Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 Good, I've been dying to know how she's doing. Richmond, Virginia > don't know if Deb ist here I think I saw Deb post the other day. Sharon (Ontario) Canada Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 I haven't even seen her online in a long time. I hope she is around still. RE: Hello all He's a better person than I am. But you're right, it's all in the past. How wonderful about . All the old gang will soon be here. Is Deb from New Orleans here? Love, yes , me too I think that those reasons were not existant for the orther members - and I must say : I like not saying one single bad word about the two ... well - anyway we are happy to be here and let's forget about the past - Hilchie is also coming - right now trying to subscribe - great to have her to love Yovnne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2002 Report Share Posted February 27, 2002 I can't believe they are still doing this. I swear. I was kicked off last fall, since I dared express an opinion, and I am soooo glad. This is a great group. E Long in TX > Hi, > > Went through some of the messages and noticed a lot of familiar > names. I've come off the other ER4YT list and have had a bad taste in > my mouth ever since that list degenerated into daily Tabitha journals > and Shaklee advertisments. And I guess since I've been kind of choked > ever since Tabitha put me on moderated status. All I did was nicely > ask her admit on the list that she mistakenly attributed an > inflammatory email to me. Poof, I was told to go into the corner and > stay there. Okay, that's all .. won't say anything negative anymore. > > I look forward to sharing and hearing your successes. > > Cheers! > m. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2002 Report Share Posted April 10, 2002 Hi Guylaine: Thanks for sharing your story. I have had overactive thyroid for about 19 months now since my baby was 5 months old. I make use of alternative therapies to treat my symptoms to which my natropath doctor monitors me. I take supplements such as: copper, B complex, trace minerals, equal amounts of calcium/magnesium, and others. Check out the www.iThyroid.com if you haven't already. There are some good articles to read about alternative therapies, what works and what doesn't. I chose not to have an RAI because the thyroid is not what causing the problems, it's the immune system. Guylaine wrote: -- Hi everybody, I just joined this group so I thought I would say hello and introduce myself by telling you my thyroid story. It's a little long but i feel like sharing so ... in 1994 I was diagnosed with Graves disease, a disease which I am convinced is a direct consequence of an extremely abusive relationship I had for two years before I got sick. That relationship almost cost me my life many times and living under a life threatening situation for that long obviously triggered my thyroid imbalance, regardless of what all doctors say. I started an 18 months thyroid hormones treatment, which didn't succeed so I started another one. I went abroad for a year (Spain) and half way through the year I got so frustrated with my medication that I stopped the treatment. I came back home (France), went to see my doctor she did some blood tests and my thyroid was very much overactive again, I had a goiter, my tsh was unbelievably low, etc etc she said that since I had stopped the treatment and I was sick again she only saw one solution and that was to remove the thyroid - I said I hate hospitals I refuse to have surgery she said well, you stopped the treatment so stop complaining you're not helping yourself I got mad, started crying, we got into an argument and I told her that was it - I wouldn't take any more treatment and I would get better by myself. She screamed at me and told me I was immature, stupid, irresponsible and my parents were not too happy either. I told them I didn't trust western medicine. I was in the process of moving to Paris for school and I decided I was going to start a new life, far away from the past that I considered the cause of my disease. At the time I thought my will was powerful enough to overcome all that and the change of city would help. So I went up to Paris moved in with my best friend and already felt better. A couple weeks later I met a man that I started dating, gradually falling in love with. I told him my story, he said I had done the right thing. He himself had survived a heart failure that doctors predicted he wouldn't survived and was now the most athletic man I had ever seen. He said he would include me in his prayers everyday (which is a lot, he's muslim so he prays five times a day) and even though I wasn't muslim or religious myself he promised I would get better through my own will and his prayers. A lot of times I was at his house when he prayed so I would just sit and listen and immediately all my thyroid-related symptoms would vanish. 3-4 months later I called my doctor up and said I was ready to do some tests - they came out perfectly normal, and my goiter was gone. She said it didn't mean anything and I should come back. I went after three months and three other months, the results were normal each time. Unfortunately what I refused to see back then is that I wouldn't get out of this disease so easily and as long as I wasn't treating the roots of all this - i.e my abusive relationship - the disease would come back. I ended up not being able to keep this new relationship even though it was great because I still hadn't dealt with what had happened in the old one. We remained friends though and he said he would keep me in his prayers. I was busy with school and I made sure I kept busy, with the superstitious fear that now that I was single and away from the love, the caring and the prayers I would get sick again. It actually didn't happen for a year and half. I was doing fine for a while, and I was trying really hard to forget that I was even sick once. I came to Los Angeles for an internship and randomly decided to stay - again a way of escaping my old reality. Went back and forth for a while to renew my work visas, school..my love life turning into an addictive disaster - a man here a man there, desperately hanging on to romantic encounters that were nothing but somehow meant everything to me, something was obviously wrong. Six months before that, I had met a man and we became friends, hung out a couple times and ended up dating. I really liked him but my life was such a disaster that I was hesitant about starting something when I had so many other things to finish. On New Years eve I decided to end this traveling back and forth between my past and my new reality, stay in LA and try to figure myself out for good. We started going out and our relationship turned out to be growing into a very serious deep love story. And of course that's when my thyroid came back to tickle me and the symptoms started again - went to get checked it was overactive - again got in a fight with the doctor who insisted radioactive iodine wasn't dangerous I thought - I am serene and happy for once my thyroid should work just fine ! My boyfriend and I live together now and my thyroid has been overactive for about nine months, nothing too serious but enough to get symptoms that affect my life - perpetual anxiety, insecurity, jealous temper, irrational reactions.... So I finally understood that I needed to look into a more metaphysical understanding of my thyroid problem. For a few weeks now I have been analyzing myself, reading books and I think that once I will have understood what pushed me into a deadly abusive relationship it will be a huge step towards being cured. My boyfriend is 100% supportive of my endeavors and has gone out of his way to help me search for alternative treatments, understand my symptoms and learn about my disease. He is a wonderful man and wants to marry me, which is reciprocal so it's basically now or never to take the time and energy to look back and understand those 10 years of thyroid imbalance so I can look to the future. So I decided to start yoga and tai chi again, try to understand how to adapt my diet to my thyroid, I am also considering herbs and acupuncture, and subscribed to this group and wrote you all this ! I think it's sort of like AAA, once you've admitted to need to deal with the problem you're on the right track ... Thank you for reading and if you have any book/doctor suggestions please drop me a line...i am also interested in knowing more about music therapy/sound therapy to treat hyperthyroidism Best, Guylaine. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2002 Report Share Posted April 11, 2002 Hi , Thanks very much for your response, I actually haven't checked out the site yet but I will What's the baby's name ? Guylaine At 10:09 PM 4/10/2002 -0700, you wrote: Hi Guylaine: Thanks for sharing your story. I have had overactive thyroid for about 19 months now since my baby was 5 months old. I make use of alternative therapies to treat my symptoms to which my natropath doctor monitors me. I take supplements such as: copper, B complex, trace minerals, equal amounts of calcium/magnesium, and others. Check out the www.iThyroid.com if you haven't already. There are some good articles to read about alternative therapies, what works and what doesn't. I chose not to have an RAI because the thyroid is not what causing the problems, it's the immune system. Guylaine wrote: -- Hi everybody, I just joined this group so I thought I would say hello and introduce myself by telling you my thyroid story. It's a little long but i feel like sharing so ... in 1994 I was diagnosed with Graves disease, a disease which I am convinced is a direct consequence of an extremely abusive relationship I had for two years before I got sick. That relationship almost cost me my life many times and living under a life threatening situation for that long obviously triggered my thyroid imbalance, regardless of what all doctors say. I started an 18 months thyroid hormones treatment, which didn't succeed so I started another one. I went abroad for a year (Spain) and half way through the year I got so frustrated with my medication that I stopped the treatment. I came back home (France), went to see my doctor she did some blood tests and my thyroid was very much overactive again, I had a goiter, my tsh was unbelievably low, etc etc she said that since I had stopped the treatment and I was sick again she only saw one solution and that was to remove the thyroid - I said I hate hospitals I refuse to have surgery she said well, you stopped the treatment so stop complaining you're not helping yourself I got mad, started crying, we got into an argument and I told her that was it - I wouldn't take any more treatment and I would get better by myself. She screamed at me and told me I was immature, stupid, irresponsible and my parents were not too happy either. I told them I didn't trust western medicine. I was in the process of moving to Paris for school and I decided I was going to start a new life, far away from the past that I considered the cause of my disease. At the time I thought my will was powerful enough to overcome all that and the change of city would help. So I went up to Paris moved in with my best friend and already felt better. A couple weeks later I met a man that I started dating, gradually falling in love with. I told him my story, he said I had done the right thing. He himself had survived a heart failure that doctors predicted he wouldn't survived and was now the most athletic man I had ever seen. He said he would include me in his prayers everyday (which is a lot, he's muslim so he prays five times a day) and even though I wasn't muslim or religious myself he promised I would get better through my own will and his prayers. A lot of times I was at his house when he prayed so I would just sit and listen and immediately all my thyroid-related symptoms would vanish. 3-4 months later I called my doctor up and said I was ready to do some tests - they came out perfectly normal, and my goiter was gone. She said it didn't mean anything and I should come back. I went after three months and three other months, the results were normal each time. Unfortunately what I refused to see back then is that I wouldn't get out of this disease so easily and as long as I wasn't treating the roots of all this - i.e my abusive relationship - the disease would come back. I ended up not being able to keep this new relationship even though it was great because I still hadn't dealt with what had happened in the old one. We remained friends though and he said he would keep me in his prayers. I was busy with school and I made sure I kept busy, with the superstitious fear that now that I was single and away from the love, the caring and the prayers I would get sick again. It actually didn't happen for a year and half. I was doing fine for a while, and I was trying really hard to forget that I was even sick once. I came to Los Angeles for an internship and randomly decided to stay - again a way of escaping my old reality. Went back and forth for a while to renew my work visas, school..my love life turning into an addictive disaster - a man here a man there, desperately hanging on to romantic encounters that were nothing but somehow meant everything to me, something was obviously wrong. Six months before that, I had met a man and we became friends, hung out a couple times and ended up dating. I really liked him but my life was such a disaster that I was hesitant about starting something when I had so many other things to finish. On New Years eve I decided to end this traveling back and forth between my past and my new reality, stay in LA and try to figure myself out for good. We started going out and our relationship turned out to be growing into a very serious deep love story. And of course that's when my thyroid came back to tickle me and the symptoms started again - went to get checked it was overactive - again got in a fight with the doctor who insisted radioactive iodine wasn't dangerous I thought - I am serene and happy for once my thyroid should work just fine ! My boyfriend and I live together now and my thyroid has been overactive for about nine months, nothing too serious but enough to get symptoms that affect my life - perpetual anxiety, insecurity, jealous temper, irrational reactions.... So I finally understood that I needed to look into a more metaphysical understanding of my thyroid problem. For a few weeks now I have been analyzing myself, reading books and I think that once I will have understood what pushed me into a deadly abusive relationship it will be a huge step towards being cured. My boyfriend is 100% supportive of my endeavors and has gone out of his way to help me search for alternative treatments, understand my symptoms and learn about my disease. He is a wonderful man and wants to marry me, which is reciprocal so it's basically now or never to take the time and energy to look back and understand those 10 years of thyroid imbalance so I can look to the future. So I decided to start yoga and tai chi again, try to understand how to adapt my diet to my thyroid, I am also considering herbs and acupuncture, and subscribed to this group and wrote you all this ! I think it's sort of like AAA, once you've admitted to need to deal with the problem you're on the right track ... Thank you for reading and if you have any book/doctor suggestions please drop me a line...i am also interested in knowing more about music therapy/sound therapy to treat hyperthyroidism Best, Guylaine. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2002 Report Share Posted April 11, 2002 Hi Guylaine: My son's name is , he just turned two on April 8th. I also have three other boys, ages 12, 9, and 6. Their names are, , , and Zachary. You'll find that this list isn't big for many email posts, however, when a topic gets going, we get right in discussing it. Most people have posted to the Graves_support group through the .com. I used to subscribe to it, but recently left it because of the huge volume of mail. Plus I am so busy with my boys, going to their activites an such I figure I can read the posts occassionally through the website. It has a lot of good information. You can check it out through the .com if you are interested. Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2002 Report Share Posted April 11, 2002 Thanks and hi to the boys ! Guylaine >Hi Guylaine: > >My son's name is , he just turned two on April 8th. >I also have three other boys, ages 12, 9, and 6. Their >names are, , , and Zachary. > >You'll find that this list isn't big for many email posts, >however, when a topic gets going, we get right in discussing >it. Most people have posted to the Graves_support group >through the .com. I used to subscribe to it, but >recently left it because of the huge volume of mail. Plus I >am so busy with my boys, going to their activites an such I >figure I can read the posts occassionally through the >website. It has a lot of good information. You can check >it out through the .com if you are interested. > >Take care, > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2002 Report Share Posted April 12, 2002 Hi Guylaine, Your explanation of what happened makes perfect sense to me. You might want to check out my book, Graves' Disease, A Practical Guide. I mention the role of stress in causing autoimmune disease, and I have a chapter on alternative healing options. I had a section on music therapy but had to cut it when my publisher decided the book was too long. Most of the references I had were from the work of Dr. Oz, I'm thinking Mehmet Oz or something like that, a heart surgeon in NYC. You might also want to check out my web site, http://daisyelaine_co.tripod.com/gravesdisease/ and do some research on 5th chakra influences and how they affect the thyroid. Take care, Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2002 Report Share Posted June 26, 2002 Hi Hannah, Edajane here. I've been offline for 2 days because my daughter and granddaughter from Texas were here. We went crabbing, clamming and got oysters and had a real good feed. Our daughter misses all that living in Texas. Glad you missed me. oceaneyes38 <hanna@...> wrote: Where has every one been? Me, well I have real bad sinusitus. Pam, Where are you, I miss you and terri and teri and ejane and marilyn excetera ,excetera,ha,ha. Let me know where you guys are and if your o.k. E-mail me, hanna@.... My daughter and I share this computor SO her name may pop up! Much Love, Hanna/oceaneyes38. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2002 Report Share Posted June 27, 2002 This is LaDonna, I have been out of town. I was feeling really bad the last few weeks but finally feel good again. I have good days and bad days but life is still going on around me. By for those who don't know I live in North Dakota. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2002 Report Share Posted June 27, 2002 Edajane here. I'm going to be down for a while, (not long I hope) because I'm ataking my puter to the shop. I tryed to load a new program with tech support and got all goofed up. Now I will pay to get it undone. I just sold a couple of puppies so I can afford it. --- LadonnaBrave1@... wrote: > This is LaDonna, I have been out of town. I was > feeling really bad the last > few weeks but finally feel good again. I have > good days and bad days but life > is still going on around me. By for those who > don't know I live in North > Dakota. > ===== Remember that you are with me in my thoughts and prayers. Love, Edajane __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2002 Report Share Posted August 30, 2002 Dear J, On this list, and at iThyroid.com (both of which are run by the same person) the idea is to pursue natural cures for thyroid disease, which essentially is a disease of the immune system and not of the thyroid. Because we basically have an imbalance that causes the problem, we address the imbalance rather than destroying our thyroids, which we cannot get back once destroyed. I had Graves disease over 5 years ago, and after a few months on meds, supplements and acupuncture, I have been fine for 4 1/2 years. Other people also have been successful using diet, supplements and other natural means. RAI is an aggressive treatment that destroys not only the thyroid, but also eventually other organs and systems in the body, and causes more problems than it solves. I have not heard of ONE person in all my years on this list who had RAI who was not eventually SICKER than they were before, and now there is nothing they can do, as their thyroid has been destroyed and there's no going back. When I had Graves, I refused RAI, would not even entertain the option, and it was one of the BEST DECISIONS I EVER MADE. I think the doctor was crazy for pushing this on me, as I got well in a few months, thyroid intact. Please go to iThyroid.com, go on anti-thyroid meds and then try the nutrition and supplements you read on the site, and keep asking your questions here. Good luck, AntJoan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2002 Report Share Posted August 30, 2002 I had RAI. If I had it to do over again I would not have gone that route. My choices in order would have been diet changes and medication, surgery, and then if no other option and meds not available I would have had to have RAI. I was sick when I agreed to it. I wasn't given much in the way of other options. And I had major things going on in my life that were taking all my time. I didn't research it - was too scared to find out much about my condition - Graves Disease. But since taking RAI my eye problems became much worse. My replacement thyroid medication took over 2-1/2 years to get me in range. I have suffered depression and was allowed to get so hypo that I could not speak. My heart remains a problem and I still have a very rapid heart rate and am on medication for that. Although that may not be directly related to the RAI, the extreme severe changes that your body goes through while the radiation works on your thyroid is not good. If you have any questions, feel free to write to me Kate artist60164 wrote: I need to hear from those of you that have had RAI. I hear good things and bad things. Please help. J Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2002 Report Share Posted August 30, 2002 I had RAI 12 years ago and have regretted it ever since. It's not the quick fix it's purported to be. For me the resulting hypothyroidism has been far worse than the hyperthyrodism. Please study your options carefully before deciding on irreversible aggressive treatment. Take care, Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2002 Report Share Posted September 16, 2002 Welcome back. Good to hear you are now doing well. I see the surgeon on Thursday this week to discuss possibility of surgery. Chris Plymouth UK Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2002 Report Share Posted September 16, 2002 I will be leaving next Sunday...for my reconstruction surgery. Wish me well. I will let you all know how it goes. I will be in the hospital for 1 week if all goes well. I will be glad to not have to take anymore of these drugs or suffer with not eating. I ended up going to the hospital today and was dehydrated. I had taken my procardia this morning for spasms...and my heart rate went nuts..160bpm. They filled me up with fluid and gave me ativan to calm me down and to slow down my heart rate. Then sent me on my way and told me to do all i can to stay healthy before the surgery. I will miss all of your postings..as i will be gone for about 2 weeks. Hope to see all of you soon. Indiana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2002 Report Share Posted September 16, 2002 , we do indeed wish you well. My thoughts and prayers go with you and I will look forward to your "successful" report in two weeks. Hugs Magg Alabama Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2002 Report Share Posted September 16, 2002 Hugs and blessings to you . Bev Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2002 Report Share Posted September 16, 2002 Good luck, Chris. We will be praying for you too. Bev. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2002 Report Share Posted September 16, 2002 Hi there Bev.............. here!!. I have been having a heck of a time since August 22nd trying to respond to your posting to me. For some reason I can no longer post from the web-site as the "Post" has disappeared from the side. Anyway a very smart person helped me do it through the my e-mail address. It sounds as if you are doing great, and I am so happy for you. You asked if I still work. No, I retired in 1998, was diagnosed with Achalasia in 1999 and had the operation late 1999 so going back to work was not a concern for me. I am still a very busy person though with 4 children and their families ( 6 grandaughters). Golfing in the summer and 10 pin bowling in the winter. I feel so fortunate I am still able to do all of this at the good old age of 72.! Continued success in your recovery Bev. All the best , Vancouver BC Canada Re: hello all Good luck, Chris. We will be praying for you too. Bev. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2002 Report Share Posted September 16, 2002 Thank you to all of you..I should return on or about October 8th. I will let you know how it is going. JUST HOPE THIS DR KNOWS WHAT HE IS DOING. But i have all faith that he does. He is known world wide and has wrote papers on the subject, and is in such high demand i'm lucky that i got him. Hugs and Kisses to all and I hope we all get through our times with this disease with flying colors. Indiana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2002 Report Share Posted September 17, 2002 Hey Ron, good to hear from you! I remember your story well. Glad to hear you are doing well. We had surgery right around the same time. You DID have quite an adventure, but nine months later the scars are defintely fading, and hopefully your memories of scary times are fading too. Life is so precious. Glad you're still whinnying with us! in Houston > Just want to say hi to all who helped me in this room,thanks feeling > great now .I had a very difficult time with the myotomy ,they > perforated my esophogus and 5 days later almost died ,my only advice > is to not get the surgery without spending the night in the hospital > and getting a barium swallow x ray in the morning before going > home.But after 9 months i feel great can eat anything i want and no > reflux, love you all ,terrible disease,but i tottaly recomend the > myotomy ,had the baloon ,the botox and the pills,none of them > last ,the surgery isnt bad ,i just had a complication go for it,c ya Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2002 Report Share Posted September 24, 2002 , good luck....Our thoughts and prayers are with you. We will be waiting to hear the "good " reports. Hugs Magg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2002 Report Share Posted September 24, 2002 , I do wish you the very best of excellent health care and a speedy recovery. God Bless you. Bev. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2002 Report Share Posted September 24, 2002 This is a test...Has something happened to all the "postings" again or is no one posting? Re: hello all Good luck, Chris. We will be praying for you too. Bev. Quote Link to comment Share on other sites More sharing options...
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