Stress

[Guest guest]

Kozy,

What do you mean your chest flares up? Are you talking about chest pain

and/or fast pulse? I get both from eating sugary foods, many

vegetables, and all fruits. I can understand your frustration.

Sue

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Hi everyone!!!

I felt sorry for this guy that had problems traveling from Oregon to NC.

I

truly believed that stress is caused thyroid problems. Whenever I felt

stressed out for the day... my chest usually flares up. Some days I

have bad

days and some days I have good days.

Lately, I have been watching what I eat... I found whenever I eat or

drink

something that has sugar in it.... my chest flares up. When I don't

have

sugar for the day.... it does not do that. So, now I know what bothers

me

and what doesn't. Has anyone else has the same problem???

Have a great day.

Kozy

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[Guest guest]

Sue,

Yes, My chest flares up..... I get pains all over my chest...especially in the

middle.. my heart never beats fast after eating sugary foods except for

chocolate. I never had a problem with vegetables and fruits. I felt better

after eating vegetables and fruits. If I eat sugary like cookies, cakes and

beverages drinks like Arizona tea that has soo much sugar in it....also, sodas

like coke and etc... do bother me. I avoid drinking those unless I have to

take caffiene to be awake while driving long trips. I am testing other foods

and see if they bother me. I am keeping my eye out. Hope this helps ya

understand.

Kozy

------------------------------------------------------------------------

[Guest guest]

Hi Kozy,

What have you found will decrease the chest pain? Is there any nutrient

or other product that helps you quickly? I haven't been able to find

one. The copper helps me, but only as a maintenance type of effect, and

not something immediate- or within minutes or even an hour or two. The

Magnesium or calcium doesn't help me, unfortunately. The Beta blockers

(such as Tenormin)weren't helping me either.

Best Wishes and thanks,

Sue

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Sue,

Yes, My chest flares up..... I get pains all over my chest...especially

in the

middle.. my heart never beats fast after eating sugary foods except for

chocolate. I never had a problem with vegetables and fruits. I felt

better

after eating vegetables and fruits. If I eat sugary like cookies, cakes

and

beverages drinks like Arizona tea that has soo much sugar in it....also,

sodas

like coke and etc... do bother me. I avoid drinking those unless I have

to

take caffiene to be awake while driving long trips. I am testing other

foods

and see if they bother me. I am keeping my eye out. Hope this helps ya

understand.

Kozy

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[Guest guest]

Hi Sue,

No, I haven't taken anything to help ease my chest pains. I just try to avoid

eating sugary foods, sodas, tea and etc. I have tried eating vegetables such

as salads and other healthy foods. The pains seems to go away but not

completely. I have a bad eating habit so I am trying hard to change it. I know

I needed to feel alot better. I am going to take some vitamins and some

minerals after I get my hair analysis test results back so I know what to take

and hopefully I will start to feel a whole lot better. Dr. said it will

probably take another week before I get them back.

Regards and Best Wishes,

Kozy

------------------------------------------------------------------------

[Guest guest]

Stress seems to play a significant part in every chronic illness. No matter

what the illness is, it can exacerbate the symptoms of the illness because it

does bring down your immunity to an extent. However, those with a gradual

onset have seen one of two scenarios which may be a clue to this.

When one has a gradual onset, they are bothered by the illness, but not

disabled, for many years. When they go through puberty (which is stress to

the body and any type of stress is the key) they either begin to gradually

improve or to suddenly worsen. Even those who worsen may never be really

severe unless another triggering agent of stress to the body makes them

severe. It's the thought of experts in this illness that the triggering

agents will not make the person worse if they were not already in this area of

being a sitting duck waiting for an assault. One is bad. They can get well

or even have years long remissions. Suddenly, they have a stressful event

that brings them to an acute phase. It can be a flu or it can be a flu shot.

They were going to be hit by something eventually anyway.

If you weren't stressed when you had the onset, you may not have become

sick...THEN....but would have sometime in the future when the immune system

was getting more susceptible. It's the same thing that happens in many

illnesses. But stress alone cannot do it in any illness ....... it takes

more than that to make a perfect combination.

Gail

[Guest guest]

Gail

I'm supposed to be peeling potatoes and finishing another e mail...but i had

to write right back.

you can have a delayed reaction to shock. it's perfectly ok. your brain

takes it in when it can handle it. the stress of caring for twins the first

year is phenomenal. you'll realize it later. i lost my best friend when my

boys were about 8 months old. this was a great friend. 6 years ago and

it's still hard.

your focus changes. your'e taking care of a lot of kids. plus other people

have reactions to your having a child with Ds that can be weird. so

friendships, marriages, work, everything can change. it has to. life has

changed. sometimes your strength in dealing with it can make you seem cold,

when actually you're just trying to hold onto it. ..are you

nursing/weaning/anything else hormonal could kick in....definitely affects

your feelings.

Also, your friend may have misinterpreted what you said. You can always say

'I'm sorry you feel upset about what I said. Maybe I'm under too much

stress and I can't seem to find the right words sometimes. I really

didn't mean to hurt you...you're my friend, and you mean a lot to me... "

Just clear the air and you'll feel better. Best to do it in person or write

a little note and present it over a cup of tea....get some time alone with

her. Friendships are worth preserving, but sometimes friendships exist for

a specific purpose (say, work friendships) When the situation changes, so

does the friendship. You quit work....you lose touch...usually gradually.

So if it needs to die out now, make your apologies and relax.......

If you're feeling really crazy/down/ you could be a little depressed or

sleep deprived. I think if I could have gotten away when my boys were 8

months old it would have helped. But the antidepressants did (remember me

touting the benefits of a little chemical help, months ago). Some people

have a glass of wine, a beer or a martini. Didn't fit in with my lifestyle

back then....

Be assured, you have us, cyberfriends, but we ARE REAL PEOPLE WHO REALLY

CARE.....

I've walked some places no one would want to go, and I'll always outstretch

my hand to help someone up from where I once was.....

Love,

Jean

n and Dan's mom

> OK, I thought I have been handling things/life better these days, guess

> not. My best friend from childhood just told me a couple of things that

> I have said on the phone to her within the last month, and they weren't

> nice. The problem is I swear I don't remember sayings these things that

> hurt her feelings. I KNOW I didn't say them, she swears I did, and even

> wrote down what I said........what is going on here, am I haveing a

> meltdown and not aware? I'm a very conciencence{sp} person{I thought}and

> I love my friend.......I'm lost, and very upset right now. Yes, it has

> been a tough year, twins, making 4 children, plus shock of

> Tara.......but I have always tried not to let it show to others how

> tough, do you know what I mean? Right now I feel like I'm in the

> twighlight zone.......am I? Is it a end of the first year thing? Can

> anyone relate???? Sorry this got long...............

> Gail......Bobby 6, Jillian 3 1/2, and Tara{ds} 1

>

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[Guest guest]

Hi Gail

I don't think you are having a meltdown......my sister does this to me all

the time. Is your friend a very sensitive person? I say things to my

sister in a what I consider to be a calm and rational way. Then I hear back

in a day or two that I tore her to shreds! HA - she thinks I'm the hardest

person she knows and if any of you know me, I'm not hard at all! Oh well,

think your closest friends and family know you? NOT.

Gail - be sure to get some of that stress out - did I tell you I bought a

punching bag that you suspend from the ceiling? I punch the living

daylights out of it for 10 minutes and feel so much better! You have to

find a release for yourself. Also you may consider a councillor - someone

who specialises in grief! They are wonderful and just to get it all out on

someone who doesn't know you is very therapeutic.

Take care - I know just how you are feeling and I think most of us here have

been there too!

BIG HUG

Carolyn

Mum To on(8), (6 1/2), Emma (4)ds and Nicki (nearly 3)ds

stress

> OK, I thought I have been handling things/life better these days, guess

> not. My best friend from childhood just told me a couple of things that

> I have said on the phone to her within the last month, and they weren't

> nice. The problem is I swear I don't remember sayings these things that

> hurt her feelings. I KNOW I didn't say them, she swears I did, and even

> wrote down what I said........what is going on here, am I haveing a

> meltdown and not aware? I'm a very conciencence{sp} person{I thought}and

> I love my friend.......I'm lost, and very upset right now. Yes, it has

> been a tough year, twins, making 4 children, plus shock of

> Tara.......but I have always tried not to let it show to others how

> tough, do you know what I mean? Right now I feel like I'm in the

> twighlight zone.......am I? Is it a end of the first year thing? Can

> anyone relate???? Sorry this got long...............

> Gail......Bobby 6, Jillian 3 1/2, and Tara{ds} 1

>

> ------------------------------------------------------------------------

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>

[Guest guest]

Gail,

The first year is soooo hard. I was just like you trying to seem so strong

and in doing so I would simply meltdown, many times at the most inappropriate

time. I remember bringing to a doctors appointment at Children's

Hospital and she was on oxygen so I had her tank to contend with and I was

late for an appointment and this woman took my parking spot. Well I was not

going to have it I totally lost it and went up and knocked on her window and

told her she was a terrible person and that she would have bad Karma, you

name it I said it. Well she did not give me my space and I can't believe she

didn't call security on me! OH and their was the time on Christmas Eve right

after 's open heart surgery when my dad and a few friends came over and

they wouldn't leave, no matter how I hinted and came right out and asked them

to leave they stayed, well I found myself hiding in the closest

hyperventilating on the phone to my mom, who was trying to give me hints on

how to get rid of unwanted guests! Oh I look back and shudder, but now the

twins are 3 1/2 and I have to say it does get better. I feel that the 3 year

mark was a magic number for me. I have just come to accept what life has

given me and I have also come to realize that my little Ms. is doing

fine and she will do things that other kids do. Twins are a challenge, having

one with special needs is more of a challenge. Having 4 kids is a challenge.

My sister also had twins after she already had two children. She is doing

great now but it was rough for a while. Trust me allow yourself to have the

meltdowns, don't be strong if you don't want to, and also enjoy the good

days, or moments, whatever you can get.

Diane

Mom to Adam 8, and (ds) 3 1/2

[Guest guest]

Gail

Not to diminish what Karin does, but she deliberatley chose what she's

doing. Plus we're all different. You could never compare yourself with

another person, cause you'd always make yourself come out the loser when

you're in that self-critical mode. My counselor said stay at home moms are

among the lowest in self-esteem of any group of people, because they get no

affirmation for what they;re doing. That's why groups like this are so

important to women. We all need to affirm each other. You would not have

joined this list if you weren't a great mom.

There's another reason why we can't always talkDown syndrome too. Because

we don't have it and sometimes we need to pull away from it for a couple of

minutes and just feel like a human being woman with a sense of humour or

whatever.,,,

Symptoms of Depression...

less or no enjoyment of things previously enjoyed

crying

changes in appetite, over or undereating

too much sleeping or inability to get restful sleep

isolating yourself

lack of energy

this lasts for a period of two weeks or longer

I beleive there's more symptoms, as well...

It's best to get to the doctor, because a low thyroid can also cause some of

these symptoms, and your thyroid can get disrupted with childbirth. It

seems a lot of us have had thyroid problems, too.

It will get better, though. I had a real tough time with grief...it's not a

straightforward process, you will improve, then step back, move

ahead,etc...understanding that moving back does not mean you are abnormal,

or failing to grieve, can help you because you might be afraid of going back

to ground zero. BUT YOU NEVER WILL. It will never be as bad as the first

moment you found out. It's really all uphill from there, and you've got a

year under your belt. You've survived not just twin pregnancy, birth, but a

huge life change having a different child. I always wanted twins...it's so

cool, probably every little girl's dream, but this is actually not every

little girl's dream no matter HOW much you love your child. Danny's seven.

I wouldn't trade him for the world. But I've had seven years, and right now

we're in a good phase.

Counselling is good. Talking is good. Crying is good. Going shopping and

buying yourself some small extravagance....nice pajamas, nothing wild, just

pretty and feminine makes me feel good. Buying a junk magazine...I like

People magazine..I like to have a long hot shower, put on my new pajamas,

put fresh clean sheets on my bed.... Luxury.....it feels good!

Give yourself some TLC

:>)

Jean

[Guest guest]

what can I say, thanks for attending to me today. You are soo

right. I probably could use a professional to talk too. The husband and

I never did communicate well, now it's even more strained these days.

Gosh! I can't believe an argument with a friend brought me here and put

such a magnifying glass on my life! I do feel paralyised, but mainly

it's just 1 year old twins plus a 6yr old and 3yr old to boot!

I'm glad you are doing well, my oldest, Bobby is 6 and such a good boy,

involved in lots of things, 6 seems to be a good age in this house too!

Thanks again Jean!! and everyone

Gail.......Bobby 6, Jillian 3 1/2, and Tara{ds}1

>

> Gail

> Not to diminish what Karin does, but she deliberatley chose what she's

> doing. Plus we're all different. You could never compare yourself with

> another person, cause you'd always make yourself come out the loser when

> you're in that self-critical mode. My counselor said stay at home moms are

> among the lowest in self-esteem of any group of people, because they get no

> affirmation for what they;re doing. That's why groups like this are so

> important to women. We all need to affirm each other. You would not have

> joined this list if you weren't a great mom.

> There's another reason why we can't always talkDown syndrome too. Because

> we don't have it and sometimes we need to pull away from it for a couple of

> minutes and just feel like a human being woman with a sense of humour or

> whatever.,,,

> Symptoms of Depression...

> less or no enjoyment of things previously enjoyed

> crying

> changes in appetite, over or undereating

> too much sleeping or inability to get restful sleep

> isolating yourself

> lack of energy

> this lasts for a period of two weeks or longer

> I beleive there's more symptoms, as well...

> It's best to get to the doctor, because a low thyroid can also cause some of

> these symptoms, and your thyroid can get disrupted with childbirth. It

> seems a lot of us have had thyroid problems, too.

> It will get better, though. I had a real tough time with grief...it's not a

> straightforward process, you will improve, then step back, move

> ahead,etc...understanding that moving back does not mean you are abnormal,

> or failing to grieve, can help you because you might be afraid of going back

> to ground zero. BUT YOU NEVER WILL. It will never be as bad as the first

> moment you found out. It's really all uphill from there, and you've got a

> year under your belt. You've survived not just twin pregnancy, birth, but a

> huge life change having a different child. I always wanted twins...it's so

> cool, probably every little girl's dream, but this is actually not every

> little girl's dream no matter HOW much you love your child. Danny's seven.

> I wouldn't trade him for the world. But I've had seven years, and right now

> we're in a good phase.

>

> Counselling is good. Talking is good. Crying is good. Going shopping and

> buying yourself some small extravagance....nice pajamas, nothing wild, just

> pretty and feminine makes me feel good. Buying a junk magazine...I like

> People magazine..I like to have a long hot shower, put on my new pajamas,

> put fresh clean sheets on my bed.... Luxury.....it feels good!

> Give yourself some TLC

> :>)

> Jean

>

> ------------------------------------------------------------------------

> PERFORM CPR ON YOUR APR!

> Get a NextCard Visa, in 30 seconds! Get rates as low as

> 0.0% Intro or 9.9% Fixed APR and no hidden fees.

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> ------------------------------------------------------------------------

>

> http://DSyndrome.com/Multiples

[Guest guest]

Hi Gail, The first year is very stressful. I thought I was on the verge

of a breakdown durning my first year. We had just went through the

floods in 93 through the midwest (lovely time) we had lost our home, we

did not have flood insurance because it hadn't happened before. So we

moved into a smaller place and couple months later got pregnant with

(ds) and Tyler, too much at once! And then to learn about .

I would lay in bed sometimes and just cry. I said things sometimes not

meaning to hurt anyone but I think people sometimes think that we have

handled our children so well ,(which sometimes no one knows or feels

the pain we have had to deal with except our husbands because it is

also their pain and grief.)that we should have a handle on our emotions

at all times. Dena at the bottom of my letter here has been my friend

for 18 years now but since I have had I haven't seen her more

than 4 times in 4 years. She cant handle people who slobber believe it

or not. She never could, I've always known this, she has a case of the

weakest stomach in the world but I thought because was a baby

that it wasn't an issue. Wrong! She can't do it. She gets around him and

she is in the bathroom vomiting. I can't tell you how much this hurt me

and her also. We talk on the phone every morning and e-mail all day but

we don't get together anymore because I have a problem being away from

. I don't get close to people much anymore. But I do know that God

only gives you what you can handle. I hope you and your friend get

things worked out and I don't think you have lost your mind, I think you

have just been busy with some pretty important little people. Take care

Kelli

wife of Greg, mother to ,Greg,April,Ash, & Tyler and friend of

Dena,daughter to Lynda, sister to Viki, Trasi,Rick and Jon. The End

[Guest guest]

Gail: Can't say it any better than any of the other

ladies already have! We've all gone thru this in one

way shape or form. In my case, I think dealing with

extreme prematurity and not getting their diagnosis

until they were a month old was slightly different. I

couldn't even THINK about what DS meant because I

didn't even know if my little dumplin's were going to

LIVE!!! I think because of this, every now and then

something small might set me off. Remember back in

Dec. when both you and I were having a bad day? For

me it was seeing the words " Mentally Retarded " next to

thier names on the forms at school. It really hit me

hard to think that's how the world viewed my boys.

Not as my son's but as the " little retarded twins " . I

know that is not completely true, that most people see

them as my beautiful little boys, but it was just the

" reality " of the situation slapping me up-side the

head that day.

I think Pam's right about getting your thyroid

checked. I read on the DrKoop website just the other

day that up to 30% of all pregnant woman will develop

hypothyroidism after giving birth!!! That is EXACTLY

what happend to me!!! I've been on synthroid ever

since and I think it did me the world of good!

When's the last time you really took care of you??? I

know I'm bad about neglecting my health but I'm

fanatical about the boys. Maybe you need to talk to

your doc and get yourself a good physical and have

them do a thyroid panel w/TSH for good measure!

Remember, you have to take care of you first,

physically and emotionally.

Just know we are all here for you and have all gone

thru what you are going thru in some fashion.

(((((((hugs))))))))

Judi-Mom to Sam & , 3, Identical Twins

--- Pam Houser <p_houser37@...> wrote:

> Gail and everyone else,

>

> I know how you feel. Don't be so hard on yourself

> and

> please know you are not alone here. I remember also

> how hard that first year was. While I was pregnant I

> was so excited for two reasons 1> I was having twins

> and 2. They were both girls. I had 2 boys already so

> knowing I was going to have my little girl and on

> top

> of that two of them! Man I was on cloud nine! When

> the

> day came to give birth (sheduled c-section) I just

> couldn't wait to get my hands on them! Well after

> about 6 hours after giving birth the Dr. came into

> my

> room and told us he thought they had Down Syndrome

> and

> like many others I did not know anything about it.

> All

> I thought of was the show Life goes on. But all of a

> sudden my world as I knew it was shattered! I

> starting

> crying and did not stop crying for about 9 months.

> Really! I cried everyday! While in the hospital I

> could not or would not even hold them to feed them,

> I

> would try for a minute but always gave them to

> someone

> else. And when I was there alone I did not want them

> in my room. I DID NOT WANT TO BOND WITH THEM!! I

> know

> the nurses probably thought I was a mean mother.

> The

> next few months were awful! Trying to deal with

> everything and all the ifomation that was coming my

> way and the thought of my little girls not being

> normal. All the things I dreamed about while I was

> pregnant I would do with thme were gone. I cried

> cried

> cried. I thought I was going to loose my mind! One

> night when my husband came home from work I had a

> suitcase ready and I lefted. I did not know where I

> was going I just got in my Van and drove for about 3

> hours. I stopped at a Hotel and got me a room. I

> slepted for 16 hours without waking up! I was

> exhausted mentally and physically.

> I have a question for you have you had your thyroid

> checked? I found out I had hypothyriodism 1 year

> after

> giving birth and this will also make you not

> remember

> things. I still do it all the time.

>

> Anyway I just want you to know IT DOES GET BETTER> I

> promise. My girls are almost 5 now and I haven't

> cried

> over them in a very long time. I really can't

> remember

> the last time i did. I don't have time for a social

> life but that's ok cause I just love taking care of

> my

> family and looking forward to the future. Hannah and

> are such a joy and a positive thing in my

> life

> now I don't know what I would do without them.

> Just try to tell yourself when you are having bad

> days

> that it will get better and tell us all about it. We

> are all here for you and hang in there.

>

> We all love you,

> Pam mom to Josh 18, Dusty 13 and Hannah and

> identical twins age 4.

>

> P. S. Sorry I didn't mean for this too be so long.

>

> __________________________________________________

>

[Guest guest]

Pam, I am so glad you voiced exactly how I felt when I was pregnant with

and . I already had a son and was soaring on cloud 9 when I found out I

was having twins and one was a girl. In my mind my life was complete. I

remember when they told us that one of the babies had an enlarged heart and

possibly a chromosomal abnormality I just prayed it wasn't the little girl. I

have felt so guilty about feeling this way. I was just like you in the

hospital. The twins were two months early and also needed open-heart

surgery. I was afraid to bond, so I felt like the nurses thought I was a

horrible mom. I still have twinges of wanting the " perfect little girl " , but

as my husband as put it is our " perfect little girl " .

Thanks Pam for feeling the same way!!

Diane

Mom to Adam 8, and (ds) 3 1/2

[Guest guest]

Hi Pam and Diane...

Perhaps you guys can understand my feelings as well. I bet others will too.

Sometimes I feel so lucky to have Sara (non Ds twin) because I will have

" the girl " stuff. Maggie is Maggie and we will share all kinds of things

too but I could understand feeling " robbed " if I didn't get the chance to

have Sara too. God, I hope this comes off right on " paper " .

Quinn, 3 Sara and Maggie 17 months and ? on the way!

Re: Stress

Pam, I am so glad you voiced exactly how I felt when I was pregnant with

and . I already had a son and was soaring on cloud 9 when I found out I

was having twins and one was a girl. In my mind my life was complete. I

remember when they told us that one of the babies had an enlarged heart and

possibly a chromosomal abnormality I just prayed it wasn't the little girl.

I

have felt so guilty about feeling this way. I was just like you in the

hospital. The twins were two months early and also needed open-heart

surgery. I was afraid to bond, so I felt like the nurses thought I was a

horrible mom. I still have twinges of wanting the " perfect little girl " , but

as my husband as put it is our " perfect little girl " .

Thanks Pam for feeling the same way!!

Diane

Mom to Adam 8, and (ds) 3 1/2

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http://DSyndrome.com/Multiples

[Guest guest]

Diane,

It took me a good 6 months to bond completely with my

girls. One of them had a heart defect and needed extra

attention and the other one was having problems with

some seizures. Of course all is well now. They are

fabulous! I don't know what I would do without them

now. I sen some of the nurses who were on duty in the

nursery while we were in the hospital and apologized

for my behavoir. They told me they understood. But now

as I think about it I think the nurses didn't know how

to handle the situation to well either. I don't think

they ever had a set of twins before with DS or any

other kind of special needs as my two did. Anyway I am

finding out as the girls get bigger that we can do the

girlie things together It's just a bit different. Also

after I had the girls everyone would tell me how I

would treat the girls just like my other children and

how they would be just like my other children, well I

am here to say they are not like other children and

they do things different and look at things different

than other children. And you do have to treat them

different. They are much more special to me and they

just light up your face everyday. They put a smile on

everyones face who meets them!

I hope everyone has a great day!

Pam mom to Hannah and identicals age 4 almost

5.

--- dgillings@... wrote:

> Pam, I am so glad you voiced exactly how I felt when

> I was pregnant with

> and . I already had a son and was soaring on

> cloud 9 when I found out I

> was having twins and one was a girl. In my mind my

> life was complete. I

> remember when they told us that one of the babies

> had an enlarged heart and

> possibly a chromosomal abnormality I just prayed it

> wasn't the little girl. I

> have felt so guilty about feeling this way. I was

> just like you in the

> hospital. The twins were two months early and

> also needed open-heart

> surgery. I was afraid to bond, so I felt like the

> nurses thought I was a

> horrible mom. I still have twinges of wanting the

> " perfect little girl " , but

> as my husband as put it is our " perfect little

> girl " .

>

> Thanks Pam for feeling the same way!!

>

> Diane

> Mom to Adam 8, and (ds) 3 1/2

>

>

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> Get a NextCard Visa, in 30 seconds! Get rates as

> low as

> 0.0% Intro or 9.9% Fixed APR and no hidden fees.

> Apply NOW!

>

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>

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> http://DSyndrome.com/Multiples

>

>

__________________________________________________

[Guest guest]

Oh Pam I know that most be a hard time for you and also believe God doesn't

give us things the we cannot handle. In my case even I never knew before I

had the kids a has DS. Since the first time I saw I knew she had it,

thank God my mom was with us because, my husband at first didn't wanted to

accept the fact she had DS and even we were together and we still together,

he was the one who got all stressed and didn't wanted to help me with the

kids. For me was more stressful that situation, I was getting ready to leave

him and I asked him for divorce, I figure out almost 8 years waiting for

this time and now when we both agree to become parents this happend, there

is no way Iam going to put in risk what I dreamed all my life. Thank God he

realized how important we are for him and we worked things out. He works and

I stayed with the kids at home but when he comes home he helps me and he

spends a lot of time with the three of them and we try on weekends to do

things for them. And is true about no social life because I like to stay

home with them instead of going out, I have two different groups of moms who

meet once a month to go out and I never had done that just because I don't

want to leave my little ones. If I need to go to the store now the days are

getting nicer I take my clan and we all go to shopping groceries or just to

get something. I believe we all experienced stress one way or the other.

Mabel, mom to Carolina, Cristian, a-ds

>From: Pam Houser <p_houser37@...>

>Reply-Multiples-DSegroups

>onelist <Multiples-DSonelist>

>Subject: Stress

>Date: Fri, 7 Apr 2000 05:24:20 -0700 (PDT)

>

>Gail and everyone else,

>

>I know how you feel. Don't be so hard on yourself and

>please know you are not alone here. I remember also

>how hard that first year was. While I was pregnant I

>was so excited for two reasons 1> I was having twins

>and 2. They were both girls. I had 2 boys already so

>knowing I was going to have my little girl and on top

>of that two of them! Man I was on cloud nine! When the

>day came to give birth (sheduled c-section) I just

>couldn't wait to get my hands on them! Well after

>about 6 hours after giving birth the Dr. came into my

>room and told us he thought they had Down Syndrome and

>like many others I did not know anything about it. All

>I thought of was the show Life goes on. But all of a

>sudden my world as I knew it was shattered! I starting

>crying and did not stop crying for about 9 months.

>Really! I cried everyday! While in the hospital I

>could not or would not even hold them to feed them, I

>would try for a minute but always gave them to someone

>else. And when I was there alone I did not want them

>in my room. I DID NOT WANT TO BOND WITH THEM!! I know

>the nurses probably thought I was a mean mother. The

>next few months were awful! Trying to deal with

>everything and all the ifomation that was coming my

>way and the thought of my little girls not being

>normal. All the things I dreamed about while I was

>pregnant I would do with thme were gone. I cried cried

>cried. I thought I was going to loose my mind! One

>night when my husband came home from work I had a

>suitcase ready and I lefted. I did not know where I

>was going I just got in my Van and drove for about 3

>hours. I stopped at a Hotel and got me a room. I

>slepted for 16 hours without waking up! I was

>exhausted mentally and physically.

>I have a question for you have you had your thyroid

>checked? I found out I had hypothyriodism 1 year after

>giving birth and this will also make you not remember

>things. I still do it all the time.

>

>Anyway I just want you to know IT DOES GET BETTER> I

>promise. My girls are almost 5 now and I haven't cried

>over them in a very long time. I really can't remember

>the last time i did. I don't have time for a social

>life but that's ok cause I just love taking care of my

>family and looking forward to the future. Hannah and

> are such a joy and a positive thing in my life

>now I don't know what I would do without them.

>Just try to tell yourself when you are having bad days

>that it will get better and tell us all about it. We

>are all here for you and hang in there.

>

>We all love you,

>Pam mom to Josh 18, Dusty 13 and Hannah and

>identical twins age 4.

>

>P. S. Sorry I didn't mean for this too be so long.

>

>__________________________________________________

>

[Guest guest]

-

I know exactly how you feel about having the two girls! (It came out alright

just as you had written it!)

I consider myself lucky--I have done the " boy stuff " with my son. Now that

he is a bit older I have two girls to do the " girl stuff " with. I know that

I will do girlie things with both and Alyssa--but it may be different

with Alyssa because of her having DS. I thank God for because I will

be able to experience " girl things " with her--and then after this I thank God

for Alyssa--because although it will be different--I will be able to also

experience it with her!

(I hope that this makes sense!)

Fran (Mom to (7)/ and Alyssa(DS) (almost 14 months))

[Guest guest]

(((((HUGS))))) Sue! Is (did I remember his name correctly??) planning on

moving to England? I can't imagine being away from Tim that long....maybe once

in awhile I'll dream that..lol

Keep us posted on your mother. My father's health is not that great and I am

the daughter that lives furthest away. I know how frustrating it is to live

away when you want to be there.

Hang in there!

ps do well on your exams!

stress

Hi, I am feeling very stressed at the moment, Tim, schooling and finding

school fees with an out of work husband is stress ful enough but I got

exams this next too and found out today that my mum was rushed into

hospital earlier with abdominal pains, she is having a laparotomy some

time soon. The worry is that she has now developed secondaries from a

tumour she had removed about 5 years ago, that was in her eye, but I

know these things can spread according to their own wishes. I love

where I live but its 350 miles from my parents so I feel quite cut off

when stuff like this happens.

sue wong

[Guest guest]

Hi Mike,

this site may be help info : The DFW site (with a section of Cheney info) is:

www.virtualhometown.com/dfwcfids

His protocol really helped me for stress intolerance. I was so

intolenant that I could not go to a store, drive, have a conversation

that had an emotional edge to it. I have improved quite a bit

including driving in New York by myself which is a miracle.

I do daily magnesium and taurine injections, B-12 injection daily,

Klonopin, Neurontin and growth hormone. I think these I think are

what made the difference. I am on a much more extensive protocol but

these are key.

Lucey

there are the rationale for these on: www.virtualhometown.com/dfwcfids

>Hi All,

> I have an extreme problem in dealing with stress. I think

>emotional stress

>is the hardest for me to deal with. Physical stress is also a problem.

>What happens

>is that I get easily stressed out and it makes me physically sick and

>also much harder

>for me to function mentally. The longer I am under the stress the sicker

>I get.

>At this point, when I get sicker, it takes me a real long time to

>recover and I always

>seem to lose some ground. I was wondering if other people have this

>problem.

> I would like to know if there are any substances that I can take that

>can make

>me more resistant to stress and allow me to recover faster and more

>fully.

>(Maybe I am asking for the panacea that we all want that is elusive and

>just around

>the corner). I do not want to take medications. Any ideas or help will

>be greatly

>appreciated.

>

>Thanks,

>

>Mike

>

>P.S. I was not this way all my life. It only happened as a result of

>the CFS.

>I used to to all sorts of high excitement / stress fun activities and

>handle life's

>stresses pretty well.

>

>

>

>

>This list is intended for patients to share personal experiences

>with each other, not to give medical advice. If you are interested

>in any treatment discussed here, please consult your doctor.

>

>

[Guest guest]

Hello Mike,

Stress is an issue I've been composing a post for my email forum.

High, prolonged, stress is (IMO) A major factor in the onset of

FMS/CFS for many with CFS/FMS and definitly exacerbates the

conditions. Certian nutrient deficiencies, such as the B vitamins

sometimes called the stress vitamins, makes it more difficult to cope

with stress.

Due to the chemical imbalances as a result of these conditions and

the constant pain, many people experience hopelessness, depression,

anxiety... these negative emotions elevate small things into

becoming more stressful than they would have been " normally " .

Stress in a situation is often elevated when we percieve that we have

no control, or unable to influence the outcome. Know that we always

have control to choose how we will respond. This is the key message

in Victor l' book " Mans Search for meaning " . Our perception is

a greater factor, " Perception is reality " .

It is also helpful to adopt the wisdom from the movie " The Razor's

Edge " , " It just doesn't matter " . Many of the things that cause us

stress are of too little importance to let them effect our health.

I do not think that it is a coincidence that the majority of trigger

points that are used to diagnose fibromyalgia outline where a yoke

would be placed about the neck. Many people with FMS carry too much

burden of mental cares.

Two keys to help control stress is Faith and prayer. Know that in

the grand scheme of things, things are going according to plan and

that whatever the outcome, things are going to turn out alright.

Prayer is helpful to unload our cares and concerns, shifting some of

the load to a power that is better able to help carry the load.

When the nutrient deficiencies are resolved things will certainly

begin to look brighter.

All the best,

Jim

Fibromyalgia: A Hypothesis of Etiology

http://www.xmission.com/~total/temple/index.html

> Hi All,

> I have an extreme problem in dealing with stress. I

think

> emotional stress

> is the hardest for me to deal with. Physical stress is also a

problem.

> What happens

> is that I get easily stressed out and it makes me physically sick

and

> also much harder

> for me to function mentally. The longer I am under the stress the

sicker

> I get.

> At this point, when I get sicker, it takes me a real long time to

> recover and I always

> seem to lose some ground. I was wondering if other people have this

> problem.

> I would like to know if there are any substances that I can take

that

> can make

> me more resistant to stress and allow me to recover faster and more

> fully.

> (Maybe I am asking for the panacea that we all want that is elusive

and

> just around

> the corner). I do not want to take medications. Any ideas or help

will

> be greatly

> appreciated.

>

> Thanks,

>

> Mike

>

> P.S. I was not this way all my life. It only happened as a result

of

> the CFS.

> I used to to all sorts of high excitement / stress fun activities

and

> handle life's

> stresses pretty well.

[Guest guest]

Hi Mike,

You might also want to look into rhodiola rosea. We get it from

Ameriden (brand name is vin, we have no financial connection to

them, etc.) I haven't had as much trouble with stress as you have,

but have had difficulties with the physical effects of it.

Rhodiola rosea slows the chemical response to stress, among many

other things. I use it regularly and have noticed a significant

difference. We wouldn't be without it. Rhodiola rosea is an

adaptogen.

Ken has information and sources listed at

http://lassesen.com/cfids/rosavin.htm

And here are some references from Medline:

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?

cmd=Retrieve & db=PubMed & list_uids=7756969 & dopt=Abstract

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?

cmd=Retrieve & db=PubMed & list_uids=11410073 & dopt=Abstract

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?

cmd=Retrieve & db=PubMed & list_uids=11081987 & dopt=Abstract

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?

cmd=Retrieve & db=PubMed & list_uids=10839209 & dopt=Abstract

Laurie

[Guest guest]

Hi Jim and All,

I wish that I could have faith. I was brought up

on the science and

the scientific method and I don't believe that there is a higher power.

I don't believe

that there is a grand scheme of things. As far as I have seen in my

life, everything

goes according to physical laws until proven otherwise. I am not

claiming to know

everything and I respect people who believe.

Take

Care

Mike

[Guest guest]

From: " Mike " <mikes@...>

< >

Sent: Saturday, September 14, 2002 12:44 PM

Subject: Stress

> Hi All,

> I have an extreme problem in dealing with stress. I think

> emotional stress

> is the hardest for me to deal with. Physical stress is also a problem.

>

> Mike

>

> P.S. I was not this way all my life. It only happened as a result of

> the CFS.

> I used to to all sorts of high excitement / stress fun activities and

> handle life's

> stresses pretty well.

Mike-Thanks for posting this. Similar to my story too. Other than my

obvious other imbalances, we found that my adrenals and progesterone (I had

hysterectomy) levels really low. After supplementing both, my stress

tolerance has gotten a little more tolerable. Not the way I use to be, just

a little better.

Kathy

[Guest guest]

Hi Kathy and All,

Kathy, what do you use to supplement your

adrenal system?

Thanks

Mike

[Guest guest]

Mike,

I too suffer the effects of stress like you do. I feel that at least in my

case, it is adrenal burnout. And every time I add any stressors into my

life, particularly if I haven't recovered to the point I was at before the

last stressor was introduced, the whammy is even harder. While prayer and

meditation/relaxation is indeed important in helping to deal with the

feelings that things are out of our control, I also believe that much more

physical rest is needed during these periods. I am just starting to get to

the point I was at last December, before my mother broke her hip/pelvis in

three places and was bedbound for months and my father had knee replacement

surgery in the same time period, and I had to drive the 15 hours to Upstate

NY to take care of them for over two months (a real joke when my husband has

been my caretaker for several years), and then drove to Chicago for

cavitation surgery, then back to NC, in early April, where I totally

collapsed. After that point, ANYTHING the least bit stressful (and that

could be as little as dropping a glass), would put me into a physically

obliterated position! I resigned myself to turning my couch into another

bed, and though I do not sleep, I lay there with my laptop near me on a TV

tray, listen to inspiring music, no news and very little television until

later in the evening, up my mag injections to as many times a day as I can

tolerate them, split my B-12 injections into twice a day vs. once a day,

started drawing up equal parts olive oil (first cold pressed extra virgin)

and fresh lemon into a 20 cc syringe, and squirting it down the back of my

throat (to keep from getting canker sores), at least twice a day, daily

coffee enemas, limiting the reading of and posting on my various lists, and

rest, rest, rest. Not easy to do, but I felt/feel it is imperative. I take

an adrenal glandular, and have for years, so did not feel it was able to

help me out at this point, nor were any meds changed. I wasn't like this

pre-CFIDS either, with the exception of asthma attacks every Christmas. (My

mom thinks I got too excited; I think I got too much pine tree!)

Donna in NC

Stress

> Hi All,

> I have an extreme problem in dealing with stress. I think

> emotional stress

> is the hardest for me to deal with. Physical stress is also a problem.

> What happens

> is that I get easily stressed out and it makes me physically sick and

> also much harder

> for me to function mentally. The longer I am under the stress the sicker

> I get.

> At this point, when I get sicker, it takes me a real long time to

> recover and I always

> seem to lose some ground. I was wondering if other people have this

> problem.

> I would like to know if there are any substances that I can take that

> can make

> me more resistant to stress and allow me to recover faster and more

> fully.

> (Maybe I am asking for the panacea that we all want that is elusive and

> just around

> the corner). I do not want to take medications. Any ideas or help will

> be greatly

> appreciated.

>

> Thanks,

>

> Mike

>

> P.S. I was not this way all my life. It only happened as a result of

> the CFS.

> I used to to all sorts of high excitement / stress fun activities and

> handle life's

> stresses pretty well.

>

>

>

>

> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

>