Hilary in UK

[Guest guest]

Hi

Thank you for explaining yourself so clearly.

Now this is my opinion -

1 - Dont push the option of doing treatment totally away.

There are new things like the 'Protease Viral Inhibitors' that might be worth discussing with your doctor.

2 - Dont push learning how your liver is doing totally away either.

In my opinion, it never hurts to know where one stands, because then you have the ability to make choices, and deal with problems.

3 - In the meantime - there are things that you can do at home to slow the progression of the HCV.

Dr Berkson's protocal seems to help many people.

Click this link:

http://health.dir./group/ /links/006N___Dr_Berkson_001287085127/

There are things like diet, suppliments, and lifestyle changes one can make that help.

If you look in the LINKS section of the group, you will find many alternative things about diet and suppliments.

Click this link:

http://health.dir./group/ /links/

If your liver is not too far gone, it might be possible to just live with the HCV.

Some of us are trying to do just that.

I personally have heart issues so my doctors are holding me off on doing conventional treatment.

I am using alternative protocals while I wait, and my labs are staying close to normal, and I even had a 1/3 drop in my viral load at my last exam w/ labs [October 2010].

But I havent been taking my suppliments since, so my next visit in Feb might be bad.

The alternative protocals wont get rid of the HCV, but I believe they do help slow it down.

The only known true 'cure' for HCV is conventional treatment.

It is your choice which you choose.

If you need more info, please just ask.

In the meantime, take care of yourself.

love

don in ks

From: hilarym250 <hilarym250@...>Subject: [ ] new site member Date: Friday, January 7, 2011, 4:09 AM

Hi all and thanks so much to all who replied to my post a few days ago.

Not been well so not been on here since...still finding out how it all works on the site.

I live in UK and am being monitored by a gastroenterologist and although they wanted me to have treatment free on NHS I declined, because with all my being nothing seemed right about it. I have a long term eye condition with sight in one eye which is not brilliant so any risk of losing that vision would stop me having the Tx, apart from the terrible irreversible sides that a lot of people get....I wont even take a Paracetamol, so I could never put that poison into me. A lot of people would probably be OK on it - I'm Genotype 1a, 56 years old, female.

I would love with all my heart to get rid of this nightmare...it's sooo difficult.

My Doc has always been OK with me not having Tx, he said he respects my choice, but asks me every time I go (annually) if I want the Tx.

My GP will do blood tests whenever I ask.

I've had 2 biopsies over 10 years ago but dont want more...whats the point if I'm not having TX. I'm scared to know now what the condition of my liver is like...I dont want any more scans or fibroscan because if I was told it was bad, that would have such a massive psychological impact on me, I would crack up, it would be the finish of me honestly. Yet, psychologically not knowing is having a negative impact on my health because I'm thinking it's destroying me from the inside.

My bloods have been OK all along, AST varying between 40-60, all the rest normal, but that does not mean I have not got cirrhosis does it? really does it?

I live alone so it's hard to keep picking myself up.

I think i should have tagged this at the end of my previous question? so that you'll know my backround.

I 've weighed about 100 pounds for the last 12 years and cant put weight on, but I dont think I'm getting enough amino acids and minerals so I've recently learned?

I would really appreciate your views please

thanks so much