Re: Retreating

[Guest guest]

Trudy, you will feel like a new person when its over and it will be one day, Please stay strong. My doc told me that i should take anti-depress whether I felt I needed them or not. She explained that the depression you suffer from during tx is medically induced, therefore out of your control, as opposed to clinacally being depressed, although we all prob suffer from both during tx. I kinda put up a wall of armour that in my mind blocked out anything that could cause me to be depressed. i love Country music, but it can be at times sad, so it went temp., Whe others had differences i walked away, did not get involved in anything but my healing. Put yourself first mentally and This too shall pass,. Hugs Betty

From: Gloria <gadamscan@...> Sent: Mon, January 3, 2011 12:40:41 AMSubject: [ ] Retreating

To follow a thread here that Steve mentioned. As you all know, I went through 2 treatments. I thought that the first one was really easy and I didn't even need anti-d's. Fortunately, I didn't even start the clinical trial without anti-d's.Would I do it all over again?? Especially knowing what I do now! You bet, I would. In my case, if I had not said yes to the clinical, I could actually already be close to death. It was only as a result of being watched so closely on the clinical that my liver cancer was caught early.However, I'm really not so sure about the thought of doing chemo pills for any further HCC. I honestly feel like I had lost about 6 years of myself and I'm just not so sure that I want to do chemo just to gain a few more months. But, obviously, I don't know what I am capable of now. I am a

fighter and that's for sure - it's just that I'm a little tired after all that has happened in 2010.So, I will have to see and meditate on where I go next! I'm sure that my Higher Power is going to show me the way at some point.Gloria

Trudy & Cinder,Gotta piggyback on Teri's comments here from my perspective.A good friend of mine had a neighbor that went through treatment before I did, so he was kind of familiar with some of the effects. When I started treatment and began experiencing some of that, he told me about his neighbor. He said the neighbor was pretty similar to me, but that a year later you wouldn't know he'd been through treatment. At the time I had a hard time believing that. After treatment, I had a hard time believing that. I've always been fairly articulate, but during and after treatment I had to search for words, and if I searched long enough I lost the whole line of the conversation. I couldn't run up a couple flights of stairs until almost a year after treatment, and still get winded easier now.However, it does all pass.

Almost two years after testing cured, I still lose a word sometimes. I don't have the same stamina I had before treatment, but it's come back 80% and yes, I am getting older...that's the rumor anyway! In the group that Teri and I were part of, you couldn't look around the room and say who treated and who hadn't until you talked with them for a bit...yes, it passes, and gets better.What Teri's talked about is a common thread for most that treat. If somehow I reinfected, would I treat again? I think yes, but I'd do it from a position of greater knowledge this time. In "Master & Commander", the old sea dog has "H O L D F A S T" tattooed on his fingers, and that's where you're at. There are days that you'll get through by the skin of your teeth, nothing but grit and fingernails, but you'll get through.Trudy, I really hope you can finish treatment the first time around, that things will improve

with anti-d's and all that. If you don't, though, you've still made a helluva dent in the dragons health.We had misspoken about telaprivir earlier. It is for type-2's and 3's also, and if you have to re-treat and can do the new drug, the cure rate of riba, interferon and telaprivir was 100% in clinical studies. So there's hope either way.I've been in the background with some personal stuff going on recently, but have been following both of you and keep you in my heart and mind.SteveLife is much more fun when thought of as a scavenger hunt as opposed to a surprise party. Jimmy Buffett Re: [ ] Foggy...

Trudy,

It's really just the drugs.. It goes away when you stop taking them. Granted it will take a few weeks to a month or so for the fog to lift but it will lift. It will get better. This too shall pass. It's real easy to get caught in that cycle of thinking that the side effects are actually symptoms of something else. It's just normal fear. Just hang on if you can, you are almost done with this 24 weeks of craziness.. Now you just have to brace yourself and hold tight til the end. You are kicking this dragon's ass and you are doing it in epic proportions.. You are going to be okay. I promise.

Hugs,Teri

On Sat, Jan 1, 2011 at 9:47 PM, trudykinsey@... <trudykinsey@...> wrote:

Thanks Gloria & Don. I just needed to hear that it gets better. Quess I just have so many things wrong right now, just hoping this isn't " something else " Ya know, right about now MS would feel like a gift. What I feared two months ago seems like nothing compared to what I fear now. Started my higher dose Elavil tonight. Hope it helps. Maybe even calm the stuttering.http://facebook.com/people/andTrudy-Kinsey/1340460877 ""A well- behaved woman never made history"...Mae Westhttp://oktravels.wordpress.comhttp://allrecipes.com/cook/TrudyK/profile.aspx

--

Teri GottliebMOVE ON. It's just a chapter in the past, but don't close the book. Just turn the page.

[Guest guest]

Thank you , Betty. Encouraging words I needed to hear. I went on anti-dep prior to starting tx. I was doing ok until Nuero sent my on a consult with another Doc. When I arrived there I saw it was oncologist / cancer center. Since then my moods have been all over the place including too sick to keep on Tx. I won't know what my plan is until after I see Oncologist on the 10 th.http://facebook.com/people/andTrudy-Kinsey/1340460877 " "A well- behaved woman never made history"...Mae Westhttp://oktravels.wordpress.com http://allrecipes.com/cook/TrudyK/profile.aspx On Jan 3, 2011, at 9:00 AM, Betty Himes <stayhungryforlife@...> wrote:

Trudy, you will feel like a new person when its over and it will be one day, Please stay strong. My doc told me that i should take anti-depress whether I felt I needed them or not. She explained that the depression you suffer from during tx is medically induced, therefore out of your control, as opposed to clinacally being depressed, although we all prob suffer from both during tx. I kinda put up a wall of armour that in my mind blocked out anything that could cause me to be depressed. i love Country music, but it can be at times sad, so it went temp., Whe others had differences i walked away, did not get involved in anything but my healing. Put yourself first mentally and This too shall pass,. Hugs Betty

From: Gloria <gadamscan@...> Sent: Mon, January 3, 2011 12:40:41 AMSubject: [ ] Retreating

To follow a thread here that Steve mentioned. As you all know, I went through 2 treatments. I thought that the first one was really easy and I didn't even need anti-d's. Fortunately, I didn't even start the clinical trial without anti-d's.Would I do it all over again?? Especially knowing what I do now! You bet, I would. In my case, if I had not said yes to the clinical, I could actually already be close to death. It was only as a result of being watched so closely on the clinical that my liver cancer was caught early.However, I'm really not so sure about the thought of doing chemo pills for any further HCC. I honestly feel like I had lost about 6 years of myself and I'm just not so sure that I want to do chemo just to gain a few more months. But, obviously, I don't know what I am capable of now. I am a

fighter and that's for sure - it's just that I'm a little tired after all that has happened in 2010.So, I will have to see and meditate on where I go next! I'm sure that my Higher Power is going to show me the way at some point.Gloria

Trudy & Cinder,Gotta piggyback on Teri's comments here from my perspective.A good friend of mine had a neighbor that went through treatment before I did, so he was kind of familiar with some of the effects. When I started treatment and began experiencing some of that, he told me about his neighbor. He said the neighbor was pretty similar to me, but that a year later you wouldn't know he'd been through treatment. At the time I had a hard time believing that. After treatment, I had a hard time believing that. I've always been fairly articulate, but during and after treatment I had to search for words, and if I searched long enough I lost the whole line of the conversation. I couldn't run up a couple flights of stairs until almost a year after treatment, and still get winded easier now.However, it does all pass.

Almost two years after testing cured, I still lose a word sometimes. I don't have the same stamina I had before treatment, but it's come back 80% and yes, I am getting older...that's the rumor anyway! In the group that Teri and I were part of, you couldn't look around the room and say who treated and who hadn't until you talked with them for a bit...yes, it passes, and gets better.What Teri's talked about is a common thread for most that treat. If somehow I reinfected, would I treat again? I think yes, but I'd do it from a position of greater knowledge this time. In "Master & Commander", the old sea dog has "H O L D F A S T" tattooed on his fingers, and that's where you're at. There are days that you'll get through by the skin of your teeth, nothing but grit and fingernails, but you'll get through.Trudy, I really hope you can finish treatment the first time around, that things will improve

with anti-d's and all that. If you don't, though, you've still made a helluva dent in the dragons health.We had misspoken about telaprivir earlier. It is for type-2's and 3's also, and if you have to re-treat and can do the new drug, the cure rate of riba, interferon and telaprivir was 100% in clinical studies. So there's hope either way.I've been in the background with some personal stuff going on recently, but have been following both of you and keep you in my heart and mind.SteveLife is much more fun when thought of as a scavenger hunt as opposed to a surprise party. Jimmy Buffett Re: [ ] Foggy...

Trudy,

It's really just the drugs.. It goes away when you stop taking them. Granted it will take a few weeks to a month or so for the fog to lift but it will lift. It will get better. This too shall pass. It's real easy to get caught in that cycle of thinking that the side effects are actually symptoms of something else. It's just normal fear. Just hang on if you can, you are almost done with this 24 weeks of craziness.. Now you just have to brace yourself and hold tight til the end. You are kicking this dragon's ass and you are doing it in epic proportions.. You are going to be okay. I promise.

Hugs,Teri

On Sat, Jan 1, 2011 at 9:47 PM, trudykinsey@... <trudykinsey@...> wrote:

Thanks Gloria & Don. I just needed to hear that it gets better. Quess I just have so many things wrong right now, just hoping this isn't " something else " Ya know, right about now MS would feel like a gift. What I feared two months ago seems like nothing compared to what I fear now. Started my higher dose Elavil tonight. Hope it helps. Maybe even calm the stuttering.http://facebook.com/people/andTrudy-Kinsey/1340460877 ""A well- behaved woman never made history"...Mae Westhttp://oktravels.wordpress.comhttp://allrecipes.com/cook/TrudyK/profile.aspx

--

Teri GottliebMOVE ON. It's just a chapter in the past, but don't close the book. Just turn the page.