doc visit today - Tonni

[Guest guest]

Hi Tonni

A lot of doctors dont believe in Fibromyalgia because it is so hard to Diagnose.

But it is a fact the HCV and HCV treatment both go hand in hand with Fibromyalgia.

[i can find the medical articles for you if you want to read them.]

I havent done HCV treatment yet, but I have been DX'd with Firbomyalgia for 12 years, by 7 doctors, including my present GP and Gastro.

I am on Oxycontin 10 or 20 mg for it daily [depending on my needs].

Oxycontin is time release so I dont get stoned, and I take it as needed so I dont get addicted.

I strongly suspect that your body/bone pain is from the HCV also.

I did the Toradol and Lyrica both, [max dose], and neither of them helped.

I went to a pain management doctor last year, and he said that he didnt believe in Fibromyalgia - go figure.

I fired him fast.

If 2+2=4, I dont have time for a doctor who tells me it equals 5 - know-what-I-mean?

love

don in ks

so, saw PCP today and he says I do not have fybromyalgia or even rheumotoid arthritis.....says he has no idea what I have, for he has never heard of long term bone pain from the chemo.....seriously, I know I am not the only one here....He says that my shaky, shrinky feeling muscles, complete body BONE aches, and constant pain, fatigue and daily questionable ability to do anything more than get dressed, 2 years after stopping treatment withoput clearing is not soemthing he was ever taught about in med school....However, he know sI am sincere and has a plan, which is betetr than yesterday. Tordol 50 mg and Lyrica 75mg is all I have tried thus far...today he gave me Ultracet (tordol with tylenol at a higher dose than before). He also perscribed Relpax for the headaches/migranes that have now started. I am hoping they are a sinus thing that will be resolved with the outpatient surgery on the 18th. Beyond that he changed the 6 month labs GI

ordered and had me do more. Plus liver was slightly enlarged at last unltrasound, so he ordered another...funny how no one mentioned that to me before.GI and Rheumo docs are next month. Taking same list to them both and gonna find a way to get beyond this pain. It ain't depressing, as much as it p's me off to not know what I may or may not be able to do from minute to minute. I know one thing a day, unless it is a day that the Lyrica seems to give me a bit of a high, which then I get house cleaned and go down for 2 days after in pain; but hey, house gets cleaned, so well worth it considering how rare that occurs.DOES ANYONE HAVE THIS INNER, DEEP BONE PAIN THAT FEELS LIKE AN OUTLINE OF THE INNER BONE AND THAT ENTIRE INNER AREA OF EVERY BONE FROM ELBOWS TO FINGER TIPS AND PELVIS TO TOES CONSTANTLY ACHE? If so, do you have a name for it or an idea of anythign beyond burning hot baths that can touch the pain...without knocking me out, I have a

special needs son dependent on me, so must have 2 feet on the floor at all times.Thanks fo rhearing me out.Tonni