Guest guest Posted March 9, 2009 Report Share Posted March 9, 2009 Oh heck, if you have CFS sleep problems, have your doc prescribe Ambien (zolpidem tartrate) for you and your problem vanishes. I have taken this drug for about 12 years and it continues to make going to sleep to be no big deal. 10 mg immediately before bedtime is the standard dose, but I often take half a pill if I think I may be sorta sleepy, and that works fine. And sometimes, when I am super CFS-fatigued, I don't take it at all. I am not a novice at sleep problems, mine date back to age 10 and this was a big problem for me all my life, and long before CFS hit me in 1994. I have tried weak and strong sleep meds, including Halcion, the drop-dead dope that may cause you to hit the floor before you get from bathroom to bedroom. Ambien is a pussycat compared to Halcion. So my advice is to get on Ambien and stop trying the halfway " natural " things, such as melatonin. Ambien works every time and I don't think you will be tempted to exceed its 10 mg/bedtime dose. No need to.. Try 5 first. Well, I am going to take 5 mg Ambien and hit the sack. No hangover ever with Ambien and I have found no side effects at all. Bloop, I wake up feeling CFS-sorta good and ready to take on the day. Well maybe I have a little dependency after years and years, but recently I failed to get my script refilled so was without it for five nights, and finally slept after four hours of very-awake tossing and turning, but I did solve all the world's problems during these lost hours... Sure. As my great-grandfather Caldwell, who was born in 1833, said about Corn Flakes, when they hit the market ca 1910, " Might as well open your mouth and let the sun shine in; I find no value in Corn Flakes " . I am sorry I missed Grandpop , he died in 1915, long before I was born in 1940. He was very wise, and would have also dissed Melatonin - just get out in the Sun and forget it.. Gotta hit the sack - Everyone, please stay rational and soon start your spring plowing, even while fighting CFS fatigue. Just be careful and do not overdo. You and your plow mules take rest in the shade whenever you feel tired. Worked for many generations of our family, until I ran off from the farm to be city slicker engineer and slaved away too hard and did not get enough sleep, so CFS hit me like a ton of bricks in July 1994. Maybe I shoulda stayed home and kept on farming and not gone to that darn university and set myself up for CFS. Hit just ain't worth it, folks. I miss my nice mules; anyone else on this group know how to plow with a pair of mules? For cultivating a started garden, only one is needed, and a good garden mule is worth a lot. She never steps on a single plant and automatically turns to the next row and waits for go. We should take a lesson, mules never get excited or stressed, like horses do. Calm cool critters, who live a long time and just go with the flow.. And they are very friendly with their human caretakers - a win-win deal all around. Mort Caldwell, PE Age 68 and CFS since 1994. Email caldbio@... BSEE Rectrical Enjineer, and MS Physiocologist, both from great colages. Resume upon request. Re: Re: Sleep I know what Dr. Dantini said to me in 2008. He said to take 20 mg of melatonin a night for sleep. I do not need you to tell me what he said to me. Perhaps his approach has changed since you have spoken with him. I have read his book. I did not find anything new in it. I have been suffering with CFS for more than 20 years and I have read many, many books and medical studies in that time. One more time: What works for one person does not necessarily work for another person with CFS. Schmidt wrote: > > I agree, 20 mg is HUGE. Having worked with Dr. Dantini, I believe he > might have said " up to 20 mg " rather than " take 20 mg, " as in 2003 he > was saying 5-10 mg per night. For some, if they aren't sleeping, the > higher amounts would be to get more rested up, not a continual permanent > dose. It took me six months on 9 mg per night to get rested up as I was > very sleep/rest deprived, but I also added other things such as HRT for > the hot flashes, anti-inflammatories for the osteo-arthritis in back and > neck, warmer pjs at night so I don't get chilled, food allergy rotation > diet because I have severe food allergies or sensitivities, Ultra-Cal > NIght by Source Naturals which gave me back dreams at night so I assume > I am getting better quality REM sleep, Recuperation for the right > combination of minerals to alleviate leg cramps, etc. > > Dr. Dantini has a book out now that I found helpful, The New > Fibromyalgia Theory. Of course I have found bits and pieces of helpful > information in almost all of the CFS/FMS books too. So keep reading and > learning out there. There are helpful things for us. We all have to find > what works for us with our individual problems in addition to the > CFS/FMS we each uniquely have. > > in La Selva Beach CA > > cbwillis9 wrote: > > > > " retractap@... " <retractap@...> wrote: > > > > > > I also talked with Dr. Dantini--last October. > > > He recommended 20mg of melatonin, said any brand > > > was all right, and said he did not have > > > information on taking other things with the melatonin. > > > I tried the 20mg > > > for many weeks, and it never did anything at all for me. I saw no > > > effect, either beneficial or otherwise. > > > > > > What works for one person does not necessarily work for another. > > > > > > > > > > 20 mg melatonin is HUGE, and the med lit suggests that small > > amounts such a 0.5-3 mg are more effective than the larger > > amounts. > > > > Small amounts of 2 or more sedating substances can be more > > effective than larger amounts of one. Caution any time using > > sedating substances and especially when combining them - > > danger of respiratory arrest. > > > > Carol W. > > > > [Moderator: it is likely a good exercise to keep a list of what > > supplements seem to be good wakeup and poor before bed items, and the > > reverse. For example, aspirin, grapeseed-extract, piracetam, niacin > > tend to be good wakeup items but will keep most people too awake to > > get to sleep. Wormwood, Olive Leaf Extract, vin (low dosage) can > > be useful to assist at bed time... Everyone mileage will be > different....] > > > > __ > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2009 Report Share Posted March 9, 2009 , It could be possible that Dr.Dantini recommended this higher dose not only for sleep but also for other therapeutic reasons. Melatonin has immunomodulatory and antioxidant properties. http://www.ncbi.nlm.nih.gov/pubmed/16217132?ordinalpos=1 & itool=EntrezSystem2.PEn\ trez.Pubmed.Pubmed_ResultsPanel.Pubmed_DiscoveryPanel.Pubmed_Discovery_RA & linkpo\ s=1 & log$=relatedreviews & logdbfrom=pubmed They also use 20mg dosage for scarlodosis and AIDS. " Exogenous melatonin reverses beta-blocker-induced immunosuppression and enhances immune parameters in animals. A preliminary report of patients with AIDS who took melatonin 20 mg daily in the evening revealed uneven but generally beneficial effects on immune parameters.[34] " http://www.medscape.com/viewarticle/472385_3 nat > I know what Dr. Dantini said to me in 2008. He said to take 20 mg of > melatonin a night for sleep. I do not need you to tell me what he said > to me. Perhaps his approach has changed since you have spoken with > him. I have read his book. I did not find anything new in it. I have > been suffering with CFS for more than 20 years and I have read many, > many books and medical studies in that time. > > One more time: What works for one person does not necessarily work for > another person with CFS. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2009 Report Share Posted March 9, 2009 I have found that if my clients take a protein snack or protein drink just before bedtime they sleep much better. This is because the protein can prevent blood sugar drops in the night which may cause an adrenalin rush which disrupts sleep. > > > > > > I also talked with Dr. Dantini--last October. > > > He recommended 20mg of melatonin, said any brand > > > was all right, and said he did not have > > > information on taking other things with the melatonin. > > > I tried the 20mg > > > for many weeks, and it never did anything at all for me. I saw no > > > effect, either beneficial or otherwise. > > > > > > What works for one person does not necessarily work for another. > > > > > > > > > > 20 mg melatonin is HUGE, and the med lit suggests that small > > amounts such a 0.5-3 mg are more effective than the larger > > amounts. > > > > Small amounts of 2 or more sedating substances can be more > > effective than larger amounts of one. Caution any time using > > sedating substances and especially when combining them - > > danger of respiratory arrest. > > > > Carol W. > > > > [Moderator: it is likely a good exercise to keep a list of what > > supplements seem to be good wakeup and poor before bed items, and the > > reverse. For example, aspirin, grapeseed-extract, piracetam, niacin > > tend to be good wakeup items but will keep most people too awake to > > get to sleep. Wormwood, Olive Leaf Extract, vin (low dosage) can > > be useful to assist at bed time... Everyone mileage will be different....] > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2009 Report Share Posted March 10, 2009 Dr. D scribed the same for me 20mg, melatonin at the end of Nov... I tried it twice for two weeks since and stopped because the drowsiness wouldn't fade until noon. Even when I dropped to 5mg a night, still felt thrown off too much. I believe one purpose from certain physicians experience is to reverse the cortisol cycle that we often have bass ackwards. R , It could be possible that Dr.Dantini recommended this higher dose not only for sleep but also for other therapeutic reasons. Melatonin has immunomodulatory and antioxidant properties. http://www.ncbi.nlm.nih.gov/pubmed/16217132?ordinalpos=1 & itool=EntrezSystem2.PEn\ trez.Pubmed.Pubmed_ResultsPanel.Pubmed_DiscoveryPanel.Pubmed_Discovery_RA & linkpo\ s=1 & log$=relatedreviews & logdbfrom=pubmed They also use 20mg dosage for scarlodosis and AIDS. " Exogenous melatonin reverses beta-blocker-induced immunosuppression and enhances immune parameters in animals. A preliminary report of patients with AIDS who took melatonin 20 mg daily in the evening revealed uneven but generally beneficial effects on immune parameters.[34] " http://www.medscape.com/viewarticle/472385_3 nat > I know what Dr. Dantini said to me in 2008. He said to take 20 mg of > melatonin a night for sleep. I do not need you to tell me what he said > to me. Perhaps his approach has changed since you have spoken with > him. I have read his book. I did not find anything new in it. I have > been suffering with CFS for more than 20 years and I have read many, > many books and medical studies in that time. > > One more time: What works for one person does not necessarily work for > another person with CFS. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2009 Report Share Posted March 10, 2009 My sleep is all over the place, some nights okay and others not, so none of the following is a magic solution, just a few things that help me. As alex mentioned, if I have a small snack before bedtime I usually sleep better and wake less often. Getting my minerals in balance has helped. I've been working on this in conjunction with the Yasko protocol, and tracking levels with a Urine Essential Elements test every month or two. At one point I was taking a lot of magnesium citrate before bedtime ( " up to bowel tolerance " ), which helped my sleep, but taking 6-8 large capsules every night just before bedtime got tedious so I cut back on that and am taking magnesium through drops in juice these days. Eating a banana a day helps (for the potassium). I used to have leg spasms when I lay down to sleep, ranging from minor to so strong they'd shake my whole body. The mineral supplements seem to have taken care of those; if I start skipping the minerals the spasms come back. Recently (in the past 2 weeks) I've started using a FIR sauna, and that makes me feel very relaxed after I'm done and have had a hot shower. Even without the sauna session, a hot bath or shower helps me physically relax and get to sleep more easily. Of course I usually don't think to actually *do* this when I'm not sleeping well. If I could remember all the good advice I give myself I'd probably be farther ahead, eh? Maybe a bit cliched, but soothing music helps. Unfortunately I haven't solved the problem with having to get up several times during the night to pee. Most of the time I'm lucky enough to get back to sleep afterwards. Often my brain wakes up just around the time I ought to be falling asleep. The day/night cycle and my adrenal system are out of whack, I'm sure. Haven't tackled that issue yet. Best wishes, Marcia on in Salem, Massachusetts > > I have found that if my clients take a protein snack or protein drink just before bedtime they sleep much better. This is because the protein can prevent blood sugar drops in the night which may cause an adrenalin rush which disrupts sleep. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2009 Report Share Posted March 10, 2009 Just in case. Vit D (400 IU) messes with my sleep if I use whey protein. For sleep for me: Magnesium and meditation,and/or Ashocks " soften and flow " excercise. That calms me down quick. Mr. Raba. > > > > I have found that if my clients take a protein snack or protein drink just before bedtime they sleep much better. This is because the protein can prevent blood sugar drops in the night which may cause an adrenalin rush which disrupts sleep. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2009 Report Share Posted March 10, 2009 hi Mr Raba Does vit D disturb your sleep even if you take it in the morning? Also i could not understand the relationship of vit D with whey protein. Could you explain? thanks nil Re: Sleep > Just in case. Vit D (400 IU) messes with my sleep if I use whey protein. > > For sleep for me: Magnesium and meditation,and/or Ashocks " soften and > flow " excercise. That calms me down quick. > > Mr. Raba. > > > >> > >> > I have found that if my clients take a protein snack or protein drink >> > just before bedtime they sleep much better. This is because the >> > protein can prevent blood sugar drops in the night which may cause an >> > adrenalin rush which disrupts sleep. >> > > > > > ------------------------------------ > > This list is intended for patients to share personal experiences with each > other, not to give medical advice. If you are interested in any treatment > discussed here, please consult your doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2009 Report Share Posted March 11, 2009 Thanks, . It's interesting that you mention the cortisol cycle problem. I know that my cortisol cycle has been backwards (low at 8AM when it should be highest; high at midnight when it should be low). Dr. D never asked me anything about cortisol. I saw Suzanne Sommers on TV this morning saying she takes 25mg of melatonin every night for sleep. She says she has to take a high dose because she has a stressful life. Rutledge wrote: > > Dr. D scribed the same for me 20mg, melatonin at the end of Nov... I > tried it twice for two weeks since and stopped because the drowsiness > wouldn't fade until noon. Even when I dropped to 5mg a night, still > felt thrown off too much. I believe one purpose from certain > physicians experience is to reverse the cortisol cycle that we often > have bass ackwards. > > R > > , > > It could be possible that Dr.Dantini recommended this higher dose not > only for sleep but also for other therapeutic reasons. Melatonin has > immunomodulatory and antioxidant properties. > > http://www.ncbi.nlm.nih.gov/pubmed/16217132?ordinalpos=1 & itool=EntrezSystem2.PEn\ trez.Pubmed.Pubmed_ResultsPanel.Pubmed_DiscoveryPanel.Pubmed_Discovery_RA & linkpo\ s=1 & log$=relatedreviews & logdbfrom=pubmed > <http://www.ncbi.nlm.nih.gov/pubmed/16217132?ordinalpos=1 & itool=EntrezSystem2.PE\ ntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_DiscoveryPanel.Pubmed_Discovery_RA & linkp\ os=1 & log$=relatedreviews & logdbfrom=pubmed> > > They also use 20mg dosage for scarlodosis and AIDS. > > " Exogenous melatonin reverses beta-blocker-induced immunosuppression > and enhances immune parameters in animals. A preliminary report of > patients with AIDS who took melatonin 20 mg daily in the evening > revealed uneven but generally beneficial effects on immune > parameters.[34] " > > http://www.medscape.com/viewarticle/472385_3 > <http://www.medscape.com/viewarticle/472385_3> > > nat > > > I know what Dr. Dantini said to me in 2008. He said to take 20 mg of > > melatonin a night for sleep. I do not need you to tell me what he said > > to me. Perhaps his approach has changed since you have spoken with > > him. I have read his book. I did not find anything new in it. I have > > been suffering with CFS for more than 20 years and I have read many, > > many books and medical studies in that time. > > > > One more time: What works for one person does not necessarily work for > > another person with CFS. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2009 Report Share Posted March 13, 2009 I have been taking melatonin 3-5mg for over 10 years. Whenever I am a long time on melatonin, my periods become heavy and closer together. I just want to warn you about this if you do try high dose melatonin for a long time. The doses of 20mg sound ridiculous. The reference for how melatonin effects the other hormones in the body are in this reference: http://findarticles.com/p/articles/mi_m0ISW/is_259-260/ai_n10299307 futher down the page it says: " Melatonin and Menses " which is my specific problem and relates to long term useage in the fertility system and other hormones. I'm at my wits end as I can not reset my sleep or sleep well without melatonin but can not stand the heavy periods it gives me. My gynacologist knows nothing. None of them are taught about melatonin. I had to find that article after hours of exhaustive searching. What can I take instead of melatonin to reset sleep without the side effects on my period? Can anyone here help me? I sent a post on this within the last few weeks. You can look it up under my name. > > > > > > I also talked with Dr. Dantini--last October. > > > He recommended 20mg of melatonin, said any brand > > > was all right, and said he did not have > > > information on taking other things with the melatonin. > > > I tried the 20mg > > > for many weeks, and it never did anything at all for me. I saw no > > > effect, either beneficial or otherwise. > > > > > > What works for one person does not necessarily work for another. > > > > > > > > > > 20 mg melatonin is HUGE, and the med lit suggests that small > > amounts such a 0.5-3 mg are more effective than the larger > > amounts. > > > > Small amounts of 2 or more sedating substances can be more > > effective than larger amounts of one. Caution any time using > > sedating substances and especially when combining them - > > danger of respiratory arrest. > > > > Carol W. > > > > [Moderator: it is likely a good exercise to keep a list of what > > supplements seem to be good wakeup and poor before bed items, and the > > reverse. For example, aspirin, grapeseed-extract, piracetam, niacin > > tend to be good wakeup items but will keep most people too awake to > > get to sleep. Wormwood, Olive Leaf Extract, vin (low dosage) can > > be useful to assist at bed time... Everyone mileage will be different....] > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2009 Report Share Posted March 13, 2009 another link on the subject but not as comprehensive is the questions http://answers./question/index?qid=20080515101324AALgeLJ The link I gave called " Melatonin, menstruation and the moon " is much better. Sometimes the link works and sometimes doesn't. It explains properly the influence of melatonin on the reproductive system. If it does not work check back later or google the exact title. > > > > > > > > I also talked with Dr. Dantini--last October. > > > > He recommended 20mg of melatonin, said any brand > > > > was all right, and said he did not have > > > > information on taking other things with the melatonin. > > > > I tried the 20mg > > > > for many weeks, and it never did anything at all for me. I saw no > > > > effect, either beneficial or otherwise. > > > > > > > > What works for one person does not necessarily work for another. > > > > > > > > > > > > > > 20 mg melatonin is HUGE, and the med lit suggests that small > > > amounts such a 0.5-3 mg are more effective than the larger > > > amounts. > > > > > > Small amounts of 2 or more sedating substances can be more > > > effective than larger amounts of one. Caution any time using > > > sedating substances and especially when combining them - > > > danger of respiratory arrest. > > > > > > Carol W. > > > > > > [Moderator: it is likely a good exercise to keep a list of what > > > supplements seem to be good wakeup and poor before bed items, and the > > > reverse. For example, aspirin, grapeseed-extract, piracetam, niacin > > > tend to be good wakeup items but will keep most people too awake to > > > get to sleep. Wormwood, Olive Leaf Extract, vin (low dosage) can > > > be useful to assist at bed time... Everyone mileage will be different....] > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2009 Report Share Posted March 14, 2009 I take 200 mg of sam-e plus a gaba calm.. before bed. Knocks me out. Sam-e helps convert serotonin to melatonin. Of course, the simplified yasko protocol sorted out my sleep problems. I quit sleep meds within 2 weeks of starting and never went back. That was over 2 years ago. Sleep studies show i had almost no stage 3 & 4 sleep back then.. (pre- yasko) These days I sleep like a baby. Hard to believe but true. To clarify .. I think it's all the support that helps with sleep.. folates b12 etc... but the sam-e is particularly helpful. caution: sam-e is contraindicated for people with serotonin syndrome & also , I *THINK* ppl on SSRIs. L. > > I have been taking melatonin 3-5mg for over 10 years. > Whenever I am a long time on melatonin, my periods become heavy and closer together. I just want to warn you about this if you do try high dose melatonin for a long time. The doses of 20mg sound ridiculous. > > The reference for how melatonin effects the other hormones in the body are in this reference: > http://findarticles.com/p/articles/mi_m0ISW/is_259-260/ai_n10299307 > futher down the page it says: > " Melatonin and Menses " > which is my specific problem and relates to long term useage in the fertility system and other hormones. > > I'm at my wits end as I can not reset my sleep or sleep well without melatonin but can not stand the heavy periods it gives me. > > My gynacologist knows nothing. None of them are taught about melatonin. I had to find that article after hours of exhaustive searching. What can I take instead of melatonin to reset sleep without the side effects on my period? > > Can anyone here help me? > I sent a post on this within the last few weeks. You can look it up under my name. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2009 Report Share Posted March 15, 2009 I have been thinking of trying SAMe for sleep Steve On Mar 14, 2009, at 8:33 AM, lmonrovia wrote: > I take 200 mg of sam-e plus a gaba calm.. before bed. Knocks me out. > Sam-e helps convert serotonin to melatonin. > > Of course, the simplified yasko protocol sorted out my sleep > problems. I quit sleep meds within 2 weeks of starting and never > went back. That was over 2 years ago. > > Sleep studies show i had almost no stage 3 & 4 sleep back then.. > (pre- yasko) These days I sleep like a baby. Hard to believe but true. > > To clarify .. I think it's all the support that helps with sleep.. > folates b12 etc... but the sam-e is particularly helpful. > > caution: sam-e is contraindicated for people with serotonin syndrome > & also , I *THINK* ppl on SSRIs. > > L. > > > > > I have been taking melatonin 3-5mg for over 10 years. > > Whenever I am a long time on melatonin, my periods become heavy > and closer together. I just want to warn you about this if you do > try high dose melatonin for a long time. The doses of 20mg sound > ridiculous. > > > > The reference for how melatonin effects the other hormones in the > body are in this reference: > > http://findarticles.com/p/articles/mi_m0ISW/is_259-260/ai_n10299307 > > futher down the page it says: > > " Melatonin and Menses " > > which is my specific problem and relates to long term useage in > the fertility system and other hormones. > > > > I'm at my wits end as I can not reset my sleep or sleep well > without melatonin but can not stand the heavy periods it gives me. > > > > My gynacologist knows nothing. None of them are taught about > melatonin. I had to find that article after hours of exhaustive > searching. What can I take instead of melatonin to reset sleep > without the side effects on my period? > > > > Can anyone here help me? > > I sent a post on this within the last few weeks. You can look it > up under my name. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2009 Report Share Posted May 9, 2009 > > Hi all, > > I have been on the programme for 1-2 months. Over the last few days haven't been able to sleep that well at all. I do the mad/cal before bed and stretches/exercises etc. to calm down (breathing as well). > > I usually have dinner around 8 and take the last vit C and a table spoon of coconut oil with the meal. Is there anything extra you would say to do? Like `i say it's only been over the last few days. Is this all part of the proccess of getting better? +++Hi Chris. Sleep can be affected because your body is detoxifying, which it does mostly at night. So first ensure you are very gradually and slowly increasing your coconut oil. You can experiment a bit by cutting back on coconut oil to a level that doesn't cause too much die-off/detoxifying to happen. Also, taking coconut oil less than 3 hours before bedtime interferes with sleep since it energizes your body so much. If you eat meals less than 3 hours before bed your body will be working hard to digest it which interferes with sleep. If you've had sleep problems in the past your body will also " retrace " them during natural healing - look up Hering's Law of Cure on my website. Your last dose of cal/mag should be 1/2 hour before bed and with a poached egg (which digests very quickly so it won't interfere with sleep). Search for the Sleep article on my website for more suggestions. Cheers, Bee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2009 Report Share Posted October 15, 2009 Jayke, Sleeping is sometimes a symptom of depression...escape. He must get his depression and diabetes under control before he can start treatment. Depression is a major side effect of treatment. Anti-depressents, Anti-Ds, will take several weeks to become effective. And it may take a few differant ones to find the one that does the most good. At no time should anyone go Cold Turkey with SSRIs, the crash can be severe. Online support is good as far as it goes. Face to face support is much better. Check the websites for American Liver Foundation, Hepatitis Foundation International and www.hcvadvocate.org for support group listings and see if there is one near you. Glenn > > I'm new to the group and fairly new to HC. As far as I know, I don't have it yet but my fiancee has had it for many years. Since we've met again (about 2 1/2 years), he's generally had low energy. Past month he sleeps constantly. Deep, sound sleep. He has many other things against him and have been trying to get him ready for the " treatment " . He has chronic major manic depression -usually on the very low side. He is Insulin dependent diabetic with wide ranges of blood sugar. The Psychiatrist put him on a dramatic increase of antidepression medication to prep him for the treatment. It seems to have him on the down side. They keep increasing doses and addding more drugs but by puttingh off the treatment it seems to have discouraged him. However, I don't disagree with the decision to wait, I'm just frustrated with the current situation. Should he be re-evaluated for this sleeping. I'm very concerned. He cannot stay awake. He's in a deep slack-jawed snoring coma like state within seconds!!!! I don't know what to do. Any advice? jayke > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2009 Report Share Posted October 15, 2009 Jayke, Sleeping is sometimes a symptom of depression...escape. He must get his depression and diabetes under control before he can start treatment. Depression is a major side effect of treatment. Anti-depressents, Anti-Ds, will take several weeks to become effective. And it may take a few differant ones to find the one that does the most good. At no time should anyone go Cold Turkey with SSRIs, the crash can be severe. Online support is good as far as it goes. Face to face support is much better. Check the websites for American Liver Foundation, Hepatitis Foundation International and www.hcvadvocate.org for support group listings and see if there is one near you. Glenn > > I'm new to the group and fairly new to HC. As far as I know, I don't have it yet but my fiancee has had it for many years. Since we've met again (about 2 1/2 years), he's generally had low energy. Past month he sleeps constantly. Deep, sound sleep. He has many other things against him and have been trying to get him ready for the " treatment " . He has chronic major manic depression -usually on the very low side. He is Insulin dependent diabetic with wide ranges of blood sugar. The Psychiatrist put him on a dramatic increase of antidepression medication to prep him for the treatment. It seems to have him on the down side. They keep increasing doses and addding more drugs but by puttingh off the treatment it seems to have discouraged him. However, I don't disagree with the decision to wait, I'm just frustrated with the current situation. Should he be re-evaluated for this sleeping. I'm very concerned. He cannot stay awake. He's in a deep slack-jawed snoring coma like state within seconds!!!! I don't know what to do. Any advice? jayke > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2009 Report Share Posted October 15, 2009 Dear DK  I'm so sorry to hear ur boyfriend is going through such a tough time. He has many underlying illnesses which will be affected by his treatment. It is brutal. I took it but had to come off it after 6 months as my white platelet count dropped too low. My Dad saved me with the depression as I was tending to him for his last two years and he was indeed a handfull with ailments. Point is, I was too busy with someone else to feel depressed or sad about my treatment. I would get a second opinion on his antidepressants and give him a goal to help somone else who is worse off than he is, not knocking his condition. I've had it 30 years and in stage one of cancer.  but I am going to Costa Rica and help the animals and the kiddos. He can do something in his own town. I don't believe in western meds so will not take antidepressents. Talk to an herbologist, particullary chinese, american indians and learn about how they can help. I take around 14 a day plus a tea made of powerful antioxidents 3 times a day.  Everyone reacts differently, dependent on their minds. That is our strongest asset or can be our biggest liability. Enjoy something out of every day.  Hope this helps. If he needs to talk I will give u my number or call u.   Patti From: jk <jayke54@...> Subject: sleep Hepatitis C Date: Thursday, October 15, 2009, 1:39 PM  I'm new to the group and fairly new to HC. As far as I know, I don't have it yet but my fiancee has had it for many years. Since we've met again (about 2 1/2 years), he's generally had low energy. Past month he sleeps constantly. Deep, sound sleep. He has many other things against him and have been trying to get him ready for the " treatment " . He has chronic major manic depression -usually on the very low side. He is Insulin dependent diabetic with wide ranges of blood sugar. The Psychiatrist put him on a dramatic increase of antidepression medication to prep him for the treatment. It seems to have him on the down side. They keep increasing doses and addding more drugs but by puttingh off the treatment it seems to have discouraged him. However, I don't disagree with the decision to wait, I'm just frustrated with the current situation. Should he be re-evaluated for this sleeping. I'm very concerned. He cannot stay awake. He's in a deep slack-jawed snoring coma like state within seconds!!!! I don't know what to do. Any advice? jayke Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2009 Report Share Posted October 15, 2009 Dear DK  I'm so sorry to hear ur boyfriend is going through such a tough time. He has many underlying illnesses which will be affected by his treatment. It is brutal. I took it but had to come off it after 6 months as my white platelet count dropped too low. My Dad saved me with the depression as I was tending to him for his last two years and he was indeed a handfull with ailments. Point is, I was too busy with someone else to feel depressed or sad about my treatment. I would get a second opinion on his antidepressants and give him a goal to help somone else who is worse off than he is, not knocking his condition. I've had it 30 years and in stage one of cancer.  but I am going to Costa Rica and help the animals and the kiddos. He can do something in his own town. I don't believe in western meds so will not take antidepressents. Talk to an herbologist, particullary chinese, american indians and learn about how they can help. I take around 14 a day plus a tea made of powerful antioxidents 3 times a day.  Everyone reacts differently, dependent on their minds. That is our strongest asset or can be our biggest liability. Enjoy something out of every day.  Hope this helps. If he needs to talk I will give u my number or call u.   Patti From: jk <jayke54@...> Subject: sleep Hepatitis C Date: Thursday, October 15, 2009, 1:39 PM  I'm new to the group and fairly new to HC. As far as I know, I don't have it yet but my fiancee has had it for many years. Since we've met again (about 2 1/2 years), he's generally had low energy. Past month he sleeps constantly. Deep, sound sleep. He has many other things against him and have been trying to get him ready for the " treatment " . He has chronic major manic depression -usually on the very low side. He is Insulin dependent diabetic with wide ranges of blood sugar. The Psychiatrist put him on a dramatic increase of antidepression medication to prep him for the treatment. It seems to have him on the down side. They keep increasing doses and addding more drugs but by puttingh off the treatment it seems to have discouraged him. However, I don't disagree with the decision to wait, I'm just frustrated with the current situation. Should he be re-evaluated for this sleeping. I'm very concerned. He cannot stay awake. He's in a deep slack-jawed snoring coma like state within seconds!!!! I don't know what to do. Any advice? jayke Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2009 Report Share Posted October 15, 2009 patti........................................cant help but luv you,you have no idea what an impact you have,i thank God for you and Lloyd!!!  i dont even remember if you guys remember me when i came in here as a wee lil pup. i dont remember yous,i was to freaked out. but ty From: patti <fishinggal2008@...> Subject: Re: sleep Hepatitis C Date: Thursday, October 15, 2009, 7:44 PM  Dear DK  I'm so sorry to hear ur boyfriend is going through such a tough time. He has many underlying illnesses which will be affected by his treatment. It is brutal. I took it but had to come off it after 6 months as my white platelet count dropped too low. My Dad saved me with the depression as I was tending to him for his last two years and he was indeed a handfull with ailments. Point is, I was too busy with someone else to feel depressed or sad about my treatment. I would get a second opinion on his antidepressants and give him a goal to help somone else who is worse off than he is, not knocking his condition. I've had it 30 years and in stage one of cancer.  but I am going to Costa Rica and help the animals and the kiddos. He can do something in his own town. I don't believe in western meds so will not take antidepressents. Talk to an herbologist, particullary chinese, american indians and learn about how they can help. I take around 14 a day plus a tea made of powerful antioxidents 3 times a day.  Everyone reacts differently, dependent on their minds. That is our strongest asset or can be our biggest liability. Enjoy something out of every day.  Hope this helps. If he needs to talk I will give u my number or call u.   Patti From: jk <jayke54 (DOT) com> Subject: sleep Hepatitis Csupportgr oupgroups (DOT) com Date: Thursday, October 15, 2009, 1:39 PM  I'm new to the group and fairly new to HC. As far as I know, I don't have it yet but my fiancee has had it for many years. Since we've met again (about 2 1/2 years), he's generally had low energy. Past month he sleeps constantly. Deep, sound sleep. He has many other things against him and have been trying to get him ready for the " treatment " . He has chronic major manic depression -usually on the very low side. He is Insulin dependent diabetic with wide ranges of blood sugar. The Psychiatrist put him on a dramatic increase of antidepression medication to prep him for the treatment. It seems to have him on the down side. They keep increasing doses and addding more drugs but by puttingh off the treatment it seems to have discouraged him. However, I don't disagree with the decision to wait, I'm just frustrated with the current situation. Should he be re-evaluated for this sleeping. I'm very concerned. He cannot stay awake. He's in a deep slack-jawed snoring coma like state within seconds!!!! I don't know what to do. Any advice? jayke Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2009 Report Share Posted October 15, 2009 patti........................................cant help but luv you,you have no idea what an impact you have,i thank God for you and Lloyd!!!  i dont even remember if you guys remember me when i came in here as a wee lil pup. i dont remember yous,i was to freaked out. but ty From: patti <fishinggal2008@...> Subject: Re: sleep Hepatitis C Date: Thursday, October 15, 2009, 7:44 PM  Dear DK  I'm so sorry to hear ur boyfriend is going through such a tough time. He has many underlying illnesses which will be affected by his treatment. It is brutal. I took it but had to come off it after 6 months as my white platelet count dropped too low. My Dad saved me with the depression as I was tending to him for his last two years and he was indeed a handfull with ailments. Point is, I was too busy with someone else to feel depressed or sad about my treatment. I would get a second opinion on his antidepressants and give him a goal to help somone else who is worse off than he is, not knocking his condition. I've had it 30 years and in stage one of cancer.  but I am going to Costa Rica and help the animals and the kiddos. He can do something in his own town. I don't believe in western meds so will not take antidepressents. Talk to an herbologist, particullary chinese, american indians and learn about how they can help. I take around 14 a day plus a tea made of powerful antioxidents 3 times a day.  Everyone reacts differently, dependent on their minds. That is our strongest asset or can be our biggest liability. Enjoy something out of every day.  Hope this helps. If he needs to talk I will give u my number or call u.   Patti From: jk <jayke54 (DOT) com> Subject: sleep Hepatitis Csupportgr oupgroups (DOT) com Date: Thursday, October 15, 2009, 1:39 PM  I'm new to the group and fairly new to HC. As far as I know, I don't have it yet but my fiancee has had it for many years. Since we've met again (about 2 1/2 years), he's generally had low energy. Past month he sleeps constantly. Deep, sound sleep. He has many other things against him and have been trying to get him ready for the " treatment " . He has chronic major manic depression -usually on the very low side. He is Insulin dependent diabetic with wide ranges of blood sugar. The Psychiatrist put him on a dramatic increase of antidepression medication to prep him for the treatment. It seems to have him on the down side. They keep increasing doses and addding more drugs but by puttingh off the treatment it seems to have discouraged him. However, I don't disagree with the decision to wait, I'm just frustrated with the current situation. Should he be re-evaluated for this sleeping. I'm very concerned. He cannot stay awake. He's in a deep slack-jawed snoring coma like state within seconds!!!! I don't know what to do. Any advice? jayke Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2009 Report Share Posted October 15, 2009 focused on some very good points glen! From: GlennR <grisley6315@...> Subject: Re: sleep Hepatitis C Date: Thursday, October 15, 2009, 7:22 PM Â Jayke, Sleeping is sometimes a symptom of depression.. .escape. He must get his depression and diabetes under control before he can start treatment. Depression is a major side effect of treatment. Anti-depressents, Anti-Ds, will take several weeks to become effective. And it may take a few differant ones to find the one that does the most good. At no time should anyone go Cold Turkey with SSRIs, the crash can be severe. Online support is good as far as it goes. Face to face support is much better. Check the websites for American Liver Foundation, Hepatitis Foundation International and www.hcvadvocate. org for support group listings and see if there is one near you. Glenn > > I'm new to the group and fairly new to HC. As far as I know, I don't have it yet but my fiancee has had it for many years. Since we've met again (about 2 1/2 years), he's generally had low energy. Past month he sleeps constantly. Deep, sound sleep. He has many other things against him and have been trying to get him ready for the " treatment " . He has chronic major manic depression -usually on the very low side. He is Insulin dependent diabetic with wide ranges of blood sugar. The Psychiatrist put him on a dramatic increase of antidepression medication to prep him for the treatment. It seems to have him on the down side. They keep increasing doses and addding more drugs but by puttingh off the treatment it seems to have discouraged him. However, I don't disagree with the decision to wait, I'm just frustrated with the current situation. Should he be re-evaluated for this sleeping. I'm very concerned. He cannot stay awake. He's in a deep slack-jawed snoring coma like state within seconds!!!! I don't know what to do. Any advice? jayke > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2009 Report Share Posted October 15, 2009 focused on some very good points glen! From: GlennR <grisley6315@...> Subject: Re: sleep Hepatitis C Date: Thursday, October 15, 2009, 7:22 PM Â Jayke, Sleeping is sometimes a symptom of depression.. .escape. He must get his depression and diabetes under control before he can start treatment. Depression is a major side effect of treatment. Anti-depressents, Anti-Ds, will take several weeks to become effective. And it may take a few differant ones to find the one that does the most good. At no time should anyone go Cold Turkey with SSRIs, the crash can be severe. Online support is good as far as it goes. Face to face support is much better. Check the websites for American Liver Foundation, Hepatitis Foundation International and www.hcvadvocate. org for support group listings and see if there is one near you. Glenn > > I'm new to the group and fairly new to HC. As far as I know, I don't have it yet but my fiancee has had it for many years. Since we've met again (about 2 1/2 years), he's generally had low energy. Past month he sleeps constantly. Deep, sound sleep. He has many other things against him and have been trying to get him ready for the " treatment " . He has chronic major manic depression -usually on the very low side. He is Insulin dependent diabetic with wide ranges of blood sugar. The Psychiatrist put him on a dramatic increase of antidepression medication to prep him for the treatment. It seems to have him on the down side. They keep increasing doses and addding more drugs but by puttingh off the treatment it seems to have discouraged him. However, I don't disagree with the decision to wait, I'm just frustrated with the current situation. Should he be re-evaluated for this sleeping. I'm very concerned. He cannot stay awake. He's in a deep slack-jawed snoring coma like state within seconds!!!! I don't know what to do. Any advice? jayke > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2010 Report Share Posted June 24, 2010 Hi Suzanne, Ornithine is a non-essential amino acid made from other kinds of amino acids in your body. All amino acids are from proteins, i.e. meats and eggs, so you'd be better having an egg when you wake up rather than taking a processed product. You have keep some peeled boiled eggs on hand to eat. Most amino acids on the market today are made from soy too, which is damaging to anyone's health. I suggest you also go to bed early enough to make up for lost sleep 1:30 - 3:30 am. Also when you wake up do deep breathing exercises: http://www.healingnaturallybybee.com/articles/breath4.php See this sleep article for other ideas on how to improve it: http://www.healingnaturallybybee.com/articles/sleep2.php I hope that helps. Bee > > i have been waking up daily at 130am till 330. it is so hard because I have to go to work in the morning. Doyou believe in the body clock? that says the liver is detoxing then. Any suggestions? > > I have tried herbal sleep and ornithine. > > suzanne > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2011 Report Share Posted January 20, 2011 Hello everyone, all i have wanted all week is to just sleep now i have to get up early for my dr appt i cant sleep, i know its stress i really think my hgb has come up i dont feel as short a breath still dizzy but i am used to that lol Blessed be marie--------- Sent from AT & T's Wireless network using Mobile Email Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2011 Report Share Posted April 16, 2011 Bee, I've been having trouble sleeping the last couple weeks. The first two weeks on the diet were good, but now I'm waking up at 3 AM or 4 AM and can't get back to sleep. I haven't started taking the Ca and Mg supplements yet. Would they make a big difference here? Chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2011 Report Share Posted April 16, 2011 > > Bee, > > > > I've been having trouble sleeping the last couple weeks. The first two > weeks on the diet were good, but now I'm waking up at 3 AM or 4 AM and can't > get back to sleep. I haven't started taking the Ca and Mg supplements yet. > Would they make a big difference here? +++Hi Every supplement is important for this program in order for it to get the results. Yes, cal/mag supplements may help you sleep. However, your body detoxifies more at night, so a person can wake up at 3-4 AM. That may be a good sign, since it means your body is detoxifying itself better. See this article for help on sleeping: http://www.healingnaturallybybee.com/articles/sleep1.php All the best, Bee > > > > Chris > > > > > > Quote Link to comment Share on other sites More sharing options...
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