new to group

[Guest guest]

Diagnosed in 2007 via registered mail after donating blood...worst way to learn

you are registered with Center for Disease control for having a disease that you

think is like aids...never gonna get to kiss my kids again withotu

fear.....never claimed to be smart.

Drove around for hours just crying and thinking and found a center that had big

words that read HEP C Support...went in and got informed...went hoem and told

family, after removing toothbrush and razor and calling doc to schedule everyone

for testing....thank God I am only one affected.

After 3 attempts to get to the bottom of what all this meant and each attempt

costing me more labs and treatment of the coldest kind...I quit trying....I

actually got yet another head cold so bad I finally went thru the ER at a local

by your income hospital...everythign changed from there..too many appointments

if you ask me, bt hey, it had been about 10 plus years, so went with it....

Started treatments...got great lowering numbers, but no clear.....really had no

issues with treatments, shots or pills (although felt pills were worse, for

never felt any change with shots)...then the heart palpitations started, about

14 weeks in....then they got worse and oh my, had to lay down to make them stop,

thought heart was gonna jump from chest when I sat up, even staretd skipping

beats....17 weeks in, doctor stopped treatment and said liver disease is betetr

than heart disease, I agreed...

so, no longer doing treatments, almost 2 years now and this bone pain is killing

me...I have a son that is 12 that is a quad, I am his arms and legs, yet some

days my muscles wrinkle and my bones feel like they ar egonna break any

second.....tried tordol, 1000mg ibuprofen works better...I know, I know, but

pain gets unbearable and you go for what works...like right now, butt to ankles,

but at the center of the bone not all of it and then them hands .....it was

thought to be rheumotoid arthritis by GI, but that doc gave me lyrica and said

ti was nerve pain....it worked wonderfully, at first...is it that I cna do more

now, so I do and then it seems the pills don't work cause then I am in major

pain all over, maybe...either way, it is gettign harder and harder to handle,

for ibuprofen don't touch it any more...valium 10 mg does relax enough to sleep

although those are not perscribed and cried for in desperation, but nothign

touches pain at its core....

seeing both docs soon and praying one of you all know this pain and somethign

besides burning baths that help ease the pain, yet it also is safe for this

liver...

thanks