am in major pain all over, maybe...either way, it is gettign harder and harder to handle, for ibuprofen don't touch it any more...valium 10 mg does relax enough to sleep although those are not perscribed and cried for in desperation, but nothign touches pain at its core....seeing both docs soon and praying one of you all know this pain and somethign besides burning baths that help ease the pain, yet it also is safe for this liver...thanks------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2011 Report Share Posted January 10, 2011 Normal. Was that during your treatment when you were having the hard time? On Mon, Jan 10, 2011 at 8:34 PM, Tonni Brende <tbrende7@...> wrote: found TSH doen back in March 2009 done twice in one day??? 0.45 and then a 1.42????? Tonni Brende Wife, Mother, Grandma too... " Life is not about waiting for the storms to pass... it's about learning how to dance in the rain. " athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful. http://johnathanourgift.synthasite.com/index.php From: Tonni <tbrende7@...>Subject: [ ] new to group Date: Sunday, January 9, 2011, 10:25 PM Diagnosed in 2007 via registered mail after donating blood...worst way to learn you are registered with Center for Disease control for having a disease that you think is like aids...never gonna get to kiss my kids again withotu fear.....never claimed to be smart. Drove around for hours just crying and thinking and found a center that had big words that read HEP C Support...went in and got informed...went hoem and told family, after removing toothbrush and razor and calling doc to schedule everyone for testing....thank God I am only one affected. After 3 attempts to get to the bottom of what all this meant and each attempt costing me more labs and treatment of the coldest kind...I quit trying....I actually got yet another head cold so bad I finally went thru the ER at a local by your income hospital...everythign changed from there..too many appointments if you ask me, bt hey, it had been about 10 plus years, so went with it.... Started treatments...got great lowering numbers, but no clear.....really had no issues with treatments, shots or pills (although felt pills were worse, for never felt any change with shots)...then the heart palpitations started, about 14 weeks in....then they got worse and oh my, had to lay down to make them stop, thought heart was gonna jump from chest when I sat up, even staretd skipping beats....17 weeks in, doctor stopped treatment and said liver disease is betetr than heart disease, I agreed... so, no longer doing treatments, almost 2 years now and this bone pain is killing me...I have a son that is 12 that is a quad, I am his arms and legs, yet some days my muscles wrinkle and my bones feel like they ar egonna break any second.....tried tordol, 1000mg ibuprofen works better...I know, I know, but pain gets unbearable and you go for what works...like right now, butt to ankles, but at the center of the bone not all of it and then them hands .....it was thought to be rheumotoid arthritis by GI, but that doc gave me lyrica and said ti was nerve pain....it worked wonderfully, at first...is it that I cna do more now, so I do and then it seems the pills don't work cause then I am in major pain all over, maybe...either way, it is gettign harder and harder to handle, for ibuprofen don't touch it any more...valium 10 mg does relax enough to sleep although those are not perscribed and cried for in desperation, but nothign touches pain at its core.... seeing both docs soon and praying one of you all know this pain and somethign besides burning baths that help ease the pain, yet it also is safe for this liver...thanks------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2011 Report Share Posted January 10, 2011 day treatment started Tonni Brende Wife, Mother, Grandma too... "Life is not about waiting for the storms to pass... it's about learning how to dance in the rain." athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful. http://johnathanourgift.synthasite.com/index.php From: Tonni <tbrende7@...>Subject: [ ] new to group Date: Sunday, January 9, 2011, 10:25 PM Diagnosed in 2007 via registered mail after donating blood...worst way to learn you are registered with Center for Disease control for having a disease that you think is like aids...never gonna get to kiss my kids again withotu fear.....never claimed to be smart. Drove around for hours just crying and thinking and found a center that had big words that read HEP C Support...went in and got informed...went hoem and told family, after removing toothbrush and razor and calling doc to schedule everyone for testing....thank God I am only one affected.After 3 attempts to get to the bottom of what all this meant and each attempt costing me more labs and treatment of the coldest kind...I quit trying....I actually got yet another head cold so bad I finally went thru the ER at a local by your income hospital...everythign changed from there..too many appointments if you ask me, bt hey, it had been about 10 plus years, so went with it....Started treatments...got great lowering numbers, but no clear.....really had no issues with treatments, shots or pills (although felt pills were worse, for never felt any change with shots)...then the heart palpitations started, about 14 weeks in....then they got worse and oh my, had to lay down to make them stop, thought heart was gonna jump from chest when I sat up, even staretd skipping beats....17 weeks in, doctor stopped treatment and said liver disease is betetr than heart disease, I agreed...so, no longer doing treatments, almost 2 years now and this bone pain is killing me...I have a son that is 12 that is a quad, I am his arms and legs, yet some days my muscles wrinkle and my bones feel like they ar egonna break any second.....tried tordol, 1000mg ibuprofen works better...I know, I know, but pain gets unbearable and you go for what works...like right now, butt to ankles, but at the center of the bone not all of it and then them hands .....it was thought to be rheumotoid arthritis by GI, but that doc gave me lyrica and said ti was nerve pain....it worked wonderfully, at first...is it that I cna do more now, so I do and then it seems the pills don't work cause then I am in major pain all over, maybe...either way, it is gettign harder and harder to handle, for ibuprofen don't touch it any more...valium 10 mg does relax enough to sleep although those are not perscribed and cried for in desperation, but nothign touches pain at its core....seeing both docs soon and praying one of you all know this pain and somethign besides burning baths that help ease the pain, yet it also is safe for this liver...thanks------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2011 Report Share Posted January 10, 2011 okay, I'd be curious to know if it tanked when you were having those problems. treatment tends to bring on all sorts of strange ailments, including thyroid issues.. and as you stop treatment, this stuff clears up. Trudy is going thru that exact thing right now... she had some cancer scares during treatment so far.. all actually side effects of the drugs. There were several times during treatment I thought I was having a heart attack, nope, anemic as hell or just craziness. Luckily I had a doctor VERY well versed in Hep C and it's treatments, side effects and collision courses. He knew how to handle everything.. and he did everything without ever compromising the treatment process or my health. Treatment will cause thyroid issues.. sometimes people need to be medicated for their thyroid during tx but not afterwards.. I had thyroid issues before during and after treatment. With the RIGHT doctor, treatment is probably do-able. With the new drugs coming out this year, treatment time could be cut down to 24 weeks instead of 48. You just need a doctor that KNOWS hep c and hep c treatment inside and out. Hugs,TeriOn Mon, Jan 10, 2011 at 8:45 PM, Tonni Brende <tbrende7@...> wrote: day treatment started Tonni Brende Wife, Mother, Grandma too... " Life is not about waiting for the storms to pass... it's about learning how to dance in the rain. " athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful. http://johnathanourgift.synthasite.com/index.php From: Tonni <tbrende7@...>Subject: [ ] new to group Date: Sunday, January 9, 2011, 10:25 PM Diagnosed in 2007 via registered mail after donating blood...worst way to learn you are registered with Center for Disease control for having a disease that you think is like aids...never gonna get to kiss my kids again withotu fear.....never claimed to be smart. Drove around for hours just crying and thinking and found a center that had big words that read HEP C Support...went in and got informed...went hoem and told family, after removing toothbrush and razor and calling doc to schedule everyone for testing....thank God I am only one affected. After 3 attempts to get to the bottom of what all this meant and each attempt costing me more labs and treatment of the coldest kind...I quit trying....I actually got yet another head cold so bad I finally went thru the ER at a local by your income hospital...everythign changed from there..too many appointments if you ask me, bt hey, it had been about 10 plus years, so went with it.... Started treatments...got great lowering numbers, but no clear.....really had no issues with treatments, shots or pills (although felt pills were worse, for never felt any change with shots)...then the heart palpitations started, about 14 weeks in....then they got worse and oh my, had to lay down to make them stop, thought heart was gonna jump from chest when I sat up, even staretd skipping beats....17 weeks in, doctor stopped treatment and said liver disease is betetr than heart disease, I agreed... so, no longer doing treatments, almost 2 years now and this bone pain is killing me...I have a son that is 12 that is a quad, I am his arms and legs, yet some days my muscles wrinkle and my bones feel like they ar egonna break any second.....tried tordol, 1000mg ibuprofen works better...I know, I know, but pain gets unbearable and you go for what works...like right now, butt to ankles, but at the center of the bone not all of it and then them hands .....it was thought to be rheumotoid arthritis by GI, but that doc gave me lyrica and said ti was nerve pain....it worked wonderfully, at first...is it that I cna do more now, so I do and then it seems the pills don't work cause then I am in major pain all over, maybe...either way, it is gettign harder and harder to handle, for ibuprofen don't touch it any more...valium 10 mg does relax enough to sleep although those are not perscribed and cried for in desperation, but nothign touches pain at its core.... seeing both docs soon and praying one of you all know this pain and somethign besides burning baths that help ease the pain, yet it also is safe for this liver...thanks------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2011 Report Share Posted January 11, 2011 I am going to ask and see what I get. Now I went to the skin condition sites sent Trudy, as I have an issue sthat comes and goes, but never saw anything even close to what I got..It seems the layers of skin on my hands and fingers, in small spots, come off, Like right now on area edge of right pinky and hand one layer at edge, 2-3 layers towards its center. This only happens on edge of hands or on sides of fingers. It comes and goes, nothign to link to yet????????? Tonni Brende Wife, Mother, Grandma too... "Life is not about waiting for the storms to pass... it's about learning how to dance in the rain." athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful. http://johnathanourgift.synthasite.com/index.php From: Tonni <tbrende7@...>Subject: [ ] new to group Date: Sunday, January 9, 2011, 10:25 PM Diagnosed in 2007 via registered mail after donating blood...worst way to learn you are registered with Center for Disease control for having a disease that you think is like aids...never gonna get to kiss my kids again withotu fear.....never claimed to be smart. Drove around for hours just crying and thinking and found a center that had big words that read HEP C Support...went in and got informed...went hoem and told family, after removing toothbrush and razor and calling doc to schedule everyone for testing....thank God I am only one affected.After 3 attempts to get to the bottom of what all this meant and each attempt costing me more labs and treatment of the coldest kind...I quit trying....I actually got yet another head cold so bad I finally went thru the ER at a local by your income hospital...everythign changed from there..too many appointments if you ask me, bt hey, it had been about 10 plus years, so went with it....Started treatments...got great lowering numbers, but no clear.....really had no issues with treatments, shots or pills (although felt pills were worse, for never felt any change with shots)...then the heart palpitations started, about 14 weeks in....then they got worse and oh my, had to lay down to make them stop, thought heart was gonna jump from chest when I sat up, even staretd skipping beats....17 weeks in, doctor stopped treatment and said liver disease is betetr than heart disease, I agreed...so, no longer doing treatments, almost 2 years now and this bone pain is killing me...I have a son that is 12 that is a quad, I am his arms and legs, yet some days my muscles wrinkle and my bones feel like they ar egonna break any second.....tried tordol, 1000mg ibuprofen works better...I know, I know, but pain gets unbearable and you go for what works...like right now, butt to ankles, but at the center of the bone not all of it and then them hands .....it was thought to be rheumotoid arthritis by GI, but that doc gave me lyrica and said ti was nerve pain....it worked wonderfully, at first...is it that I cna do more now, so I do and then it seems the pills don't work cause then I am in major pain all over, maybe...either way, it is gettign harder and harder to handle, for ibuprofen don't touch it any more...valium 10 mg does relax enough to sleep although those are not perscribed and cried for in desperation, but nothign touches pain at its core....seeing both docs soon and praying one of you all know this pain and somethign besides burning baths that help ease the pain, yet it also is safe for this liver...thanks------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2011 Report Share Posted January 11, 2011 Hi Tonni I have weird stuff happening to my skin for years too. Nothing like the HCV pictures. I saw a Derm-doc, and he said it was nothing. No cancer or anything like that. My Mom had weird skin stuff too. So it could be genetic, or a lack of Vitamins or something. I take a one-a-day and it seems to occure less, but still happens. Go figure. love don in ks From: Tonni <tbrende7@...>Subject: [ ] new to group Date: Sunday, January 9, 2011, 10:25 PM Diagnosed in 2007 via registered mail after donating blood...worst way to learn you are registered with Center for Disease control for having a disease that you think is like aids...never gonna get to kiss my kids again withotu fear.....never claimed to be smart. Drove around for hours just crying and thinking and found a center that had big words that read HEP C Support...went in and got informed...went hoem and told family, after removing toothbrush and razor and calling doc to schedule everyone for testing....thank God I am only one affected.After 3 attempts to get to the bottom of what all this meant and each attempt costing me more labs and treatment of the coldest kind...I quit trying....I actually got yet another head cold so bad I finally went thru the ER at a local by your income hospital...everythign changed from there..too many appointments if you ask me, bt hey, it had been about 10 plus years, so went with it....Started treatments...got great lowering numbers, but no clear.....really had no issues with treatments, shots or pills (although felt pills were worse, for never felt any change with shots)...then the heart palpitations started, about 14 weeks in....then they got worse and oh my, had to lay down to make them stop, thought heart was gonna jump from chest when I sat up, even staretd skipping beats....17 weeks in, doctor stopped treatment and said liver disease is betetr than heart disease, I agreed...so, no longer doing treatments, almost 2 years now and this bone pain is killing me...I have a son that is 12 that is a quad, I am his arms and legs, yet some days my muscles wrinkle and my bones feel like they ar egonna break any second.....tried tordol, 1000mg ibuprofen works better...I know, I know, but pain gets unbearable and you go for what works...like right now, butt to ankles, but at the center of the bone not all of it and then them hands .....it was thought to be rheumotoid arthritis by GI, but that doc gave me lyrica and said ti was nerve pain....it worked wonderfully, at first...is it that I cna do more now, so I do and then it seems the pills don't work cause then I am in major pain all over, maybe...either way, it is gettign harder and harder to handle, for ibuprofen don't touch it any more...valium 10 mg does relax enough to sleep although those are not perscribed and cried for in desperation, but nothign touches pain at its core....seeing both docs soon and praying one of you all know this pain and somethign besides burning baths that help ease the pain, yet it also is safe for this liver...thanks------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2011 Report Share Posted January 11, 2011 I would wonder if poor circulation from Renaulds causes dead skin on fingers?http://facebook.com/people/andTrudy-Kinsey/1340460877 " "A well- behaved woman never made history"...Mae Westhttp://oktravels.wordpress.com http://allrecipes.com/cook/TrudyK/profile.aspx On Jan 11, 2011, at 8:08 AM, Tonni Brende <tbrende7@...> wrote: I am going to ask and see what I get. Now I went to the skin condition sites sent Trudy, as I have an issue sthat comes and goes, but never saw anything even close to what I got..It seems the layers of skin on my hands and fingers, in small spots, come off, Like right now on area edge of right pinky and hand one layer at edge, 2-3 layers towards its center. This only happens on edge of hands or on sides of fingers. It comes and goes, nothign to link to yet????????? Tonni Brende Wife, Mother, Grandma too... "Life is not about waiting for the storms to pass... it's about learning how to dance in the rain." athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful. http://johnathanourgift.synthasite.com/index.php very interesting and added to my list of questions...what would thyroid be on the lab sheet, do you know, caus eI may already have had it tested ????? Tonni Brende Wife, Mother, Grandma too... "Life is not about waiting for the storms to pass... it's about learning how to dance in the rain." athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful. http://johnathanourgift.synthasite.com/index.php Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2011 Report Share Posted January 11, 2011 Normal TSH is between .42-5.47 Free T-4 is between .61-1.12 T-4 is between 6.-12.5 T-3 is between 32-51 From: Tonni <tbrende7@...>Subject: [ ] new to group Date: Sunday, January 9, 2011, 10:25 PM Diagnosed in 2007 via registered mail after donating blood...worst way to learn you are registered with Center for Disease control for having a disease that you think is like aids...never gonna get to kiss my kids again withotu fear.....never claimed to be smart. Drove around for hours just crying and thinking and found a center that had big words that read HEP C Support...went in and got informed...went hoem and told family, after removing toothbrush and razor and calling doc to schedule everyone for testing....thank God I am only one affected.After 3 attempts to get to the bottom of what all this meant and each attempt costing me more labs and treatment of the coldest kind...I quit trying....I actually got yet another head cold so bad I finally went thru the ER at a local by your income hospital...everythign changed from there..too many appointments if you ask me, bt hey, it had been about 10 plus years, so went with it....Started treatments...got great lowering numbers, but no clear.....really had no issues with treatments, shots or pills (although felt pills were worse, for never felt any change with shots)...then the heart palpitations started, about 14 weeks in....then they got worse and oh my, had to lay down to make them stop, thought heart was gonna jump from chest when I sat up, even staretd skipping beats....17 weeks in, doctor stopped treatment and said liver disease is betetr than heart disease, I agreed...so, no longer doing treatments, almost 2 years now and this bone pain is killing me...I have a son that is 12 that is a quad, I am his arms and legs, yet some days my muscles wrinkle and my bones feel like they ar egonna break any second.....tried tordol, 1000mg ibuprofen works better...I know, I know, but pain gets unbearable and you go for what works...like right now, butt to ankles, but at the center of the bone not all of it and then them hands .....it was thought to be rheumotoid arthritis by GI, but that doc gave me lyrica and said ti was nerve pain....it worked wonderfully, at first...is it that I cna do more now, so I do and then it seems the pills don't work cause then I am in major pain all over, maybe...either way, it is gettign harder and harder to handle, for ibuprofen don't touch it any more...valium 10 mg does relax enough to sleep although those are not perscribed and cried for in desperation, but nothign touches pain at its core....seeing both docs soon and praying one of you all know this pain and somethign besides burning baths that help ease the pain, yet it also is safe for this liver...thanks------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2011 Report Share Posted January 11, 2011 What is t3. T4 never found them in bloodwork From: Beth Frey <bethfrey42301@...>; To: < >; Subject: Re: [ ] Tonni Sent: Tue, Jan 11, 2011 11:44:17 PM Normal TSH is between .42-5.47 Free T-4 is between .61-1.12 T-4 is between 6.-12.5 T-3 is between 32-51 From: Tonni <tbrende7@...>Subject: [ ] new to group Date: Sunday, January 9, 2011, 10:25 PM Diagnosed in 2007 via registered mail after donating blood...worst way to learn you are registered with Center for Disease control for having a disease that you think is like aids...never gonna get to kiss my kids again withotu fear.....never claimed to be smart. Drove around for hours just crying and thinking and found a center that had big words that read HEP C Support...went in and got informed...went hoem and told family, after removing toothbrush and razor and calling doc to schedule everyone for testing....thank God I am only one affected.After 3 attempts to get to the bottom of what all this meant and each attempt costing me more labs and treatment of the coldest kind...I quit trying....I actually got yet another head cold so bad I finally went thru the ER at a local by your income hospital...everythign changed from there..too many appointments if you ask me, bt hey, it had been about 10 plus years, so went with it....Started treatments...got great lowering numbers, but no clear.....really had no issues with treatments, shots or pills (although felt pills were worse, for never felt any change with shots)...then the heart palpitations started, about 14 weeks in....then they got worse and oh my, had to lay down to make them stop, thought heart was gonna jump from chest when I sat up, even staretd skipping beats....17 weeks in, doctor stopped treatment and said liver disease is betetr than heart disease, I agreed...so, no longer doing treatments, almost 2 years now and this bone pain is killing me...I have a son that is 12 that is a quad, I am his arms and legs, yet some days my muscles wrinkle and my bones feel like they ar egonna break any second.....tried tordol, 1000mg ibuprofen works better...I know, I know, but pain gets unbearable and you go for what works...like right now, butt to ankles, but at the center of the bone not all of it and then them hands .....it was thought to be rheumotoid arthritis by GI, but that doc gave me lyrica and said ti was nerve pain....it worked wonderfully, at first...is it that I cna do more now, so I do and then it seems the pills don't work cause then I am in major pain all over, maybe...either way, it is gettign harder and harder to handle, for ibuprofen don't touch it any more...valium 10 mg does relax enough to sleep although those are not perscribed and cried for in desperation, but nothign touches pain at its core....seeing both docs soon and praying one of you all know this pain and somethign besides burning baths that help ease the pain, yet it also is safe for this liver...thanks------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2011 Report Share Posted January 11, 2011 Really dont know other than they are hormones produced by the thyroid. From: Tonni <tbrende7@...>Subject: [ ] new to group Date: Sunday, January 9, 2011, 10:25 PM Diagnosed in 2007 via registered mail after donating blood...worst way to learn you are registered with Center for Disease control for having a disease that you think is like aids...never gonna get to kiss my kids again withotu fear.....never claimed to be smart. Drove around for hours just crying and thinking and found a center that had big words that read HEP C Support...went in and got informed...went hoem and told family, after removing toothbrush and razor and calling doc to schedule everyone for testing....thank God I am only one affected.After 3 attempts to get to the bottom of what all this meant and each attempt costing me more labs and treatment of the coldest kind...I quit trying....I actually got yet another head cold so bad I finally went thru the ER at a local by your income hospital...everythign changed from there..too many appointments if you ask me, bt hey, it had been about 10 plus years, so went with it....Started treatments...got great lowering numbers, but no clear.....really had no issues with treatments, shots or pills (although felt pills were worse, for never felt any change with shots)...then the heart palpitations started, about 14 weeks in....then they got worse and oh my, had to lay down to make them stop, thought heart was gonna jump from chest when I sat up, even staretd skipping beats....17 weeks in, doctor stopped treatment and said liver disease is betetr than heart disease, I agreed...so, no longer doing treatments, almost 2 years now and this bone pain is killing me...I have a son that is 12 that is a quad, I am his arms and legs, yet some days my muscles wrinkle and my bones feel like they ar egonna break any second.....tried tordol, 1000mg ibuprofen works better...I know, I know, but pain gets unbearable and you go for what works...like right now, butt to ankles, but at the center of the bone not all of it and then them hands .....it was thought to be rheumotoid arthritis by GI, but that doc gave me lyrica and said ti was nerve pain....it worked wonderfully, at first...is it that I cna do more now, so I do and then it seems the pills don't work cause then I am in major pain all over, maybe...either way, it is gettign harder and harder to handle, for ibuprofen don't touch it any more...valium 10 mg does relax enough to sleep although those are not perscribed and cried for in desperation, but nothign touches pain at its core....seeing both docs soon and praying one of you all know this pain and somethign besides burning baths that help ease the pain, yet it also is safe for this liver...thanks------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2011 Report Share Posted January 11, 2011 thanks Tonni Brende Wife, Mother, Grandma too... "Life is not about waiting for the storms to pass... it's about learning how to dance in the rain." athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful. http://johnathanourgift.synthasite.com/index.php From: Tonni <tbrende7@...>Subject: [ ] new to group Date: Sunday, January 9, 2011, 10:25 PM Diagnosed in 2007 via registered mail after donating blood...worst way to learn you are registered with Center for Disease control for having a disease that you think is like aids...never gonna get to kiss my kids again withotu fear.....never claimed to be smart. Drove around for hours just crying and thinking and found a center that had big words that read HEP C Support...went in and got informed...went hoem and told family, after removing toothbrush and razor and calling doc to schedule everyone for testing....thank God I am only one affected.After 3 attempts to get to the bottom of what all this meant and each attempt costing me more labs and treatment of the coldest kind...I quit trying....I actually got yet another head cold so bad I finally went thru the ER at a local by your income hospital...everythign changed from there..too many appointments if you ask me, bt hey, it had been about 10 plus years, so went with it....Started treatments...got great lowering numbers, but no clear.....really had no issues with treatments, shots or pills (although felt pills were worse, for never felt any change with shots)...then the heart palpitations started, about 14 weeks in....then they got worse and oh my, had to lay down to make them stop, thought heart was gonna jump from chest when I sat up, even staretd skipping beats....17 weeks in, doctor stopped treatment and said liver disease is betetr than heart disease, I agreed...so, no longer doing treatments, almost 2 years now and this bone pain is killing me...I have a son that is 12 that is a quad, I am his arms and legs, yet some days my muscles wrinkle and my bones feel like they ar egonna break any second.....tried tordol, 1000mg ibuprofen works better...I know, I know, but pain gets unbearable and you go for what works...like right now, butt to ankles, but at the center of the bone not all of it and then them hands .....it was thought to be rheumotoid arthritis by GI, but that doc gave me lyrica and said ti was nerve pain....it worked wonderfully, at first...is it that I cna do more now, so I do and then it seems the pills don't work cause then I am in major pain all over, maybe...either way, it is gettign harder and harder to handle, for ibuprofen don't touch it any more...valium 10 mg does relax enough to sleep although those are not perscribed and cried for in desperation, but nothign touches pain at its core....seeing both docs soon and praying one of you all know this pain and somethign besides burning baths that help ease the pain, yet it also is safe for this liver...thanks------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2011 Report Share Posted January 11, 2011 so should they also be tested, not just generic thyroid test???? Tonni Brende Wife, Mother, Grandma too... "Life is not about waiting for the storms to pass... it's about learning how to dance in the rain." athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful. http://johnathanourgift.synthasite.com/index.php From: Tonni <tbrende7@...>Subject: [ ] new to group Date: Sunday, January 9, 2011, 10:25 PM Diagnosed in 2007 via registered mail after donating blood...worst way to learn you are registered with Center for Disease control for having a disease that you think is like aids...never gonna get to kiss my kids again withotu fear.....never claimed to be smart. Drove around for hours just crying and thinking and found a center that had big words that read HEP C Support...went in and got informed...went hoem and told family, after removing toothbrush and razor and calling doc to schedule everyone for testing....thank God I am only one affected.After 3 attempts to get to the bottom of what all this meant and each attempt costing me more labs and treatment of the coldest kind...I quit trying....I actually got yet another head cold so bad I finally went thru the ER at a local by your income hospital...everythign changed from there..too many appointments if you ask me, bt hey, it had been about 10 plus years, so went with it....Started treatments...got great lowering numbers, but no clear.....really had no issues with treatments, shots or pills (although felt pills were worse, for never felt any change with shots)...then the heart palpitations started, about 14 weeks in....then they got worse and oh my, had to lay down to make them stop, thought heart was gonna jump from chest when I sat up, even staretd skipping beats....17 weeks in, doctor stopped treatment and said liver disease is betetr than heart disease, I agreed...so, no longer doing treatments, almost 2 years now and this bone pain is killing me...I have a son that is 12 that is a quad, I am his arms and legs, yet some days my muscles wrinkle and my bones feel like they ar egonna break any second.....tried tordol, 1000mg ibuprofen works better...I know, I know, but pain gets unbearable and you go for what works...like right now, butt to ankles, but at the center of the bone not all of it and then them hands .....it was thought to be rheumotoid arthritis by GI, but that doc gave me lyrica and said ti was nerve pain....it worked wonderfully, at first...is it that I cna do more now, so I do and then it seems the pills don't work cause then I am in major pain all over, maybe...either way, it is gettign harder and harder to handle, for ibuprofen don't touch it any more...valium 10 mg does relax enough to sleep although those are not perscribed and cried for in desperation, but nothign touches pain at its core....seeing both docs soon and praying one of you all know this pain and somethign besides burning baths that help ease the pain, yet it also is safe for this liver...thanks------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2011 Report Share Posted January 11, 2011 neverr use to get it, but it showed up about a year before I got diagnosed, along with numerous other symptoms?????? Tonni Brende Wife, Mother, Grandma too... "Life is not about waiting for the storms to pass... it's about learning how to dance in the rain." athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful. http://johnathanourgift.synthasite.com/index.php From: Tonni <tbrende7@...>Subject: [ ] new to group Date: Sunday, January 9, 2011, 10:25 PM Diagnosed in 2007 via registered mail after donating blood...worst way to learn you are registered with Center for Disease control for having a disease that you think is like aids...never gonna get to kiss my kids again withotu fear.....never claimed to be smart. Drove around for hours just crying and thinking and found a center that had big words that read HEP C Support...went in and got informed...went hoem and told family, after removing toothbrush and razor and calling doc to schedule everyone for testing....thank God I am only one affected.After 3 attempts to get to the bottom of what all this meant and each attempt costing me more labs and treatment of the coldest kind...I quit trying....I actually got yet another head cold so bad I finally went thru the ER at a local by your income hospital...everythign changed from there..too many appointments if you ask me, bt hey, it had been about 10 plus years, so went with it....Started treatments...got great lowering numbers, but no clear.....really had no issues with treatments, shots or pills (although felt pills were worse, for never felt any change with shots)...then the heart palpitations started, about 14 weeks in....then they got worse and oh my, had to lay down to make them stop, thought heart was gonna jump from chest when I sat up, even staretd skipping beats....17 weeks in, doctor stopped treatment and said liver disease is betetr than heart disease, I agreed...so, no longer doing treatments, almost 2 years now and this bone pain is killing me...I have a son that is 12 that is a quad, I am his arms and legs, yet some days my muscles wrinkle and my bones feel like they ar egonna break any second.....tried tordol, 1000mg ibuprofen works better...I know, I know, but pain gets unbearable and you go for what works...like right now, butt to ankles, but at the center of the bone not all of it and then them hands .....it was thought to be rheumotoid arthritis by GI, but that doc gave me lyrica and said ti was nerve pain....it worked wonderfully, at first...is it that I cna do more now, so I do and then it seems the pills don't work cause then I am in major pain all over, maybe...either way, it is gettign harder and harder to handle, for ibuprofen don't touch it any more...valium 10 mg does relax enough to sleep although those are not perscribed and cried for in desperation, but nothign touches pain at its core....seeing both docs soon and praying one of you all know this pain and somethign besides burning baths that help ease the pain, yet it also is safe for this liver...thanks------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2011 Report Share Posted January 11, 2011 my gastro ran all 3 every time From: Tonni <tbrende7@...>Subject: [ ] new to group Date: Sunday, January 9, 2011, 10:25 PM Diagnosed in 2007 via registered mail after donating blood...worst way to learn you are registered with Center for Disease control for having a disease that you think is like aids...never gonna get to kiss my kids again withotu fear.....never claimed to be smart. Drove around for hours just crying and thinking and found a center that had big words that read HEP C Support...went in and got informed...went hoem and told family, after removing toothbrush and razor and calling doc to schedule everyone for testing....thank God I am only one affected.After 3 attempts to get to the bottom of what all this meant and each attempt costing me more labs and treatment of the coldest kind...I quit trying....I actually got yet another head cold so bad I finally went thru the ER at a local by your income hospital...everythign changed from there..too many appointments if you ask me, bt hey, it had been about 10 plus years, so went with it....Started treatments...got great lowering numbers, but no clear.....really had no issues with treatments, shots or pills (although felt pills were worse, for never felt any change with shots)...then the heart palpitations started, about 14 weeks in....then they got worse and oh my, had to lay down to make them stop, thought heart was gonna jump from chest when I sat up, even staretd skipping beats....17 weeks in, doctor stopped treatment and said liver disease is betetr than heart disease, I agreed...so, no longer doing treatments, almost 2 years now and this bone pain is killing me...I have a son that is 12 that is a quad, I am his arms and legs, yet some days my muscles wrinkle and my bones feel like they ar egonna break any second.....tried tordol, 1000mg ibuprofen works better...I know, I know, but pain gets unbearable and you go for what works...like right now, butt to ankles, but at the center of the bone not all of it and then them hands .....it was thought to be rheumotoid arthritis by GI, but that doc gave me lyrica and said ti was nerve pain....it worked wonderfully, at first...is it that I cna do more now, so I do and then it seems the pills don't work cause then I am in major pain all over, maybe...either way, it is gettign harder and harder to handle, for ibuprofen don't touch it any more...valium 10 mg does relax enough to sleep although those are not perscribed and cried for in desperation, but nothign touches pain at its core....seeing both docs soon and praying one of you all know this pain and somethign besides burning baths that help ease the pain, yet it also is safe for this liver...thanks------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2011 Report Share Posted January 11, 2011 Hi Tonni Our bodys change as we get older. Our bodys change according to our diets and lifestyle. Our bodys change from diseases or genetics. It is sometimes hard to pinpoint 'why' some health issue shows up. I do 2 kinds of research - internet and doctor exams. love don in ks From: Tonni <tbrende7@...>Subject: [ ] new to group Date: Sunday, January 9, 2011, 10:25 PM Diagnosed in 2007 via registered mail after donating blood...worst way to learn you are registered with Center for Disease control for having a disease that you think is like aids...never gonna get to kiss my kids again withotu fear.....never claimed to be smart. Drove around for hours just crying and thinking and found a center that had big words that read HEP C Support...went in and got informed...went hoem and told family, after removing toothbrush and razor and calling doc to schedule everyone for testing....thank God I am only one affected.After 3 attempts to get to the bottom of what all this meant and each attempt costing me more labs and treatment of the coldest kind...I quit trying....I actually got yet another head cold so bad I finally went thru the ER at a local by your income hospital...everythign changed from there..too many appointments if you ask me, bt hey, it had been about 10 plus years, so went with it....Started treatments...got great lowering numbers, but no clear.....really had no issues with treatments, shots or pills (although felt pills were worse, for never felt any change with shots)...then the heart palpitations started, about 14 weeks in....then they got worse and oh my, had to lay down to make them stop, thought heart was gonna jump from chest when I sat up, even staretd skipping beats....17 weeks in, doctor stopped treatment and said liver disease is betetr than heart disease, I agreed...so, no longer doing treatments, almost 2 years now and this bone pain is killing me...I have a son that is 12 that is a quad, I am his arms and legs, yet some days my muscles wrinkle and my bones feel like they ar egonna break any second.....tried tordol, 1000mg ibuprofen works better...I know, I know, but pain gets unbearable and you go for what works...like right now, butt to ankles, but at the center of the bone not all of it and then them hands .....it was thought to be rheumotoid arthritis by GI, but that doc gave me lyrica and said ti was nerve pain....it worked wonderfully, at first...is it that I cna do more now, so I do and then it seems the pills don't work cause then I am in major pain all over, maybe...either way, it is gettign harder and harder to handle, for ibuprofen don't touch it any more...valium 10 mg does relax enough to sleep although those are not perscribed and cried for in desperation, but nothign touches pain at its core....seeing both docs soon and praying one of you all know this pain and somethign besides burning baths that help ease the pain, yet it also is safe for this liver...thanks------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2011 Report Share Posted January 11, 2011 here here enough internet, now list my questions and await doc appointments....just hate you got one shot every 6 months, so they gotta listen up Tonni Brende Wife, Mother, Grandma too... "Life is not about waiting for the storms to pass... it's about learning how to dance in the rain." athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful. http://johnathanourgift.synthasite.com/index.php From: Tonni <tbrende7@...>Subject: [ ] new to group Date: Sunday, January 9, 2011, 10:25 PM Diagnosed in 2007 via registered mail after donating blood...worst way to learn you are registered with Center for Disease control for having a disease that you think is like aids...never gonna get to kiss my kids again withotu fear.....never claimed to be smart. Drove around for hours just crying and thinking and found a center that had big words that read HEP C Support...went in and got informed...went hoem and told family, after removing toothbrush and razor and calling doc to schedule everyone for testing....thank God I am only one affected.After 3 attempts to get to the bottom of what all this meant and each attempt costing me more labs and treatment of the coldest kind...I quit trying....I actually got yet another head cold so bad I finally went thru the ER at a local by your income hospital...everythign changed from there..too many appointments if you ask me, bt hey, it had been about 10 plus years, so went with it....Started treatments...got great lowering numbers, but no clear.....really had no issues with treatments, shots or pills (although felt pills were worse, for never felt any change with shots)...then the heart palpitations started, about 14 weeks in....then they got worse and oh my, had to lay down to make them stop, thought heart was gonna jump from chest when I sat up, even staretd skipping beats....17 weeks in, doctor stopped treatment and said liver disease is betetr than heart disease, I agreed...so, no longer doing treatments, almost 2 years now and this bone pain is killing me...I have a son that is 12 that is a quad, I am his arms and legs, yet some days my muscles wrinkle and my bones feel like they ar egonna break any second.....tried tordol, 1000mg ibuprofen works better...I know, I know, but pain gets unbearable and you go for what works...like right now, butt to ankles, but at the center of the bone not all of it and then them hands .....it was thought to be rheumotoid arthritis by GI, but that doc gave me lyrica and said ti was nerve pain....it worked wonderfully, at first...is it that I cna do more now, so I do and then it seems the pills don't work cause then I am in major pain all over, maybe...either way, it is gettign harder and harder to handle, for ibuprofen don't touch it any more...valium 10 mg does relax enough to sleep although those are not perscribed and cried for in desperation, but nothign touches pain at its core....seeing both docs soon and praying one of you all know this pain and somethign besides burning baths that help ease the pain, yet it also is safe for this liver...thanks------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2011 Report Share Posted February 1, 2011 i have no color changs at all but will keep a look ourt Tonni Brende Wife, Mother, Grandma too... "Life is not about waiting for the storms to pass... it's about learning how to dance in the rain." athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful. http://johnathanourgift.synthasite.com/index.php From: trudykinsey@... <trudykinsey@...>Subject: [ ] Tonni"Hcv" < >Date: Tuesday, February 1, 2011, 12:15 AM No your fingers and toes would be white. A deathly translucent white ( or lack of any color ) . They turn blue as the blood " pools " as it returns to fingers & toes.http://facebook.com/people/andTrudy-Kinsey/1340460877 ""A well- behaved woman never made history"...Mae Westhttp://oktravels.wordpress.comhttp://allrecipes.com/cook/TrudyK/profile.aspx Quote Link to comment Share on other sites More sharing options...
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