Re: i have Raynalds really bad/sharon

[Guest guest]

FYIMy feet were so cold I had on socks and insulated slippers and they were still frozen. I have to get the little heat packets and put them in my slippers.That is how bad my toes are. They go numb. If they get so bad I have to run them under hot water. My husband also has it. I don't find it painful, but I hate the numbness and the annoyance of holding my toes all night. My hands do it too. What else do i have??? Or what don't I have. I know exactly what you have. My son is getting it too.sharonI guess I'm Sharon Raynaulds, not Reynolds, lol (mcdonald is my husband's last name) From: "trudykinsey@..." <trudykinsey@...>" " < >Sent: Mon, January 10, 2011 3:13:51 AMSubject: Re: [ ] New and needing support from people who know what I 'm going through

, that's also what happens with Reynaulds. The blood vessels shrink ( or the clotting from Cyro impedes blood travel) due to reaction to cold and no blood gets to fingers( in my case feet also). As blood flow returns the area will spread with dark blue color. And it can be very painful. Like " slamming fingers in a car door".http://facebook.com/people/andTrudy-Kinsey/1340460877 " "A well- behaved woman never made history"...Mae Westhttp://oktravels.wordpress.com http://allrecipes.com/cook/TrudyK/profile.aspx On Jan 9, 2011, at 9:41 PM, Cinder <datagrey@...> wrote:

you need to get to a doc as soon aas you can about that. it can be a symptom of the blood not being pumped through there the waay it needs to. sign of a blood clot too. Please get it looked at. that can be pretty serious. By the way hi I am . I am from Kansas. I am a Med aide. I have Hep c also waiting on tx. i am type 1 grade 2. or B.

From: rivera.m7938 <rivera.m7938@...>Subject: [ ] New and needing support from people who know what I 'm going through Date: Sunday, January 9, 2011, 11:06 AM

I am so greatful to have found the group and be able to make friends that are going thru the same/similar health issues that I am going thru. I was diagnosed w/ HEP. C in 1999 and w/ CRYOGLOBULINEMIA due to the HEP. C in 2003. Since then my life has been PAIN. I have been on PEGASYS 0.5 ml. once a week and RIBASPHERE 200 MG TAB 3 in the a.m. and 2 in the p.m. daily for 6 months now, but it's not to treat the HEP. C ., it's actually to treat the CRYOGLOBULINEMIA b/c I've done treatment 2 prior times in the past and it didn't do anything for my HEP. C. There are days that I feel exhausted and other days I feel fine. If it's too hot or too cold I itch all over really bad. Right now a new symptom has began and it is that my hands feel tight/swollen,they keep going numb and have severe burning/pain in them. I have tried wearing winter gloves even in the house to see if it helps any, but there is no relief. I usually try not to take prescribed pain

medicines, but I've had to take some this morning b/c of how strong the pain is and it still didn't take all the pain away. I'm a single mom of 2 kids which makes it even harder on me and on my kids b/c on my very bad days I hardly am able to cook for them and take care of them the way I really need to be. Thank God for family! If you or anyone you know is having the same/similar symptoms (specially the new one) pls. let me know what you or they are doing to relieve the tightness/swolleness, numbness and burning sensation/pain. I need some relief. Thanks for taking the time to read my post.God bless you,Margo