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I haven't even seen her online in a long time. I hope she is around still.

RE: Hello all

He's a better person than I am. But you're right, it's all in the past.

How wonderful about . All the old gang will soon be here. Is Deb from

New Orleans here?

Love,

yes , me too I think that those reasons were not existant for

the orther members -

and I must say : I like not saying one single bad word about the

two ...

well - anyway we are happy to be here and let's forget about the past -

Hilchie is also coming - right now trying to subscribe -

great to have her to

love

Yovnne

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I can't believe they are still doing this. I swear. I was kicked off

last fall, since I dared express an opinion, and I am soooo glad.

This is a great group.

E Long in TX

> Hi,

>

> Went through some of the messages and noticed a lot of familiar

> names. I've come off the other ER4YT list and have had a bad taste

in

> my mouth ever since that list degenerated into daily Tabitha

journals

> and Shaklee advertisments. And I guess since I've been kind of

choked

> ever since Tabitha put me on moderated status. All I did was nicely

> ask her admit on the list that she mistakenly attributed an

> inflammatory email to me. Poof, I was told to go into the corner

and

> stay there. Okay, that's all .. won't say anything negative anymore.

>

> I look forward to sharing and hearing your successes.

>

> Cheers!

> m.

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  • 1 month later...
Guest guest

Hi Guylaine:

Thanks for sharing your story. I have had overactive thyroid for

about 19 months now since my baby was 5 months old. I make use of

alternative therapies to treat my symptoms to which my natropath doctor

monitors me. I take supplements such as: copper, B complex,

trace minerals, equal amounts of calcium/magnesium, and others. Check

out the www.iThyroid.com if you haven't already. There are some good

articles to read about alternative therapies, what works and what doesn't.

I chose not to have an RAI because the thyroid is not what causing the

problems, it's the immune system.

Guylaine wrote:

--

Hi everybody,

I just joined this group so I thought I would say hello and introduce

myself by telling you my thyroid story. It's a little long but

i feel

like sharing so ...

in 1994 I was diagnosed with Graves disease, a disease which I am

convinced is a direct consequence of an extremely abusive

relationship I had for two years before I got sick. That relationship

almost cost me my life many times and living under a life threatening

situation for that long obviously triggered my thyroid imbalance,

regardless of what all doctors say.

I started an 18 months thyroid hormones treatment, which didn't

succeed so I started another one. I went abroad for a year (Spain)

and half way through the year I got so frustrated with my medication

that I stopped the treatment. I came back home (France), went to

see

my doctor she did some blood tests and my thyroid was very much

overactive again, I had a goiter, my tsh was unbelievably low,

etc etc

she said that since I had stopped the treatment and I was sick again

she only saw one solution and that was to remove the thyroid -

I said

I hate hospitals I refuse to have surgery she said well, you stopped

the treatment so stop complaining you're not helping yourself

I got mad, started crying, we got into an argument and I told her

that was it - I wouldn't take any more treatment and I would get

better by myself. She screamed at me and told me I was immature,

stupid, irresponsible and my parents were not too happy either.

I

told them I didn't trust western medicine.

I was in the process of moving to Paris for school and I decided

I

was going to start a new life, far away from the past that I

considered the cause of my disease. At the time I thought my will

was

powerful enough to overcome all that and the change of city would

help. So I went up to Paris moved in with my best friend and already

felt better.

A couple weeks later I met a man that I started dating, gradually

falling in love with. I told him my story, he said I had done the

right thing. He himself had survived a heart failure that doctors

predicted he wouldn't survived and was now the most athletic man

I

had ever seen. He said he would include me in his prayers everyday

(which is a lot, he's muslim so he prays five times a day) and

even

though I wasn't muslim or religious myself he promised I would

get

better through my own will and his prayers. A lot of times I was

at

his house when he prayed so I would just sit and listen and

immediately all my thyroid-related symptoms would vanish.

3-4 months later I called my doctor up and said I was ready to do

some tests - they came out perfectly normal, and my goiter was

gone.

She said it didn't mean anything and I should come back. I went

after

three months and three other months, the results were normal each

time.

Unfortunately what I refused to see back then is that I wouldn't

get

out of this disease so easily and as long as I wasn't treating

the

roots of all this - i.e my abusive relationship - the disease would

come back.

I ended up not being able to keep this new relationship even though

it was great because I still hadn't dealt with what had happened

in

the old one. We remained friends though and he said he would

keep me

in his prayers.

I was busy with school and I made sure I kept busy, with the

superstitious fear that now that I was single and away from the

love,

the caring and the prayers I would get sick again. It actually

didn't

happen for a year and half. I was doing fine for a while, and I

was

trying really hard to forget that I was even sick once.

I came to Los Angeles for an internship and randomly decided to

stay

- again a way of escaping my old reality. Went back and forth

for a

while to renew my work visas, school..my love life turning into

an

addictive disaster - a man here a man there, desperately hanging

on

to romantic encounters that were nothing but somehow meant everything

to me, something was obviously wrong.

Six months before that, I had met a man and we became friends, hung

out a couple times and ended up dating. I really liked him but

my

life was such a disaster that I was hesitant about starting something

when I had so many other things to finish.

On New Years eve I decided to end this traveling back and forth

between my past and my new reality, stay in LA and try to figure

myself out for good.

We started going out and our relationship turned out to be growing

into a very serious deep love story. And of course that's when

my

thyroid came back to tickle me and the symptoms started again -

went

to get checked it was overactive - again got in a fight with the

doctor who insisted radioactive iodine wasn't dangerous

I thought - I am serene and happy for once my thyroid should work

just fine !

My boyfriend and I live together now and my thyroid has been

overactive for about nine months, nothing too serious but enough

to

get symptoms that affect my life - perpetual anxiety, insecurity,

jealous temper, irrational reactions....

So I finally understood that I needed to look into a more

metaphysical understanding of my thyroid problem. For a few weeks

now

I have been analyzing myself, reading books and I think that

once I

will have understood what pushed me into a deadly abusive

relationship it will be a huge step towards being cured.

My boyfriend is 100% supportive of my endeavors and has gone out

of

his way to help me search for alternative treatments, understand

my

symptoms and learn about my disease. He is a wonderful man and

wants

to marry me, which is reciprocal so it's basically now or never

to

take the time and energy to look back and understand those 10 years

of thyroid imbalance so I can look to the future.

So I decided to start yoga and tai chi again, try to understand

how

to adapt my diet to my thyroid, I am also considering herbs and

acupuncture, and subscribed to this group and wrote you all

this ! I

think it's sort of like AAA, once you've admitted to need to deal

with the problem you're on the right track ...

Thank you for reading and if you have any book/doctor suggestions

please drop me a line...i am also interested in knowing more about

music therapy/sound therapy to treat hyperthyroidism

Best,

Guylaine.

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Guest guest

Hi ,

Thanks very much for your response, I actually haven't checked out

the site yet but I will

What's the baby's name ?

Guylaine

At 10:09 PM 4/10/2002 -0700, you wrote:

Hi Guylaine:

Thanks for sharing your story. I have had overactive thyroid for

about 19 months now since my baby was 5 months old. I make use of

alternative therapies to treat my symptoms to which my natropath doctor

monitors me. I take supplements such as: copper, B complex,

trace minerals, equal amounts of calcium/magnesium, and others.

Check out the

www.iThyroid.com

if you haven't already. There are some good articles to read about alternative therapies, what works and what doesn't. I chose not to have an RAI because the thyroid is not what causing the problems, it's the immune system.

Guylaine wrote:

--

Hi everybody,

I just joined this group so I thought I would say hello and introduce

myself by telling you my thyroid story. It's a little long but i feel

like sharing so ...

in 1994 I was diagnosed with Graves disease, a disease which I am

convinced is a direct consequence of an extremely abusive

relationship I had for two years before I got sick. That relationship

almost cost me my life many times and living under a life threatening

situation for that long obviously triggered my thyroid imbalance,

regardless of what all doctors say.

I started an 18 months thyroid hormones treatment, which didn't

succeed so I started another one. I went abroad for a year (Spain)

and half way through the year I got so frustrated with my medication

that I stopped the treatment. I came back home (France), went to see

my doctor she did some blood tests and my thyroid was very much

overactive again, I had a goiter, my tsh was unbelievably low, etc etc

she said that since I had stopped the treatment and I was sick again

she only saw one solution and that was to remove the thyroid - I said

I hate hospitals I refuse to have surgery she said well, you stopped

the treatment so stop complaining you're not helping yourself

I got mad, started crying, we got into an argument and I told her

that was it - I wouldn't take any more treatment and I would get

better by myself. She screamed at me and told me I was immature,

stupid, irresponsible and my parents were not too happy either. I

told them I didn't trust western medicine.

I was in the process of moving to Paris for school and I decided I

was going to start a new life, far away from the past that I

considered the cause of my disease. At the time I thought my will was

powerful enough to overcome all that and the change of city would

help. So I went up to Paris moved in with my best friend and already

felt better.

A couple weeks later I met a man that I started dating, gradually

falling in love with. I told him my story, he said I had done the

right thing. He himself had survived a heart failure that doctors

predicted he wouldn't survived and was now the most athletic man I

had ever seen. He said he would include me in his prayers everyday

(which is a lot, he's muslim so he prays five times a day) and even

though I wasn't muslim or religious myself he promised I would get

better through my own will and his prayers. A lot of times I was at

his house when he prayed so I would just sit and listen and

immediately all my thyroid-related symptoms would vanish.

3-4 months later I called my doctor up and said I was ready to do

some tests - they came out perfectly normal, and my goiter was gone.

She said it didn't mean anything and I should come back. I went after

three months and three other months, the results were normal each

time.

Unfortunately what I refused to see back then is that I wouldn't get

out of this disease so easily and as long as I wasn't treating the

roots of all this - i.e my abusive relationship - the disease would

come back.

I ended up not being able to keep this new relationship even though

it was great because I still hadn't dealt with what had happened in

the old one. We remained friends though and he said he would keep me

in his prayers.

I was busy with school and I made sure I kept busy, with the

superstitious fear that now that I was single and away from the love,

the caring and the prayers I would get sick again. It actually didn't

happen for a year and half. I was doing fine for a while, and I was

trying really hard to forget that I was even sick once.

I came to Los Angeles for an internship and randomly decided to stay

- again a way of escaping my old reality. Went back and forth for a

while to renew my work visas, school..my love life turning into an

addictive disaster - a man here a man there, desperately hanging on

to romantic encounters that were nothing but somehow meant everything

to me, something was obviously wrong.

Six months before that, I had met a man and we became friends, hung

out a couple times and ended up dating. I really liked him but my

life was such a disaster that I was hesitant about starting something

when I had so many other things to finish.

On New Years eve I decided to end this traveling back and forth

between my past and my new reality, stay in LA and try to figure

myself out for good.

We started going out and our relationship turned out to be growing

into a very serious deep love story. And of course that's when my

thyroid came back to tickle me and the symptoms started again - went

to get checked it was overactive - again got in a fight with the

doctor who insisted radioactive iodine wasn't dangerous

I thought - I am serene and happy for once my thyroid should work just fine !

My boyfriend and I live together now and my thyroid has been

overactive for about nine months, nothing too serious but enough to

get symptoms that affect my life - perpetual anxiety, insecurity,

jealous temper, irrational reactions....

So I finally understood that I needed to look into a more

metaphysical understanding of my thyroid problem. For a few weeks now

I have been analyzing myself, reading books and I think that once I

will have understood what pushed me into a deadly abusive

relationship it will be a huge step towards being cured.

My boyfriend is 100% supportive of my endeavors and has gone out of

his way to help me search for alternative treatments, understand my

symptoms and learn about my disease. He is a wonderful man and wants

to marry me, which is reciprocal so it's basically now or never to

take the time and energy to look back and understand those 10 years

of thyroid imbalance so I can look to the future.

So I decided to start yoga and tai chi again, try to understand how

to adapt my diet to my thyroid, I am also considering herbs and

acupuncture, and subscribed to this group and wrote you all this ! I

think it's sort of like AAA, once you've admitted to need to deal

with the problem you're on the right track ...

Thank you for reading and if you have any book/doctor suggestions

please drop me a line...i am also interested in knowing more about

music therapy/sound therapy to treat hyperthyroidism

Best,

Guylaine.

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Guest guest

Hi Guylaine:

My son's name is , he just turned two on April 8th.

I also have three other boys, ages 12, 9, and 6. Their

names are, , , and Zachary.

You'll find that this list isn't big for many email posts,

however, when a topic gets going, we get right in discussing

it. Most people have posted to the Graves_support group

through the .com. I used to subscribe to it, but

recently left it because of the huge volume of mail. Plus I

am so busy with my boys, going to their activites an such I

figure I can read the posts occassionally through the

website. It has a lot of good information. You can check

it out through the .com if you are interested.

Take care,

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Guest guest

Thanks and hi to the boys !

Guylaine

>Hi Guylaine:

>

>My son's name is , he just turned two on April 8th.

>I also have three other boys, ages 12, 9, and 6. Their

>names are, , , and Zachary.

>

>You'll find that this list isn't big for many email posts,

>however, when a topic gets going, we get right in discussing

>it. Most people have posted to the Graves_support group

>through the .com. I used to subscribe to it, but

>recently left it because of the huge volume of mail. Plus I

>am so busy with my boys, going to their activites an such I

>figure I can read the posts occassionally through the

>website. It has a lot of good information. You can check

>it out through the .com if you are interested.

>

>Take care,

>

>

>

>

>

>

>

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Guest guest

Hi Guylaine,

Your explanation of what happened makes perfect sense to me. You might want to check out my book, Graves' Disease, A Practical Guide. I mention the role of stress in causing autoimmune disease, and I have a chapter on alternative healing options. I had a section on music therapy but had to cut it when my publisher decided the book was too long. Most of the references I had were from the work of Dr. Oz, I'm thinking Mehmet Oz or something like that, a heart surgeon in NYC.

You might also want to check out my web site, http://daisyelaine_co.tripod.com/gravesdisease/

and do some research on 5th chakra influences and how they affect the thyroid. Take care, Elaine

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  • 2 months later...
Guest guest

Hi Hannah, Edajane here. I've been offline for 2 days because my daughter and granddaughter from Texas were here. We went crabbing, clamming and got oysters and had a real good feed. Our daughter misses all that living in Texas. Glad you missed me.

oceaneyes38 <hanna@...> wrote: Where has every one been? Me, well I have real bad sinusitus. Pam, Where are you, I miss you and terri and teri and ejane and marilyn excetera ,excetera,ha,ha. Let me know where you guys are and if your o.k. E-mail me, hanna@.... My daughter and I share this computor SO her name may pop up! Much Love, Hanna/oceaneyes38.

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Guest guest

This is LaDonna, I have been out of town. I was feeling really bad the last few weeks but finally feel good again. I have good days and bad days but life is still going on around me. By for those who don't know I live in North Dakota.

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Guest guest

Edajane here. I'm going to be down for a while,

(not long I hope) because I'm ataking my puter

to the shop. I tryed to load a new program with

tech support and got all goofed up. Now I will

pay to get it undone. I just sold a couple of

puppies so I can afford it.

--- LadonnaBrave1@... wrote:

> This is LaDonna, I have been out of town. I was

> feeling really bad the last

> few weeks but finally feel good again. I have

> good days and bad days but life

> is still going on around me. By for those who

> don't know I live in North

> Dakota.

>

=====

Remember that you are with me in my thoughts and prayers.

Love, Edajane

__________________________________________________

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  • 2 months later...

Dear J,

On this list, and at iThyroid.com (both of which are run by the same person)

the idea is to pursue natural cures for thyroid disease, which essentially is

a disease of the immune system and not of the thyroid. Because we basically

have an imbalance that causes the problem, we address the imbalance rather

than destroying our thyroids, which we cannot get back once destroyed.

I had Graves disease over 5 years ago, and after a few months on meds,

supplements and acupuncture, I have been fine for 4 1/2 years. Other people

also have been successful using diet, supplements and other natural means.

RAI is an aggressive treatment that destroys not only the thyroid, but also

eventually other organs and systems in the body, and causes more problems

than it solves. I have not heard of ONE person in all my years on this list

who had RAI who was not eventually SICKER than they were before, and now

there is nothing they can do, as their thyroid has been destroyed and there's

no going back.

When I had Graves, I refused RAI, would not even entertain the option, and it

was one of the BEST DECISIONS I EVER MADE. I think the doctor was crazy for

pushing this on me, as I got well in a few months, thyroid intact.

Please go to iThyroid.com, go on anti-thyroid meds and then try the nutrition

and supplements you read on the site, and keep asking your questions here.

Good luck,

AntJoan

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I had RAI. If I had it to do over again I would not have gone that

route. My choices in order would have been diet changes and medication,

surgery, and then if no other option and meds not available I would have

had to have RAI. I was sick when I agreed to it. I wasn't given

much in the way of other options. And I had major things going on

in my life that were taking all my time. I didn't research it - was

too scared to find out much about my condition - Graves Disease.

But since taking RAI my eye problems became much worse. My replacement

thyroid medication took over 2-1/2 years to get me in range. I have

suffered depression and was allowed to get so hypo that I could not speak.

My heart remains a problem and I still have a very rapid heart rate and

am on medication for that. Although that may not be directly related

to the RAI, the extreme severe changes that your body goes through while

the radiation works on your thyroid is not good.

If you have any questions, feel free to write to me

Kate

artist60164 wrote:

I need to hear from those of you that have had RAI.

I hear good

things and bad things.

Please help.

J

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I had RAI 12 years ago and have regretted it ever since. It's not the quick fix it's purported to be. For me the resulting hypothyroidism has been far worse than the hyperthyrodism. Please study your options carefully before deciding on irreversible aggressive treatment. Take care, Elaine

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  • 3 weeks later...

I will be leaving next Sunday...for my reconstruction surgery. Wish me

well. I will let you all know how it goes. I will be in the hospital for

1 week if all goes well. I will be glad to not have to take anymore of

these drugs or suffer with not eating. I ended up going to the hospital

today and was dehydrated. I had taken my procardia this morning for

spasms...and my heart rate went nuts..160bpm. They filled me up with

fluid and gave me ativan to calm me down and to slow down my heart rate.

Then sent me on my way and told me to do all i can to stay healthy before

the surgery. I will miss all of your postings..as i will be gone for

about 2 weeks. Hope to see all of you soon.

Indiana

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Hi there Bev.............. here!!. I have been having a heck of a time since August 22nd trying to respond to your posting to me. For some reason I can no longer post from the web-site as the "Post" has disappeared from the side. Anyway a very smart person helped me do it through the my e-mail address. It sounds as if you are doing great, and I am so happy for you. You asked if I still work. No, I retired in 1998, was diagnosed with Achalasia in 1999 and had the operation late 1999 so going back to work was not a concern for me. I am still a very busy person though with 4 children and their families ( 6 grandaughters). Golfing in the summer and 10 pin bowling in the winter. I feel so fortunate I am still able to do all of this at the good old age of 72.! Continued success in your recovery Bev. All the best , Vancouver BC Canada Re: hello all

Good luck, Chris. We will be praying for you too. Bev.

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Thank you to all of you..I should return on or about October 8th. I will

let you know how it is going. JUST HOPE THIS DR KNOWS WHAT HE IS DOING.

But i have all faith that he does. He is known world wide and has wrote

papers on the subject, and is in such high demand i'm lucky that i got

him. Hugs and Kisses to all and I hope we all get through our times with

this disease with flying colors.

Indiana

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Hey Ron, good to hear from you! I remember your story well. Glad to hear you

are doing well. We had surgery right around the same time. You DID have quite

an adventure, but nine months later the scars are defintely fading, and

hopefully your memories of scary times are fading too. Life is so precious.

Glad you're still whinnying with us!

in Houston

> Just want to say hi to all who helped me in this room,thanks feeling

> great now .I had a very difficult time with the myotomy ,they

> perforated my esophogus and 5 days later almost died ,my only advice

> is to not get the surgery without spending the night in the hospital

> and getting a barium swallow x ray in the morning before going

> home.But after 9 months i feel great can eat anything i want and no

> reflux, love you all ,terrible disease,but i tottaly recomend the

> myotomy ,had the baloon ,the botox and the pills,none of them

> last ,the surgery isnt bad ,i just had a complication go for it,c ya

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