Hello All

[Guest guest]

penny will keep you in my thoughts, and we are all here for you, it will be ok let us know how it goes ok, have had the surgery so know how you feel but will be ok

sue

Penny <pennylevesque@...> wrote:

Ok I am making myself crazy. I have been waiting for them to do this surgery so I can lead a somewhat normal life again and now I am terrified . I go fri for my pro op test then Nov 12 is my surgery date . I think alot of it has to do with the fact that i will be 2 hours away from home and my family will not be there. I have a few questions for those who have had there surgery my doctor says he does not do the wrap have all of you had the wrap done ? I just think not doing the wrap is going to make the asperations remain . My biggest problem is i have allways slept on my stomach . Ihave my hospital bed but allmost every night without fail if i am not sitting right up in bed i end up on my stomach and awake a few minutes later gasping for air . I know it has to be done and soon because i am haven a very hard time even getting

liquids to go down now . Any info would be great thanks . Penny P.S I just wanted to thank you all on behalf of my family and myself for all the prayers for my dad. I know it was for the best that he went so soon . I also know i now have yet another angel to watch over me as i go through this .

[Guest guest]

Penny -

I also was several hours from home when I had my surgery. Maybe

I was lucky, but everything really turned out ok. The drs. and

nurses were always at hand to keep me company and I was far too busy

recuperating to miss my family.

As far as the sleeping is concerned, I am also a 'stomach

sleeper'. I have found that, after a couple weeks recovery,

sleeping on my stomach has once again become the most comfortable.

I experience no more problems in that position than any other.

Best wishes to you.

[Guest guest]

Penny I went to see my surgeon today and he nolongers performs a full

wrap (though he use to) he no longer does teh full wrap for reflux

patients either as he says he it is too restrictive and has lead to

more operations after a few years

He now does a partial fundoplication and posterior cruroplasty after

the myotany.

Joanne

>

> Ok I am making myself crazy. I have been waiting for them to do

this

> surgery so I can lead a somewhat normal life again and now I am

> terrified . I go fri for my pro op test then Nov 12 is my surgery

> date . I think alot of it has to do with the fact that i will be 2

> hours away from home and my family will not be there. I have a few

> questions for those who have had there surgery my doctor says he

> does not do the wrap have all of you had the wrap done ? I just

> think not doing the wrap is going to make the asperations remain .

> My biggest problem is i have allways slept on my stomach . Ihave my

> hospital bed but allmost every night without fail if i am not

> sitting right up in bed i end up on my stomach and awake a few

> minutes later gasping for air . I know it has to be done and soon

> because i am haven a very hard time even getting liquids to go down

> now . Any info would be great thanks . Penny P.S I just wanted to

> thank you all on behalf of my family and myself for all the prayers

> for my dad. I know it was for the best that he went so soon . I

also

> know i now have yet another angel to watch over me as i go through

> this .

[Guest guest]

I had the partial wrap. Supposably it is supposed to help with acid

reflux...I have found I've gotten heartburn a lot more and worse

since the surgery.

> >

> > Ok I am making myself crazy. I have been waiting for them to do

> this

> > surgery so I can lead a somewhat normal life again and now I am

> > terrified . I go fri for my pro op test then Nov 12 is my

surgery

> > date . I think alot of it has to do with the fact that i will be

2

> > hours away from home and my family will not be there. I have a

few

> > questions for those who have had there surgery my doctor says he

> > does not do the wrap have all of you had the wrap done ? I just

> > think not doing the wrap is going to make the asperations

remain .

> > My biggest problem is i have allways slept on my stomach . Ihave

my

> > hospital bed but allmost every night without fail if i am not

> > sitting right up in bed i end up on my stomach and awake a few

> > minutes later gasping for air . I know it has to be done and

soon

> > because i am haven a very hard time even getting liquids to go

down

> > now . Any info would be great thanks . Penny P.S I just wanted

to

> > thank you all on behalf of my family and myself for all the

prayers

> > for my dad. I know it was for the best that he went so soon . I

> also

> > know i now have yet another angel to watch over me as i go

through

> > this .

[Guest guest]

kieranne22 wrote:

I had the partial wrap.

Supposably it is supposed to help with acid

reflux...I have found I've gotten heartburn a lot more and worse

since the surgery.

Are you sure it is heartburn and not spasms? It

could be heartburn but the wrap should stop it.

notan

[Guest guest]

Kos, my hat is off to you!

You are enduring and conquering obstacles that would have a lesser

personality 51/50 long ago. Any psychiatrist or psychologist will

see how strong you really are and that the depression is caused by

all of this PLUS the hep C.

Unbelievable, really, the incompetence our generation has had to

endure...but here we are, stronger than ever, right? I am certain,

Kos, that you will be 'mentally' cleared for tx. They'll just keep

you medicated and in touch with the shrink for the duration, like

they did me.

Since I have no good links to mention here and now, I'll do my

search and see if I can find some legal aid avenues. Will send them

asap.

I'm so thrilled to hear you are doing well with the alternative

healing methods you describe. I think taking charge the way you

have is 90% of the battle. You're a winner already, and I will be

here to watch you shoot that dragon to death!!

, don't forget that you are helping lots of others who are not

as outspoken and communicative as you (or me, LOL). You are truly

growing and it is wonderful to watch. Thank you, my friend.

Cyberhugs and prayers,

Suzy

>

> Hey Suzy, and Pam, and all who post here. Things are going my

> way finaly and I am really excited to see and read all the success

> some members are having. It really does give hope and

encouragement.

> While I still do not know what my geno-type is or what my viral

load

> is or what damage has been done to my liver, I am feeling better

by

> changing my diet and life style. I work out two days a week and

take

> Tai Chi on fridays. I eat only organic foods now and have become

> pretty much a vegan. I drink lots of green tea and coffee and 64

oz's

> of water a day. It is starting to take hold.

>

> Getting my deprssion under control has been the biggest challenge

I

> have faced so far. This is what is keeping me from treatment. GI

is

> going to do the assesment finaly at my constant insistence. All

this

> will be done on January 10, 2005. It will be another thirty days

> before I will know what is what. But they will not begin tx until

I

> clear mental health.

>

> I was diagnosed with muscular dystrophy in 1998. Charcot Marie

Tooth

> disease is what they said I had. I carried this diagnosis to the

VA

> for treatment and now they are telling me I have no nuerological

> problems. Genetic testing shows I do not have CMT or MD for that

> matter. My Dr said that a severe defiency of B-12 and folic acid

is

> what has caused the muscle wasting in my hands and feet, and this

is

> a result of the surgery I had in 1972 on my stomach. They did a

> pylopasty and a vagotmy and removed a portion of my upper stomach

> larger than a silver dollar. The nuerologist said people who have

> this type of surgery usualy require monthly B-12 shots and vitamin

> suppliments. B-12 and folic acid are essential for new red blood

cell

> and muscle cell growth,since I lost my spleen during this surgery

at

> age 18 the B-12 was vital. My Dr told me this one factor is what

> caused my muscle wasting and pain and is what caused the

misdiagnosis

> of muscular dystrophy.

>

> Everything is directly linked to the surgery and my HepC infection

is

> linked to the surgery via blood infusion. So it all goes back on

the

> VA and no exit exam that should have been performed as soon as I

> returned home 1973. I should have been getting these shots every

> month ever since the surgery and the VA should have tested me for

> HepC when I entered the system in 2000.

>

> I need to find a good lawyer is what I need to do. Anyone got any

> suggestions. Lawyers are scarce here since Oklahoma put a cap on

> medical claims and the amount they can get from a settlement. I

can

> get one out of state that will work it for 45% of what I get. But

I

> say bullshit to that and VSO's, all I have got from them is hurry

up

> and wait. Some of my files have been retired and they say they

can't

> find them. They can't even tell me who filed the claim I am now

> getting 20% service connected compensation for.

> They say it will take 4-6 weeks to provide that for me to see it.

I

> can't get copies from my file at the VA regional office. I have to

go

> there and view them with a SO present. I never filed that claim

> personaly. A man showed up at my house with a check for back pay

and

> the news of my service-connected comp. All they did was give me a

> upper GI x-ray at the time and sent me on my way.

>

> So here we are now after 30 years of pain and suffering when

> something as little as a B-12 shot once a month and a Dr with some

> brains could have prevented all of this. I sure hope I can start

tx

> in February or March like they said. It feels good to vent and

rant a

> little.

>

> If anyone knows of a good lawyer or a group of lawyers that

> specialize in this stuff let me know PLEASE.

> A confused cowboy,

> Koz

[Guest guest]

Hi

Welcome, and glad you came out of lurking status.

I only stayed at the hospital which was nice since you get 24/7 care in case you need it. I went alone but if your husband wants there is a daybed in the room so he can stay with you or they will put him up in a hotel. Good luck with your Lap-RNY, I know you are in the hands of a skilled surgeon and a good man.

ttfn

Sarikyl323 <kyb323@...> wrote:

I have also been lurking for a while. I plan to make a trip down to Mexicalli on Dec 19th for Lap-RNY on Dec 20th. I appreciate any suggestions that any of you may have. Also I was curious which hotel did you all stay in while you were there and is there enough room in the hospital room for my husband to stay with me?We will be there during Christmas so any suggestions would be great. Thanks !! Lynch__________________________________________________

[Guest guest]

Penny I join you in that Christmas wish !!!! Life is not fair.

Hugs,

Joan

Hello All

>

>

> Hope everyone had a good christmas . Well I have a appointment to

> return to my A doc been having to much trouble eating still and i am

> starting to worry . My mom made me a sandwich yesterday and it took

> almost 2 bottles of water to get it to go down and the reflux is

> awfull. I sure wish santa had a cure for A i would order one for all

> of us . I have no idea what can be done now but i am not looking

> forward to starting my new year the same way i did last year. Well

> Hope everyone has a wonderful new year . Mike way to go I am glad

> you finaly are getting help hope all goes well for you . Penny

>

>

>

>

>

>

>

>

[Guest guest]

Hi Penny,

Sorry you have to have surgery. I am writing because I have an

appointment with Dr. Darling too on May 10 and I am very excited about

seeing her. How did you hear about her and am I right that you are in

London? I live in Cambridge. I am seeing her for a second opinion as

my situation is complicated by 2 previous stomach surgeries. (not A

related).

Liz

>

> JUST THOUGHT I WOULD POST AND LET YOU KNOW I HAD TO REBOOK MY

> APPOINTMENT WITH DR DARLING THAT WAS SCHEDULED FOR THE 19TH. I

> RESENTLY FOUND OUT I WILL BE HAVEN A TOTAL HYTORECOMY ON THE 21 . I

> SURE HOPE ALL GOES WELL AND I HEAL FAST AND CAN GET TO DR DARLING

SHE

> SOUNDS LIKE A VERY GOOD DOC THAT IS WILLING TO HELP ME WITH THE

> PROBLEMS I AM STILL HAVEN AFTER LAP HELLER. STILL CHOKING ON MOST

> FOODS AND HAVEN TERRIBLE REFLUX NO MATTER WHAT I DO . ALSO STILL

> WAKING UP IN THE NIGHT NOT ABLE TO BREATH . DR IN LONDON IS USLESS

HE

> SAYS AS FAR AS HE IS CONSERNED SURGEY WAS GOOD CAUSE I HAVE LOTS OF

> REFLUX WELL WE WILL SEE HOPE EVERYONE IS DOING WELL (KEEP SMILING )

> PENNY

[Guest guest]

Congratulations Penny on your successful sugery. I know

you are glad it is over and will be glad when you are back

to normal again. Take it easy and don't rush.

Hugs

Maggie

AL

[Guest guest]

Well, I hope all goes well and fast for your recovery. I will pray that you

" E " does not act up while recooping from your surgery.

SMILES from

in Suffolk

[Guest guest]

Hello Penny

H A R R A H ! ! !

I am so happy things went so well for you. It makes you feel much

better when they help you at the hospital. I am glad they took your

situation seriously. One more step closer to better health.

My best wishes for a full and quick recovery.

Kathie in Pittsburgh

>

> Hi All

>

> Just wanted to let you all know made it through the dreaded

> Hysterectomy all safe and sound . The pain I could do with out but

> hey it is to be exspected . The hospital staff was really cool about

> making sure they had all the info they needed on my A . They made

sure

> i was not laying flat before i was put under and when i woke up i was

> sitting at a angle also . They said eveything is gone and i should

> heal fine in about 6 weeks time . The nurses on my floor even made

> sure i always had water on my table in case the old esopagus started

> to spasm on me . I have been pretty lucky (knocking on desk) thats i

> have no had any choaking attacks at night . I would hate to have to

> jump in a hurry while i am movning in slow motion lol. Well time to

> return to my bed I get up and strech my legs for abit by walking to

my

> computer then back to bed i go like a good little patient lol Take

> care and keep smiling Penny

[Guest guest]

Hi Penny!

I am so glad that everything went so well for you. That is teriffic!

And it is so nice to hear that the hospital staff took your A into

consideration. I hope you have a speedy recovery. Keep us posted.

Oh..and keep being a good little patient. Now get back to bed!

Dawn in Ohio

> >

> > Hi All

> >

> > Just wanted to let you all know made it through the dreaded

> > Hysterectomy all safe and sound . The pain I could do with out

but

> > hey it is to be exspected . The hospital staff was really cool

about

> > making sure they had all the info they needed on my A . They made

> sure

> > i was not laying flat before i was put under and when i woke up i

was

> > sitting at a angle also . They said eveything is gone and i

should

> > heal fine in about 6 weeks time . The nurses on my floor even

made

> > sure i always had water on my table in case the old esopagus

started

> > to spasm on me . I have been pretty lucky (knocking on desk)

thats i

> > have no had any choaking attacks at night . I would hate to have

to

> > jump in a hurry while i am movning in slow motion lol. Well time

to

> > return to my bed I get up and strech my legs for abit by walking

to

> my

> > computer then back to bed i go like a good little patient lol

Take

> > care and keep smiling Penny

[Guest guest]

Penny !

Glad you home and OK! It is nice to know there are nurses who care !

Hugs,

Joan

HELLO ALL

>

>

> Hi All

>

> Just wanted to let you all know made it through the dreaded

> Hysterectomy all safe and sound . The pain I could do with out but

> hey it is to be exspected . The hospital staff was really cool about

> making sure they had all the info they needed on my A . They made sure

> i was not laying flat before i was put under and when i woke up i was

> sitting at a angle also . They said eveything is gone and i should

> heal fine in about 6 weeks time . The nurses on my floor even made

> sure i always had water on my table in case the old esopagus started

> to spasm on me . I have been pretty lucky (knocking on desk) thats i

> have no had any choaking attacks at night . I would hate to have to

> jump in a hurry while i am movning in slow motion lol. Well time to

> return to my bed I get up and strech my legs for abit by walking to my

> computer then back to bed i go like a good little patient lol Take

> care and keep smiling Penny

>

>

>

>

>

>

>

>

[Guest guest]

Tema that's excellent Hun... I look up to you! )

Shanelle

> > I just wanted to say that I have been working very hard and have

even

> > found a new path from 2miles to 4miles I didn't think I would

make it

> > the first couple of times but i did....How is everyone else doing?

> >

> > Tema

>

>

>

>

> 100-Plus Files page 100-

plus/files

> 100-Plus Links page 100-

plus/links

>

>

>

> ---------------------------------

>

[Guest guest]

Hee Hee ) ok shhhh I won't tell anybody either!

Shanelle

> Hello Tema, and everyone. Want to welcome the new girls too. This

is a great

> place for support!!! I have to apoligize, I haven't had much

computer

> time--(what's new). I am filling in for another daycare provider--

she lost

> her license and I am taking the children for her, until she gets it

> straightened out, so computer time is very rare for me lately.

Paperwork, so

> much paperwork, and school will be out soon, so more children. Oh

my! Plus I

> am doing lots of gardening and lawn work, which is good for my

exercising.

> So how is everyone doing with the challenge? I am happy with my

weigh in

> this morning, even though I was kind of dreading it, I went down

3lbs.

> 231.5. My goal is to get down to 228, just to get out of the

230's. And

> then stay under. My food hasn't really been all too good, no actual

plans,

> but have eaten alot of salads and fruits and stopped the pepsi

again and

> went back to seltzer and plain iced tea. and water of course. Good

luck to

> everyone and hope the week goes great for ya. Warm but not

complaining

> here, in NY

> Hello all

>

>

> > I just wanted to say that I have been working very hard and have

even

> > found a new path from 2miles to 4miles I didn't think I would

make it

> > the first couple of times but i did....How is everyone else doing?

> >

> > Tema

> >

> >

> >

> >

> >

> >

> >

> > 100-Plus Files page 100-

plus/files

> > 100-Plus Links page 100-

plus/links

> >

[Guest guest]

Looks like both of you are telling all of us, why wouldnt you want us to know??

Decker <kd1049@...> wrote:

Well looks like you are doing fantastic. I won't tell a soul. I need to get working here!!!!

TTyL and let me know how things are. in NY

Re: Hello all

Btw I lost 4more lbs don't tell the group

Tema

Discover Get on-the-go sports scores, stock quotes, news more. Check it out!

[Guest guest]

Thanks Shanelle so much I'm trying really hard I just want to do this this time....I always tried and gave up....... btw it was just a joke I know everyone knows smile

Tema srutherford_4 <srutherford_4@...> wrote:

Tema that's excellent Hun... I look up to you! )Shanelle> > I just wanted to say that I have been working very hard and have even > > found a new path from 2miles to 4miles I didn't think I would make it > > the first couple of times but i did....How is everyone else doing?> > > > Tema> > > > > 100-Plus Files page 100-plus/files> 100-Plus Links page 100-plus/links > > > > --------------------------------->

[Guest guest]

Hi ,

Have you been tested for PCOS?

> Hi. My name is and I have been living with hypothyroidism

> for 8 years now. I started coming down with it when I was 14 years

> old. The doctor's didn't know what my problem was until I was

> almost 17. They told me that they didn't look at the thyroid tests

> because generally hypothyroidism starts when you are a lot older.

> I've been on synthyroid since that time. My dosage has been raised

> every 6 months when I go in for my blood work. I don't know anyone

> else with this disorder so it is very hard for people to understand

> all the effects it can have on you physically and emotionally.

> Before the doctors diagnoised me with hypothyroidism I was an

> emotional wreck. I can't have a menstral cycle without being on

> birth control, I have abnormal hair growth that I have to shave off

> daily, I can have days where I feel so exhausted it is hard to move

> and can have some terrible mood swings. I don't know if all those

> have to do with my thyroid problem but I never had these problems

> until I hit 14 so that's all I can determine. Before I got on my

> meds from 14 to almost 17 I gained about 70lbs. I was sleeping all

> the time and had zero energy. Just getting out of college now and

> being out on my own I would like to control my weight problem, but

> it is hard when you have hormone imbalances. I just wish sometimes

> that I just got my thyroid taken out. I'd still be on meds but

> sometimes I wonder if that's the problem half the time. If anyone

> can give any insight or perhaps they've had the same symptoms that

I

> have and have dealt with them could give me advice on how to better

> handle this situation. Thank you for any help you can give.

>

> ~

[Guest guest]

,

I had an ultrasound type test done when I was 15. There was no

indication of it. They just gave me the song and dance that they

would regulate on their own when I got older but I'm 22 now and if I

didn't take my BC I'd never have a period on my own I don't know

anyone who wants to have their period regularly but me! Do you

think I should get tested again?

> > Hi. My name is and I have been living with

hypothyroidism

> > for 8 years now. I started coming down with it when I was 14

years

> > old. The doctor's didn't know what my problem was until I was

> > almost 17. They told me that they didn't look at the thyroid

tests

> > because generally hypothyroidism starts when you are a lot

older.

> > I've been on synthyroid since that time. My dosage has been

raised

> > every 6 months when I go in for my blood work. I don't know

anyone

> > else with this disorder so it is very hard for people to

understand

> > all the effects it can have on you physically and emotionally.

> > Before the doctors diagnoised me with hypothyroidism I was an

> > emotional wreck. I can't have a menstral cycle without being on

> > birth control, I have abnormal hair growth that I have to shave

off

> > daily, I can have days where I feel so exhausted it is hard to

move

> > and can have some terrible mood swings. I don't know if all

those

> > have to do with my thyroid problem but I never had these

problems

> > until I hit 14 so that's all I can determine. Before I got on

my

> > meds from 14 to almost 17 I gained about 70lbs. I was sleeping

all

> > the time and had zero energy. Just getting out of college now

and

> > being out on my own I would like to control my weight problem,

but

> > it is hard when you have hormone imbalances. I just wish

sometimes

> > that I just got my thyroid taken out. I'd still be on meds but

> > sometimes I wonder if that's the problem half the time. If

anyone

> > can give any insight or perhaps they've had the same symptoms

that

> I

> > have and have dealt with them could give me advice on how to

better

> > handle this situation. Thank you for any help you can give.

> >

> > ~

[Guest guest]

I'm not dr, but it sounds like you have symptoms of PCOS (irregular

periods, hair growth, weight gain). A lot of women who have thyroid

problems also have PCOS. If I were you, I would get an apt. with an

endocrinologist and ask them to test your hormone levels for signs of

PCOS. Especially if the thyroid medicine alone is helping you to feel

better. It makes me feel like there might be something else going on.

If you do have PCOS and are insulin resistant, then they have special

diets to follow that will help.

> > > Hi. My name is and I have been living with

> hypothyroidism

> > > for 8 years now. I started coming down with it when I was 14

> years

> > > old. The doctor's didn't know what my problem was until I was

> > > almost 17. They told me that they didn't look at the thyroid

> tests

> > > because generally hypothyroidism starts when you are a lot

> older.

> > > I've been on synthyroid since that time. My dosage has been

> raised

> > > every 6 months when I go in for my blood work. I don't know

> anyone

> > > else with this disorder so it is very hard for people to

> understand

> > > all the effects it can have on you physically and emotionally.

> > > Before the doctors diagnoised me with hypothyroidism I was an

> > > emotional wreck. I can't have a menstral cycle without being

on

> > > birth control, I have abnormal hair growth that I have to shave

> off

> > > daily, I can have days where I feel so exhausted it is hard to

> move

> > > and can have some terrible mood swings. I don't know if all

> those

> > > have to do with my thyroid problem but I never had these

> problems

> > > until I hit 14 so that's all I can determine. Before I got on

> my

> > > meds from 14 to almost 17 I gained about 70lbs. I was sleeping

> all

> > > the time and had zero energy. Just getting out of college now

> and

> > > being out on my own I would like to control my weight problem,

> but

> > > it is hard when you have hormone imbalances. I just wish

> sometimes

> > > that I just got my thyroid taken out. I'd still be on meds but

> > > sometimes I wonder if that's the problem half the time. If

> anyone

> > > can give any insight or perhaps they've had the same symptoms

> that

> > I

> > > have and have dealt with them could give me advice on how to

> better

> > > handle this situation. Thank you for any help you can give.

> > >

> > > ~

[Guest guest]

I meant to say, especially if the thyroid medicine alone isn't

helping. Sorry for all the typos.

> > > > Hi. My name is and I have been living with

> > hypothyroidism

> > > > for 8 years now. I started coming down with it when I was

14

> > years

> > > > old. The doctor's didn't know what my problem was until I

was

> > > > almost 17. They told me that they didn't look at the

thyroid

> > tests

> > > > because generally hypothyroidism starts when you are a lot

> > older.

> > > > I've been on synthyroid since that time. My dosage has been

> > raised

> > > > every 6 months when I go in for my blood work. I don't know

> > anyone

> > > > else with this disorder so it is very hard for people to

> > understand

> > > > all the effects it can have on you physically and

emotionally.

> > > > Before the doctors diagnoised me with hypothyroidism I was

an

> > > > emotional wreck. I can't have a menstral cycle without

being

> on

> > > > birth control, I have abnormal hair growth that I have to

shave

> > off

> > > > daily, I can have days where I feel so exhausted it is hard

to

> > move

> > > > and can have some terrible mood swings. I don't know if all

> > those

> > > > have to do with my thyroid problem but I never had these

> > problems

> > > > until I hit 14 so that's all I can determine. Before I got

on

> > my

> > > > meds from 14 to almost 17 I gained about 70lbs. I was

sleeping

> > all

> > > > the time and had zero energy. Just getting out of college

now

> > and

> > > > being out on my own I would like to control my weight

problem,

> > but

> > > > it is hard when you have hormone imbalances. I just wish

> > sometimes

> > > > that I just got my thyroid taken out. I'd still be on meds

but

> > > > sometimes I wonder if that's the problem half the time. If

> > anyone

> > > > can give any insight or perhaps they've had the same

symptoms

> > that

> > > I

> > > > have and have dealt with them could give me advice on how to

> > better

> > > > handle this situation. Thank you for any help you can give.

> > > >

> > > > ~

[Guest guest]

" Did she tell you what your Hba1C was?" She told me what everything was, but to be honest I really can't remember what it was that she said.

"Did she give you a glucose monitor?" I already have a monitor that I check my sugar with..Madicaid pays for my strips and everyting and so far when ever I take it it is fine.

Thanks for the Group! Would there be any way tht I could get you to give me an e-mail to them where maybe I can just sign up through e-mail instead of going through ?

Thanks,

Love & Hugs,

Audry

> Hello, All

>

> My name is Audry. I am 37 yrs old,

Welcome, Audry - it's good to see you here, and taking care of yourself!

>t I have Trigeminal Neuralgia,

> which is under control now with Tegretol. I take 400 mgs a day. If you would

> like to know more about this, please do a search on it, it will pop right up

> It is something that is very painful!!!

Oof, indeed, it does. And it does sound quite painful!

> When the Dr started going over the blood work with me, some thing's that I

> was not expecting showed up. Well, one was actually good news! I am NOT

> Diabetic! I am *Borderline* Diabetic. That makes a difference, or at least I

> hope it does. Well, I just found out yesterday that my cholesterol is up a

> little bit, but not enough to put me on any meds yet. She said that she may

> have to put me on something later, but right now she is going to keep an eye

> on it and see how it does, before she decides to put me on meds for it. I

> also found out that I have a little protein going into my urine. I also

> found out that for the past four or five times that I have been going there

> that I have had a little bit of a high blood pressure. So, the med that she

> has put me on for my blood pressure will also help the protein going into my

> urine..which is good! I don't have to take two different med for two

> different things!

"Borderline" diabetic is both one of the best, and worst, diagnoses a doctor can give a

patient. Best, because it keeps you from being labeled a diabetic for insurance purposes.

Worst, because it allows a patient to feel OK, that they aren't "really" a diabetic. Did she tell

you what your Hba1C was? Many doctors use lower (aka, higher number) standards than

the Association of Endocrinologist - numbers which lead to more complications later down

the road due to people not getting their BS numbers down as soon as possible. Protein in

the urine is a sign of diabetic necropathy - destruction of the kidneys - not just high

blood pressure. Many diabetics are put on an ACE Inhibitor (blood pressure meds) to help

protect their kidneys from damage.

Being "pre" diabetic, especially as no medications were given to you, is going to mean

making some rather drastic changes to your diet to keep your blood glucose in line. Did

she give you a glucose monitor? If not, ask for a prescription for a monitor and test strips.

Your aim is to have your BS below 110 (preferably between 90-100) upon waking, below

140 1 hour after taking the first bite of a meal, and below 120 at the two hour mark. To

do this, most diabetics take medications (sometimes multiple) and cut sugar from their

diet and severely limit starches (Rice, corn, peas, potatoes, products containing flour,

avoid using cornstarch, etc.) Nipping this in the bud *NOW* is one of the best things you

can do for yourself. You already know the pain of a nerve disorder - well, diabetics are

also prone to peripheral neuropathy: nerve damage and numbness/pain/burning/itching

in their hands and feet.

Sorry to go on so long, but most diabetics online have found their GPs (and even some so-

called 'specialists') to be utterly ignorant of proper diabetes management. If you decide

you want to face the "pre" diabetes head-on, here's a support group specifically for that:

diabetes_int/

And, of course, losing weight also improves insulin resistance, so you're definitely on the

right track!

If anyone can help me find something that I can keep track of my

> blood pressure I would really appreciate it. The Dr wants it to have the Day

> Date, Time, Pulse, & a place where I can put my blood pressure also. If

> you can help me wiht anything else I would really appreciate that too!!!

You mean a device that measures these things automatically, or just a logbook? I believe

Sue monitors her BP regularly, so perhaps she'll have some ideas. Me, I'd just make a

logbook in my wordprocessing program and make life simple

> Thanks,

> Audry

SulaBlue

100-Plus Files page 100-plus/files

100-Plus Links page 100-plus/links

[Guest guest]

Oops, never mind, went to the site and they already have an e-mail on there that i can write to, thanks

> Hello, All

>

> My name is Audry. I am 37 yrs old,

Welcome, Audry - it's good to see you here, and taking care of yourself!

>t I have Trigeminal Neuralgia,

> which is under control now with Tegretol. I take 400 mgs a day. If you would

> like to know more about this, please do a search on it, it will pop right up

> It is something that is very painful!!!

Oof, indeed, it does. And it does sound quite painful!

> When the Dr started going over the blood work with me, some thing's that I

> was not expecting showed up. Well, one was actually good news! I am NOT

> Diabetic! I am *Borderline* Diabetic. That makes a difference, or at least I

> hope it does. Well, I just found out yesterday that my cholesterol is up a

> little bit, but not enough to put me on any meds yet. She said that she may

> have to put me on something later, but right now she is going to keep an eye

> on it and see how it does, before she decides to put me on meds for it. I

> also found out that I have a little protein going into my urine. I also

> found out that for the past four or five times that I have been going there

> that I have had a little bit of a high blood pressure. So, the med that she

> has put me on for my blood pressure will also help the protein going into my

> urine..which is good! I don't have to take two different med for two

> different things!

"Borderline" diabetic is both one of the best, and worst, diagnoses a doctor can give a

patient. Best, because it keeps you from being labeled a diabetic for insurance purposes.

Worst, because it allows a patient to feel OK, that they aren't "really" a diabetic. Did she tell

you what your Hba1C was? Many doctors use lower (aka, higher number) standards than

the Association of Endocrinologist - numbers which lead to more complications later down

the road due to people not getting their BS numbers down as soon as possible. Protein in

the urine is a sign of diabetic necropathy - destruction of the kidneys - not just high

blood pressure. Many diabetics are put on an ACE Inhibitor (blood pressure meds) to help

protect their kidneys from damage.

Being "pre" diabetic, especially as no medications were given to you, is going to mean

making some rather drastic changes to your diet to keep your blood glucose in line. Did

she give you a glucose monitor? If not, ask for a prescription for a monitor and test strips.

Your aim is to have your BS below 110 (preferably between 90-100) upon waking, below

140 1 hour after taking the first bite of a meal, and below 120 at the two hour mark. To

do this, most diabetics take medications (sometimes multiple) and cut sugar from their

diet and severely limit starches (Rice, corn, peas, potatoes, products containing flour,

avoid using cornstarch, etc.) Nipping this in the bud *NOW* is one of the best things you

can do for yourself. You already know the pain of a nerve disorder - well, diabetics are

also prone to peripheral neuropathy: nerve damage and numbness/pain/burning/itching

in their hands and feet.

Sorry to go on so long, but most diabetics online have found their GPs (and even some so-

called 'specialists') to be utterly ignorant of proper diabetes management. If you decide

you want to face the "pre" diabetes head-on, here's a support group specifically for that:

diabetes_int/

And, of course, losing weight also improves insulin resistance, so you're definitely on the

right track!

If anyone can help me find something that I can keep track of my

> blood pressure I would really appreciate it. The Dr wants it to have the Day

> Date, Time, Pulse, & a place where I can put my blood pressure also. If

> you can help me wiht anything else I would really appreciate that too!!!

You mean a device that measures these things automatically, or just a logbook? I believe

Sue monitors her BP regularly, so perhaps she'll have some ideas. Me, I'd just make a

logbook in my wordprocessing program and make life simple

> Thanks,

> Audry

SulaBlue

100-Plus Files page 100-plus/files

100-Plus Links page 100-plus/links

[Guest guest]

" Do you check your own pressure at home?" Just started but I think there is either something wrong with the machine or the batterys are low, cause i keep getting stuff like

99/63 Pulse 81 & 93/60 Pulse 84 It is a wrist machine that I've had for a long time now. It has been a while since I have checked the batterys so that may very well be why I'm getting those kind of reading

I meant to put this in another post and forgot, so I hope you don't mind. I also have Sweatin to the oldies. I can maybe get up to the song where he ask everybody if their ready to do the twist! At that point I am hurting and have to stop and I yell out NOOO I'm not ready!!! hahaha and I have to cut it off.

Thanks for all the advice From you and everyone else I have gotten mail from!!

Audry

> My name is Audry.

Welcome, Audry!

>It's so hard to believe how fast they grow up, and I wish

> he were my baby again...even though I know that down deep he is still my

> baby in my heart, and always will be!

LOL I feel the same way about *my* "baby" - he'll be 22 this November!

>I have

> been, and still am morbidly obese for all my life.

So what you should be aiming for is better health right now. Get into a

healthy food plan, start some gentle exercise. Our Links and Files section

should help you out a bit.

Start a food journal - mark down everything you east & drink and note also

how you feel before and after. Did you eat it because you were hungry or

just bored? Did eating it help? Look it over after about 2 weeks and make

small changes. If you see you enjoy sweets a bit too much, try fruit instead

of cookies. Like salty stuff instead? How about veggies & a hummus or salsa

dip instead of chips?

>Well, one was actually good news! I am NOT

> Diabetic! I am *Borderline* Diabetic.

A few years ago that number was probably considered in the normal range.

Now, anything over 100 is called "pre-diabetic" when before anything under

120 was perfectly fine.

>Well, I just found out yesterday that my cholesterol is up a

> little bit, but not enough to put me on any meds yet.

Cholesterol levels are like sugar levels - they fluctuate throughout the day

and from day to day, too. Try adding a few vegetarian meals into your weekly

menus. Lasagna and spaghetti are just as tasty without meat as with. During

these hot summer months it's easy to have cold salads as a meal, and when

the cold weather comes, there are loads of soups & stews that can be

meat-free. Remember, chicken & fish contain the same amount of cholesterol

as red meats, so switching to those won't change your cholesterol levels.

Our Files/Recipes section has a folder of vegetarian recipes, so why not

visit and experiment.

> also found out that I have a little protein going into my urine.

That can be as simple as an infection or even the result of too much protein

in your diet, epecially if you're a big meat-eater.

> found out that for the past four or five times that I have been going

there

> that I have had a little bit of a high blood pressure.

Do you check your own pressure at home? You should, especially if you're now

on meds for it. Be sure the cuff you buy is big enough for your arm, because

a too-small cuff will give a too high reading. You might find your BP is

fine at home, that it only goes up when at the doctor's office. It's a

common phenomenon known as "white coat hypertension" caused by the stress of

just seeing the doctor. By keeping a record of your pressure at home you'll

know for sure. Be sure to sit quietly for 10 minutes before taking a

reading. If you don't know how to use the machine, as the pharmacist at the

drug store when you buy it to show you.

> I wake up in the middle of the night either becuse I can't sleep, or

because

> I am hurting and I have to get up.

I've been like that for years, but so has my thin brother. For the 2 of us,

it's as much sinusitis as arthritis aches from staying in one position for a

long time. Try getting one of those memory foam toppings for your mattress,

the best you can afford. You'll see it does a world of good.

> I have even had a talk with my son a while back and I found out that he is

> scared to go out in public with me, because he is afraid that someone that

> knows me will see me with him and will start picking on him and calling me

> names.

My thin girlfriend's daughters told her the same thing. It's something ALL

teens will say to their parents, no matter what size they are.

> girl then turned and asked her mother, that is she loved her so much, why

> was she trying to kill herself....

TV shows have used the great killer obesity for that plot line recently. In

past years they used smoking or alcohol abuse in that position

interchangably. Just a little heart-tugging scene to make you feel bad about

yourself. Change the channel!

> Dieing!! If anyone can help me find something that I can keep track of my

> blood pressure I would really appreciate it.

Cut back on the salty foods and get some exercise. Those are the 2 main

things that will lower your BP - IF it really IS high, like I wrote above.

It IS possible to be fat and healthy, you know. Skinny people get high blood

pressure, high cholesterol, and protein in their urine, too.

So start your food journal, get some exercise, turn off the sappy tv movies

and get a hobby for stress relief. Our Links page can send you to some sites

that have gentle exerise videos that people of any size can do. Loads of us

here do and Sansone videos - just modify the steps

that are too fast or too hard to do. My fave video is is Silver

Foxes one. It's specifically for seniors, but that just means the steps are

slower and easier to do. I've been doing that one since it came out in the

1980's when I was still in my 30's. If something like that is even too much

for you right now, sit in a chair and do the arm work and as much of the

foot work as you can.

Start walking. If all you can do is 5 minutes away from home and 5 back,

well, that's 10 minutes you just did! Do that a few more times a day, a few

days a week, and each week go just a little bit further. Work up to a half

hour a day.

Get yourself some hand weights and a book or video to go along with them and

build up your strength and muscle mass. Even a one pound bag of dried beans

in each hand can do to start. I use the book Strong Women Stay Slim that I

got for under $1 at http://www.half.com .

Grab a book from the library on meditation. Done correctly it'll lighten

your mood and lessen your blood pressure.

Again, cook some vegetarian meals and ease off on the salt shaker and

sweets.

>The Dr wants it to have the Day

> Date, Time, Pulse, & a place where I can put my blood pressure also.

If you have Word or Works on your computer it's easy to make up a chart in

the spreadsheet portion of it. Be sure to make a space for Notes, too, so if

you chart that your pulse was 100 and you just finished running up 2 flights

of stairs, then the number will be perfectly fine, but if it's over 100 and

you're just resting, then there might be something cooking.

Or just take a plain old marble composition pad and use that as your food

journal and keep your vital signs in that. This way you'll see if various

foods affect your numbers, too.

And drink your water. The average sized person needs an average of 8,

8-ounce glasses a day. We're all above average in size, so naturally we need

an above average amount of water to keep our bodies hydrated, to keep our

blood flowing smoothly, our digestive tracks loose, and our urine

protein-free. Aim for a half ounce per pound of body weight, so at 300

pounds your goal is 150 ounces of water. If you drink coffee or soda with

caffeine, drink a bit more, because caffeine is dehydrating. But don't do it

all at once! You gut will *not* be happy with all that fluid dumped on it.

Add just one extra glass a day for the first week, 2 the next, etc. Just

like exercise, you have to build up to a healthy level.

And check in here frequently, let us know how you're doing. Remember, right

now you're aiming at improving your health. Weight loss may or may not

follow, but a healthy diet and exercise program *will* improve your health

and outlook on life.

Sue in NJ

100-Plus Files page 100-plus/files

100-Plus Links page 100-plus/links