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when they take a liver biopsy, don't they see everything? I mean if the take only a part, maybe that part would not have scaring, but maybe others would, so you would not get a right diagnosis. Is this right?On Jan 22, 2011, at 5:01 PM, debbiecurwick wrote:

Don,

Question for you. You've yet to have a liver biopsy done, Right. You say you're labs are staying in the normal range. Well my labs have been in the normal range and look at the condition of my liver. Cirrhosis compensated stage. What is keeping you from having a liver biopsy if you haven't had one done yet. Mine went from grade 1 stage 1 to grade 3 stage 4 cirrhosis in just 2 yrs. Unless when they did my first biopsy they got the sample from an area that didn't show as much damage. Who knows. So how can you say your liver is not doing bad. Labs don't always tell the whole story. I can attest to that.

Debbie

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The biopsy is done with a hollow needle that goes into the liver and takes a

small amount. Some parts of the liver may not have as much scarring as another

place would, so if they happen to get a sample from an area that isn't as

scarred it would give you a false reading so to speak. Does that make sense to

you ? My hepatologist at the UW thinks that is what happened in my case.

Debbie

>

> > Don,

> >

> > Question for you. You've yet to have a liver biopsy done, Right. You say

you're labs are staying in the normal range. Well my labs have been in the

normal range and look at the condition of my liver. Cirrhosis compensated stage.

What is keeping you from having a liver biopsy if you haven't had one done yet.

Mine went from grade 1 stage 1 to grade 3 stage 4 cirrhosis in just 2 yrs.

Unless when they did my first biopsy they got the sample from an area that

didn't show as much damage. Who knows. So how can you say your liver is not

doing bad. Labs don't always tell the whole story. I can attest to that.

> >

> > Debbie

> >

> >

>

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Hi Debbie

Im not sure that this is true.

Granted Im not a doctor, but it makes sence to me that the scaring would be evenly distributed throughout the liver.

Maybe someone else knows.

love

don in ks

From: debbiecurwick <debbiecurwick@...>Subject: [ ] Re: Don/Labs Date: Saturday, January 22, 2011, 9:29 PM

The biopsy is done with a hollow needle that goes into the liver and takes a small amount. Some parts of the liver may not have as much scarring as another place would, so if they happen to get a sample from an area that isn't as scarred it would give you a false reading so to speak. Does that make sense to you ? My hepatologist at the UW thinks that is what happened in my case.Debbie> > > Don,>

> > > Question for you. You've yet to have a liver biopsy done, Right. You say you're labs are staying in the normal range. Well my labs have been in the normal range and look at the condition of my liver. Cirrhosis compensated stage. What is keeping you from having a liver biopsy if you haven't had one done yet. Mine went from grade 1 stage 1 to grade 3 stage 4 cirrhosis in just 2 yrs. Unless when they did my first biopsy they got the sample from an area that didn't show as much damage. Who knows. So how can you say your liver is not doing bad. Labs don't always tell the whole story. I can attest to that.> > > > Debbie> > > >>------------------------------------

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I don't know Don, but I seem to remember my hepatologist telling me that could

be a reason for the false reading, but then again my memory is not so good. But

that seems to stick out in my mind.

Deb

> >

> > > Don,

> > >

> > > Question for you. You've yet to have a liver biopsy done, Right. You say

you're labs are staying in the normal range. Well my labs have been in the

normal range and look at the condition of my liver. Cirrhosis compensated stage.

What is keeping you from having a liver biopsy if you haven't had one done yet.

Mine went from grade 1 stage 1 to grade 3 stage 4 cirrhosis in just 2 yrs.

Unless when they did my first biopsy they got the sample from an area that

didn't show as much damage. Who knows. So how can you say your liver is not

doing bad. Labs don't always tell the whole story. I can attest to that.

> > >

> > > Debbie

> > >

> > >

> >

>

>

>

>

> ------------------------------------

>

>

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When they take a biopsy they do 2 different pokes.. they should be hitting different spots on the liver.  Hopefully between the two they can get a fairly accurate idea of what is going on.On Sat, Jan 22, 2011 at 9:07 PM, Barrett <barrjohnm@...> wrote:

 

when they take a liver biopsy, don't they see everything? I mean if the take only a part, maybe that part would not have scaring, but maybe others would, so you would not get a right diagnosis. Is this right?

On Jan 22, 2011, at 5:01 PM, debbiecurwick wrote:

 

Don,

Question for you. You've yet to have a liver biopsy done, Right. You say you're labs are staying in the normal range. Well my labs have been in the normal range and look at the condition of my liver. Cirrhosis compensated stage. What is keeping you from having a liver biopsy if you haven't had one done yet. Mine went from grade 1 stage 1 to grade 3 stage 4 cirrhosis in just 2 yrs. Unless when they did my first biopsy they got the sample from an area that didn't show as much damage. Who knows. So how can you say your liver is not doing bad. Labs don't always tell the whole story. I can attest to that.

Debbie

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Nope Don she is right..  that's why they usually, usually stick you twice.  Once the scarring starts the blood flow is obstructed a bit to that area...  scarring tends to happen in groupings.  

On Sat, Jan 22, 2011 at 9:32 PM, Christ <ludichrist2000@...> wrote:

 

Hi Debbie

Im not sure that this is true.

Granted Im not a doctor, but it makes sence to me that the scaring would be evenly distributed throughout the liver.

Maybe someone else knows.

 

love

don in ks

From: debbiecurwick <debbiecurwick@...>Subject: [ ] Re: Don/Labs

Date: Saturday, January 22, 2011, 9:29 PM

The biopsy is done with a hollow needle that goes into the liver and takes a small amount. Some parts of the liver may not have as much scarring as another place would, so if they happen to get a sample from an area that isn't as scarred it would give you a false reading so to speak. Does that make sense to you ? My hepatologist at the UW thinks that is what happened in my case.

Debbie> > > Don,>

> > > Question for you. You've yet to have a liver biopsy done, Right. You say you're labs are staying in the normal range. Well my labs have been in the normal range and look at the condition of my liver. Cirrhosis compensated stage. What is keeping you from having a liver biopsy if you haven't had one done yet. Mine went from grade 1 stage 1 to grade 3 stage 4 cirrhosis in just 2 yrs. Unless when they did my first biopsy they got the sample from an area that didn't show as much damage. Who knows. So how can you say your liver is not doing bad. Labs don't always tell the whole story. I can attest to that.

> > > > Debbie> > > >>------------------------------------

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Thank you Teri, at least now I know I was right and not being missleading on

this.

> > >

> > > > Don,

> > > >

> > > > Question for you. You've yet to have a liver biopsy done, Right. You

> > say you're labs are staying in the normal range. Well my labs have been in

> > the normal range and look at the condition of my liver. Cirrhosis

> > compensated stage. What is keeping you from having a liver biopsy if you

> > haven't had one done yet. Mine went from grade 1 stage 1 to grade 3 stage 4

> > cirrhosis in just 2 yrs. Unless when they did my first biopsy they got the

> > sample from an area that didn't show as much damage. Who knows. So how can

> > you say your liver is not doing bad. Labs don't always tell the whole story.

> > I can attest to that.

> > > >

> > > > Debbie

> > > >

> > > >

> > >

> >

> >

> >

> >

> > ------------------------------------

> >

> >

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DebbieI actually think that your 1st biopsy did slip and got a much better area. At least as long as you were not guzzling alcohol that whole 2 years.As I was told, Stage 3 is full bridging fibrosis. Stage 4, which I was at in Jan 2009, is cirrhotic. In fact, everything I read about the cancer is, it's directly as a result of the cirrhosis. So, who knows how long I had gone over?? There was the 3-1/2 yrs between tx's.Gloria

Don,

Question for you. You've yet to have a liver biopsy done, Right. You say you're labs are staying in the normal range. Well my labs have been in the normal range and look at the condition of my liver. Cirrhosis compensated stage. What is keeping you from having a liver biopsy if you haven't had one done yet. Mine went from grade 1 stage 1 to grade 3 stage 4 cirrhosis in just 2 yrs. Unless when they did my first biopsy they got the sample from an area that didn't show as much damage. Who knows. So how can you say your liver is not doing bad. Labs don't always tell the whole story. I can attest to that.

Debbie

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Actually, the biopsies are supposed to be guided by Ultra Sound. So, the Dr. is supposed to be getting a piece or three from a part that looks bad. But, I would think that it is very easy to snag a piece that was not very damaged.Gloria

when they take a liver biopsy, don't they see everything? I mean if the take only a part, maybe that part would not have scaring, but maybe others would, so you would not get a right diagnosis. Is this right?On Jan 22, 2011, at 5:01 PM, debbiecurwick wrote:

Don,

Question for you. You've yet to have a liver biopsy done, Right. You say you're labs are staying in the normal range. Well my labs have been in the normal range and look at the condition of my liver. Cirrhosis compensated stage. What is keeping you from having a liver biopsy if you haven't had one done yet. Mine went from grade 1 stage 1 to grade 3 stage 4 cirrhosis in just 2 yrs. Unless when they did my first biopsy they got the sample from an area that didn't show as much damage. Who knows. So how can you say your liver is not doing bad. Labs don't always tell the whole story. I can attest to that.

Debbie

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No, you are right...  I remember pitching a fit during the biopsy when Dr. Dreamy went to stick me the second time...  He explained the whole wanting to make sure they had an accurate idea of what they were looking at and since that needle stick just gets a small area they move the needle several inches to get a stick in another spot.  That way either one or the other or both will show the issues.  

On Sat, Jan 22, 2011 at 10:00 PM, debbiecurwick <debbiecurwick@...> wrote:

 

Thank you Teri, at least now I know I was right and not being missleading on this.

> > >

> > > > Don,

> > > >

> > > > Question for you. You've yet to have a liver biopsy done, Right. You

> > say you're labs are staying in the normal range. Well my labs have been in

> > the normal range and look at the condition of my liver. Cirrhosis

> > compensated stage. What is keeping you from having a liver biopsy if you

> > haven't had one done yet. Mine went from grade 1 stage 1 to grade 3 stage 4

> > cirrhosis in just 2 yrs. Unless when they did my first biopsy they got the

> > sample from an area that didn't show as much damage. Who knows. So how can

> > you say your liver is not doing bad. Labs don't always tell the whole story.

> > I can attest to that.

> > > >

> > > > Debbie

> > > >

> > > >

> > >

> >

> >

> >

> >

> > ------------------------------------

> >

> >

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That makes sence.

Ok, I understand.

Thank you

love

don in ks

From: debbiecurwick <debbiecurwick@...>Subject: [ ] Re: Don/Labs Date: Saturday, January 22, 2011, 9:29 PM

The biopsy is done with a hollow needle that goes into the liver and takes a small amount. Some parts of the liver may not have as much scarring as another place would, so if they happen to get a sample from an area that isn't as scarred it would give you a false reading so to speak. Does that make sense to you ? My hepatologist at the UW thinks that is what happened in my case.Debbie> > > Don,> > > > Question for you.

You've yet to have a liver biopsy done, Right. You say you're labs are staying in the normal range. Well my labs have been in the normal range and look at the condition of my liver. Cirrhosis compensated stage. What is keeping you from having a liver biopsy if you haven't had one done yet. Mine went from grade 1 stage 1 to grade 3 stage 4 cirrhosis in just 2 yrs. Unless when they did my first biopsy they got the sample from an area that didn't show as much damage. Who knows. So how can you say your liver is not doing bad. Labs don't always tell the whole story. I can attest to that.> > > > Debbie> > > >>------------------------------------

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DonThere is no way that the "scarring" is evenly anything!! That way, the liver can still function very well. After all, we can live on a very small portion of our livers, as long as we don't damage it. Remember also, that cirrhosis means dead!! It means, that portion of your liver is not getting blood and so the liver has to create new paths to cleanse the blood. Then of course, if the cirrhosis kills too much of the liver - that means either a transplant or death. So, if as you surmise, the scarring is evenly distributed, those of us that are at Stage 4 should be planning our funerals.Gloria

Hi Debbie

Im not sure that this is true.

Granted Im not a doctor, but it makes sence to me that the scaring would be evenly distributed throughout the liver.

Maybe someone else knows.

love

don in ks

From: debbiecurwick <debbiecurwick@...>Subject: [ ] Re: Don/Labs Date: Saturday, January 22, 2011, 9:29 PM

The biopsy is done with a hollow needle that goes into the liver and takes a small amount. Some parts of the liver may not have as much scarring as another place would, so if they happen to get a sample from an area that isn't as scarred it would give you a false reading so to speak. Does that make sense to you ? My hepatologist at the UW thinks that is what happened in my case.Debbie> > > Don,>

> > > Question for you. You've yet to have a liver biopsy done, Right. You say you're labs are staying in the normal range. Well my labs have been in the normal range and look at the condition of my liver. Cirrhosis compensated stage. What is keeping you from having a liver biopsy if you haven't had one done yet. Mine went from grade 1 stage 1 to grade 3 stage 4 cirrhosis in just 2 yrs. Unless when they did my first biopsy they got the sample from an area that didn't show as much damage. Who knows. So how can you say your liver is not doing bad. Labs don't always tell the whole story. I can attest to that.> > > > Debbie> > > >>------------------------------------

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Gloria,

I agree with you there. I think they got the samples from the wrong area. I now

have no clue as to how long it's been in cirrhosis.

Debbie

>

> Debbie

>

> I actually think that your 1st biopsy did slip and got a much better area. At

> least as long as you were not guzzling alcohol that whole 2 years.

>

> As I was told, Stage 3 is full bridging fibrosis. Stage 4, which I was at in

> Jan 2009, is cirrhotic. In fact, everything I read about the cancer is, it's

> directly as a result of the cirrhosis. So, who knows how long I had gone

> over?? There was the 3-1/2 yrs between tx's.

>

> Gloria

>

>

>

>

> ________________________________

>

>

> Don,

>

> Question for you. You've yet to have a liver biopsy done, Right. You say

you're

> labs are staying in the normal range. Well my labs have been in the normal

range

> and look at the condition of my liver. Cirrhosis compensated stage. What is

> keeping you from having a liver biopsy if you haven't had one done yet. Mine

> went from grade 1 stage 1 to grade 3 stage 4 cirrhosis in just 2 yrs. Unless

> when they did my first biopsy they got the sample from an area that didn't

show

> as much damage. Who knows. So how can you say your liver is not doing bad.

Labs

> don't always tell the whole story. I can attest to that.

>

> Debbie

>

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Share on other sites

Truthfully, I thought they were taking 3 little pieces; but, its guided and supposed to show the Dr. where to stick that needle. I certainly never had that needle stuck in me twice on the same test. If they had done that on my first biopsy, I think I would have hit that Dr. Now, the biopsy in early 2009 was like a Sunday picnic. That Dr. froze me and my expanded belly right down to the liver.Gloria

Nope Don she is right.. that's why they usually, usually stick you twice. Once the scarring starts the blood flow is obstructed a bit to that area... scarring tends to happen in groupings.

On Sat, Jan 22, 2011 at 9:32 PM, Christ <ludichrist2000@...> wrote:

Hi Debbie

Im not sure that this is true.

Granted Im not a doctor, but it makes sence to me that the scaring would be evenly distributed throughout the liver.

Maybe someone else knows.

love

don in ks

From: debbiecurwick <debbiecurwick@...>Subject: [ ] Re: Don/Labs

Date: Saturday, January 22, 2011, 9:29 PM

The biopsy is done with a hollow needle that goes into the liver and takes a small amount. Some parts of the liver may not have as much scarring as another place would, so if they happen to get a sample from an area that isn't as scarred it would give you a false reading so to speak. Does that make sense to you ? My hepatologist at the UW thinks that is what happened in my case.

Debbie> > > Don,>

> > > Question for you. You've yet to have a liver biopsy done, Right. You say you're labs are staying in the normal range. Well my labs have been in the normal range and look at the condition of my liver. Cirrhosis compensated stage. What is keeping you from having a liver biopsy if you haven't had one done yet. Mine went from grade 1 stage 1 to grade 3 stage 4 cirrhosis in just 2 yrs. Unless when they did my first biopsy they got the sample from an area that didn't show as much damage. Who knows. So how can you say your liver is not doing bad. Labs don't always tell the whole story. I can attest to that.

> > > > Debbie> > > >>------------------------------------

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