Hi Everyone

[Guest guest]

Hi Renonda--

I am about 3 weeks post-op and have experienced some nausea and

disequilibrium. Like you say, not really dizzy, but feeling off and

a little sick to your stomach. I have had meclizine prescribed for

this in the past, though others have recommended over the counter

motion sickness medicines like Dramamine. In both cases, these drugs

can cause sleepiness and care should be used when driving or the like.

I have found the feelings of nausea and disequilibrium have lessened

over the last couple of weeks, hopefully that will be the same for

too. Good luck.

> Hi group,

> I have a question for you all. My son is 1 wk. post-op, and

> is struggling with what I assume is vertigo/dizziness. He has a

> general feeling of nausea. In his words, " like being on a roller-

> coaster or elevator " ..Not exactly a dizzy feeling, but feels it in

> his stomach. We didnt have these issues after his 1st surgery, so

> we're not sure if theres anything that will help alleviate this

> problem. Is there anything over-the-counter to help with this, or

has

> anyone found something that helps at all? We go for a post-op appt.

> today, and I will ask his surgeon but I figured you all are the

> experts and might have a remedy that helped in some way. Any info

> would be greatly appreciated..Have a good day everyone....

> Sincerely,

> Renonda

> (s Mom)

[Guest guest]

I had that for weeks. We tried a motion sickness drug but it didn't do

much. It did go away after a few weeks.

Hope he feels better soon!

Amy

[Guest guest]

Hi Renonda,

I was recently treated for non-positional vertigo (I don't have c-toma, my hubby does). My doctor told me to try Dramamine. Hope that helps.

Michele, GMRenonda <nonnykay1@...> wrote:

Hi group,I have a question for you all. My son is 1 wk. post-op, and is struggling with what I assume is vertigo/dizziness. He has a general feeling of nausea. In his words,"like being on a roller-coaster or elevator"..Not exactly a dizzy feeling, but feels it in his stomach. We didnt have these issues after his 1st surgery, so we're not sure if theres anything that will help alleviate this problem. Is there anything over-the-counter to help with this, or has anyone found something that helps at all? We go for a post-op appt. today, and I will ask his surgeon but I figured you all are the experts and might have a remedy that helped in some way. Any info would be greatly appreciated..Have a good day everyone....Sincerely,Renonda(s Mom)

[Guest guest]

Hi Renonda,

My son's ENT gave him a seasick patch behind his healthy ear after

surgery and some sort of electronic bracelet. He wore both of these

for 3 days after surgery and he didn't have any dizziness and much

less naseau than he'd had with all his tube surgeries. I'm going to

request both of these for his next surgery since they seemed to work.

[Guest guest]

Hi ,

Thanks for the suggestions. I forgot that our ENT also mentioned that by pressing on the inside of each wrist for a few seconds, sometimes helps alleviate the nausea feeling. This must be a pressure point or something. He said it does help for some people. The day we tried it, was SO sick, it didnt seem to help. (and then, of course,I forgot about it until now...lol) In any case, something to keep in mind.

Sincerely,

Renonda

(s Mom)

[Guest guest]

- when you get your doctor's opinion on your stomach would you

please let me know too. As I have the same problem I look nine months pregnant at night and in the morning it's gone. I would appreciate your

reply. Thank you. H.

[Guest guest]

Hi :

Glad your enzymes went down.....Glad you are happy.

What is the weather like? We are getting ready for a n'easter--- windy, and alot of snow!

Have a good night.

Gaynel

[Guest guest]

,

Great news. Keep doing whatever you are doing it obviously is working.

[Guest guest]

Hi Trish

The only one that I can think of is leukemia

Hope it goes well and tell her just to relax she will be fine

We are all behind her.

Good luck

in MontrealPost your free ad now! Canada Personals

[Guest guest]

-Trish,

For more info on autoimmune diseases in general try www.aarda.org -

that website lists some 80 diseases or disorders that are considered

to be autoimmune. Would be a starting point. Hope that helps.

nne

-- In , " kissemesoftly "

<son_ya100@h...> wrote:

> Hi Everyone

>

> I have a reporter coming tomorrow to interview Kelsey for a local

> newspaper, March is Liver awareness month.

>

> I wanted the reporter to put a blurb in the article that I am

looking

> to start a support group for children with Autoimmune

Disease/Chronic

> Ilnesses. The ones I can think of are:

>

> Fibromyalgia

> Arthritis

> Chronic Fatigue

> Diabetes

> Chronic Active Hepatitis

>

> Are there any other ones U can think of I can add to this list?

> Thanks a bunch

> Trish

[Guest guest]

Try this website

www.aarda.org

American Autoimmune Related Diseases Association

Cora

> Hi Everyone

>

> I have a reporter coming tomorrow to interview Kelsey for a local

> newspaper, March is Liver awareness month.

>

> I wanted the reporter to put a blurb in the article that I am

looking

> to start a support group for children with Autoimmune

Disease/Chronic

> Ilnesses. The ones I can think of are:

>

> Fibromyalgia

> Arthritis

> Chronic Fatigue

> Diabetes

> Chronic Active Hepatitis

>

> Are there any other ones U can think of I can add to this list?

> Thanks a bunch

> Trish

[Guest guest]

Tracie,

I had a 'ball' with you in Texas! Well maybe you do not realize it but perhaps

the extra cash with over time is a blessing in disguise!

Hope all goes well " at home " soon!

Now you may jsut want to advertise the positions open here, PI and Pharm Tech

Talk and PTCB board, Gale's site and any other tech site that you visit.

Good luck and please stay in touch,

Love

Jeanetta

" Tracie S. " <ladycpht01@...> wrote:

Hello Jeanetta and everyone out there,

Sorry that I havent been around much. Theres been so much going on

since I got back from Texas and South Carolina. We have three techs

leaving the hospital I work in and because they havent really found

any replacements just yet, we have now been told that overtime

restrictions will be lifted until further notice. Also my family life

has taken on a real rocky road. Things will be difficult for a time

being, but say a few prayers for me and Im sure I will pull through

all with flying colors. From time to time, I will be popping in to

take a look and see what I am missing, but please know that I will be

thinking of everyone while I am away. If any should need me for

anything just leave an email and I will return the emails as soon as

I can.

I will see everyone soon. Till then Take care, good luck to all

that are studying for the upcoming exams. I will be thinking of you

all....

Respectfully,

Tracie Smullen,

LadyCpht

[Guest guest]

Hello and welcome! I am glad you found all of us. I haven't been a

member on this site for long but they make you feel at home

immediately! You will learn so much! Hugs, Cindee

> Hello Everyone

> My name is and am from Australia...My granddaughter has just

been diagnosed with cholesteatoma; and am hoping that we can learn by

your experiences..

> Regards

>

[Guest guest]

Hi ,

as a fellow aussie I was please to see there is someone else in Aus

I could chat to. how is your grand-daughter doing?

Hope you have been able to find out the info you need, even doing a

search on google, as you have probably found, will get you some

pretty decent, accurate and informative advice. I have already had a

ctoma removed just over ten years ago from an excellent surgeon in

Brisbane where I live. Unluckily for me I have just found out it has

recurred but, be rest assured for your grand-daughter, this is not

common to have it come back regardless of all the postings you may

have seen on the CToma Group web site. I was early teens at the time

of my surgery, had no complications, regained around 50% of my

hearing and apart from a sore head for a week or two have no regrets

for having it removed as we did.

just thought I'd drop a line, hope things go well for your family,

Kerryn.

> Hello Everyone

> My name is and am from Australia...My granddaughter has just

been diagnosed with cholesteatoma; and am hoping that we can learn

by your experiences..

> Regards

>

[Guest guest]

Hi Georgina:

Sorry to hear that Josh is feeling so crappy! It just plain stinks! I hope

and pray that the increase in dosages and TEMPORARY Prednisone do the trick

and get him feeling better ASAP.

Thanks for all the articles. I am looking forward to reading them all.

Take care.

Patty

[Guest guest]

Georgina:

I'll be praying for Josh and hoping that things turn around for him. I

hope that he is able to return to school today and doesn't feel too

badly. Please tell him we are thinking of him. Take care.

and Rob 15 Spondy

On Tue, 21 Sep 2004 18:26:55 -1000 Georgina <gmckin@...> writes:

Aloha,

Sorry about all the posts this evening. Don't mean to overwhelm anyone.

Just that it's been a while since I've been online and there was plenty

to catch up on. I know they all come in at once but please ... read them

at your own pace. Maybe save them all in one folder to have a look at

when you have some free time?

As usual, these days, I'm running. The three of us are off to the public

library in a moment, as soon as this gets sent, as Tuesday is their

late-night and they stay open til 8pm.

I wanted to say thank you to everyone, for all of your supportive

emails. Josh and I will sit down to read each one when we get back. He's

had a rough couple of weeks. Friday he had a day off from school but he

missed Wednesday and Thursday, as his arthritis was really holding him

back. Yesterday and today, too ... but he says he's ready to go back in

tomorrow.

Yesterday he took the first dose of a TEMPORARY return to Prednisone.

10mgs a day just for seven days. Hopefully all will work according to

that plan. This morning he actually took a shower, instead of a bath.

Still felt like he had a fever though, early on. It's been hovering

around 102 degrees every time we check, usually twice a day. Waking up

feeling just awful, morning stiffness lasting until around 11:30-12:00

(so we've been calling it daytime stiffness, instead) and then he'd feel

a bit better but still had a lot of stiff, sore joints, until the rash

and fever returned at around 6:30-7:00pm.

Not a fun time ... but all of your emails and warm thoughts did make him

feel a bit better. So, of course, has the prednisone. Again. He's also

still taking the increased dose of Plaquenil. And doctor said to go back

to weekly MTX again oh well.

Anyway, the kids are ready to go. Thank you, everyone.

With Much Aloha,

Georgina

[Guest guest]

Hi , I had my TRHR 3 months ago and for the last 2-3 weeks I

have been having pain there also. Sometimes it makes me want to sit

down and not walk. But it usually passes within an hour or so. My

doctor did an xray just to look, it was normal. He said that it is

common and it should go away. Did you have this pain at 3 months??

Have you seen your xrays and how far that stem goes into your thigh

bone? My pain is right at the end of the stem where the most

pressure is. I hope your fine, let us know what your Doctor says.

Take care,

Becky

[Guest guest]

...

Have you been to the doctor? I am so sorry you're not feeling well,

what a rotten time of the year for it... wish I knew what would make

you better!

So go to the doctor, stay warm and dry, and make other people wait on

you, okay? Meanwhile, you will be in my prayers...

Shirl

> I am sorry not to have been writing much but am not feeling to well.

> Every time I eat I want to throw up, can't sleep,have a pain in my

left side

> that is bugging me and can't seem to focus well. I also have a

metalic taste

> in my mouth that makes everything taste bad.

> If anyone has any ideas what is going on please let me know. I have

been off

> Prednisone for a month now but am still taking 50mg of Imuran. My

pancreas has

> something on it and when they did my ultrasound for my galbladder

they told

> me i needed to get it checked again.

> Well going to take me meds.

> Good morning and Hi to everyone,

> the WV hillbilly

[Guest guest]

Jeanetta,

Thank you for this post. I'd written my own personal letter to Mr. Medina

regarding his inappropriateness and was going to cc: it to you but you beat me

to the punch. I wish I could have directed this to you and Joe only because I

don't want to perpetuate the issue into a larger one. Please accept my apology

ahead of time but I don't have your personal e-mail.

I'm a board member for large pharmacy organization in a New England state and am

often asked by young technicians where they can go for help. Your site is on the

top of the links that I provide but if negative, derogatory posts continue as

Mr. Medina has provided lately, I'll no longer send people here.

Joe, thanks in advance for toning yourself down.

Tip of the day to everyone: After creating a post, read what you wrote several

times over ..think about what you wrote.. use delete key as needed.

ShirleyE CPhT

Re: Hi Everyone

Dear Mr Joe Medina,

I am responding to this post:

>

> Hi Everyone,

>

> Just wanted you all to know that Tech Lectures now has a new on-line

> Internet Forum. Also that I would like to be a part of this forum in

> both an educational sense and in simply helping promote our

> profession.

>

> PharmacyTechnician/

>

> As for the upcoming AAPT convention in Reno, I would like everyone to

> be the first to know that I have been invited and accepted the honor

> of being the keynote speaker and presenter of several CE offerings.

> I look forward to meeting many of you in person and buying the first

> round of drinks.

>

> Joe Medina, CPhT, BS Pharmacy

> President/Founder Tech Lectures

> http://www.techlectures.com

[Guest guest]

Dear Ms Ellisor,

I am so proud and honored to know that you have sent

your young technicians to my site. I am also

embarrassed and saddened to learn that you may stop

sending them here, because of the behavior of a few.

Please know that I and my modertor have done and will

continue to do all that we can to keep the tone to a

professional level.

This, as all sites, takes much time and effort to man

and to preserve and to surveil. My heart aches to know

that others are judging my site on the actions of a

few. Please take a GOOD look through the files and

previous posts, to know and learn the actions of many

who have helped this site to grow to be honest,

helpful, and have integrity. My TEXPERTS and moderator

are to be commended.

Thank you so very much for your post. My private

email is the same as on my member list:

rxjm2002@...

I did not address this privately because the comments

were not private, but in public. I felt I owed this to

my readers.

Joe, we all make mistakes, even I. So please do not

consider this or my previous post to be hurtful, but

rather helpful.

Thank you all,

Jeanetta Mastron CPhT BS Chem

Pharm Tech Educator

Founder/Owner of this site

--- Shirley Ellisor <shirleyellisor@...>

wrote:

> Jeanetta,

>

> Thank you for this post. I'd written my own personal

> letter to Mr. Medina regarding his inappropriateness

> and was going to cc: it to you but you beat me to

> the punch. I wish I could have directed this to you

> and Joe only because I don't want to perpetuate the

> issue into a larger one. Please accept my apology

> ahead of time but I don't have your personal e-mail.

>

>

> I'm a board member for large pharmacy organization

> in a New England state and am often asked by young

> technicians where they can go for help. Your site is

> on the top of the links that I provide but if

> negative, derogatory posts continue as Mr. Medina

> has provided lately, I'll no longer send people

> here.

>

> Joe, thanks in advance for toning yourself down.

>

> Tip of the day to everyone: After creating a post,

> read what you wrote several times over ..think about

> what you wrote.. use delete key as needed.

>

> ShirleyE CPhT

> Re: Hi Everyone

>

>

[Guest guest]

Hi ,

---

My name is Diane. I am mid 40's and am going in for my 6th surgery

for ctoma since first one in 1997. I have experienced the same type

of pain you are talking about each time i've had surgery. Keep taking

your pain meds on time but what I did that helped was to take

ibuprofen(advil) inbetween the pain meds. This seemed to boost

the pain relief- it took about two weeks for that to stop. I also

have gone back for reconstruction for my hearing and it has worked

it was great to get my hearing back. Unfortunately the c toma keeps

coming back and they keep having to remove it and rebuild my hearing.

I feel for you - I am so not looking forward to June 24-05 but the

pain from the infected mastoid bone is so strong now I am looking

forward to having this removed again. Good luck I hope you feel

better soon.

n cholesteatoma , " shamrock_01 " <shamrock_01@y...>

wrote:

> My name is . I am 25 year old female that just recently had my

> 3rd ctoma surgery on my right ear, on 6/10/05. The last surgery I

> had for this disease was when I was 11 and 12 and it was for both

> ears. But, what I am wondering is why I am in more pain now than I

> ever was? Or maybe it was too long ago to remember? I know it has

> only been a week but I have these SHARP pains that actually make me

> want to scream. I had them a lot the first few days and now they

> are less, but I keep getting these sharp pains that are more in my

> face than in my ear? Does anyone else have this?

>

> I have to start Floxin today. I had to wait a week. I am still

> quite " dizzy " and CANNOT wait for that to go away. I guess I'm

just

> wondering if this is normal? I thought I was a pro...

>

> When I was younger the ctoma eroded 2 of the 3 bones and I went

thru

> the reconstruction to get some hearing back. Doc said that when he

> went back in this time to clear the ctoma and rebuild my ear canal

> and ear drum that those 2 bones are not there and he saved a little

> of the 3rd bone, but I am not COMPLETELY deaf in my right ear. He

> said maybe 1-2 more surgerys are needed to see if he can rebuild my

> ear, but he doesn't know if I will ever regain hearing? Do you

> think it is worth going in again? I will find more out on June

> 16th...

>

> Sorry this is so long. If anyone can help clear my head that will

> be just great!

>

>

[Guest guest]

Hi Friskoe:

Your welcome here in our forum. Hope to here from you about coconut. God bless

you.

Am from the Philippines.

Respectfully yours,

Lookyee, Singha

friskoe_lyf <friskoe_lyf@...> wrote:

Just wanted to say hello to you all. I'm new to this forum although I

know coconut (I hope) well.

My sister gave me Dr Coconut web site and from his web site I found

the

link to this PB.

At this moment, I don't know how to navigate this PB yet. That's why

I

am not responding to anyone's post.

Hope you stay well, and cheer to you all (with a young coconut juice

as

my drink)

Aloha,

[Guest guest]

Rosemary

May your Thanksgiving be Blessed

Cheri

-- hi everyone

Hello to everyone,

I am posting to wish everyone a very Happy Thanksgiving, and will

be with my family so may not be on for a few days. I am trying to keep

up the reading if not posting all the time. Glad to be back with all

of you old and new friends. Have a great holiday,

Rosemary

[Guest guest]

Hi anyway Tat!!! Happy Holidays. Holler at me on IM sometime.

Alley

[Guest guest]

Hi anyway Tat!!! Happy Holidays. Holler at me on IM sometime.

Alley