Guest guest Posted July 26, 2003 Report Share Posted July 26, 2003 One thing I didn't mention in my post is that I have horrendous pain in the area of my liver but in my case they are pretty sure it is from my pancreas and not my liver. I have had pain in the area of my liver 24 hours a day since the acute pancreatitis attacks returned last July. I have been under the care of a pain management doctor since November because I require narcotic pain medication daily. Even with narcotic pain medication sometimes the pain is excruciating. This level of pain is consistent with chronic pancreatitis, not liver disease. I have had pain that I think may be my liver but it is totally different. It's kind of a heavy sort of pain and it is worse when I lie down. I haven't had it lately but I think that's cause the meds are helping my liver and it's no longer inflamed like it was prior to my diagnosis and when I first started the meds. Tra - have they checked your gallbladder and/or your pancreas? My old GI tried to blame all my pain, nausea, and vomiting on my liver once the biopsy revealed that I have AIH. He told me that it was unusual to have the level of pain that I had from liver disease but that it was possible. He was convinced that my pancreas was 'perfectly healthy' and that I absolutely did not have chronic pancreatitis, so the pain had to be totally from the liver. WRONG! All the films over the summer last year (MRI, MRCP, x-rays, ultrasound, and CT scans) didn't show any problems with the pancreas. However, with my latest attacks, the ct scan did show very minimal damage to the pancreas - I guess it took a solid year of acute pancreatitis attacks for the damage to get to the point that it would show on film. Anyway, my new GI says that there is no doubt about the fact that I absolutely do have chronic pancreatitis in addition to the autoimmune hepatitis. He feels very strongly that the pain, nausea, and vomiting are caused by the pancreas and NOT the liver. He believes the AIH is pretty much under control and the huge spikes in my liver enzymes (up to the high 700's) are caused by my pancreas flairing up, not by the AIH. I have to say that I think the new GI is correct because I have been better since I have been under his care and began the two new meds for my pancreas. By the way, both prednisone and imuran can cause pancreatitis. My GI doc doesn't think the meds caused it in my case because when the acute panc attacks returned last July I wasn't on any meds except my vitamins and plaquenil for lupus. However, my new GI thinks that prednisone actually poses more of a risk for my pancreas than the imuran so he plans to slowly lower my prednisone and hopefully get me off of it totally several months down the road. I am currently on 100 mg of imuran (since June 25th) and 10 mg of prednisone. I had labs done on July 15th and my liver enzymes and alk phos were great - probably the best they have been since I was diagnosed with AIH in January. W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2005 Report Share Posted December 28, 2005 Connie, Hmmmm, You are the first one who has described what I have been feeling about the liver pain, and reactions exactly to the prednisone! It is terribly frustrating. I am on 40 mg of prednisone, hopefully only for a week for that crazy sinus infection( which someone else wrote about today also.). I hope to be off of it, in 2 weeks. Do talk to your doctors, or other doctors. Thank you for confirming that neither the pain nor the prednisone reaction is in my head. I am not going crazy! Clara [ ] liver pain I also have had liver pain. To the point I can not sleep on my right side. I took pain pills for the pain. My Dr said it was the covering of the liver or shell as she put it. When my liver tests are up I have more pain, and also if I bend over. Most of my pain has gone away sence my prednisone was increased to 30mg. I have also have alot of side effects of the Prednisone. I have so much swelling that I can hardly look sideways. cant even touch my back. My fatigue is at its worst. I get short of breath. I hate taking the prednisone, I think I will talk to my Hep. Doc and see if something else can be done. I have been on it for 8 months now. How much do these Docs. think we can tollerate. I quess I am just frustrated with the way I feel all the time. Connie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2005 Report Share Posted December 29, 2005 I took prednisone for yrs. It is frustrating. The medicine works great but the side effects can be awful.I gained a 100lbs and am slowly loosing it. Hope you feel better soon. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2008 Report Share Posted September 9, 2008 I'm hoping that someone that shed some light on this topic. For almost 2 yrs now, I've had pain on my right side right under my ribs. It comes & goes but lately after starting this program it's actually gotten worse. When I bend or stretch, it actually hurts as well. I've had a CT & Ultrasound last yrear & everything looked fine. Last week I had an MRI and I get the results next week. I asked my doctor abt liver pain & she says that the pain there is due to my intestines & gas. So is there really such a thing as liver pain. And what can i do about it? I was reading that increase in fats worsen it so could the diet be making it worse? Or perhaps the detox is too strong for the liver to handle? Please advice what I should do to protect my liver. Would taking milk thistle help? I'm really quite scared. My aunt died of liver damage at 46 and I'm only 36 with little kids. Many thanks Shirin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2008 Report Share Posted September 10, 2008 Very interesting. I have that same exact pain, have had MRIs, CAT scans etc... and have always been told that the liver does not hurt, and that it is probably a muscle. It would hurt mainly when I took pain medications such as perkoset for endometriosis. Now I understand that it actually could be liver pains... which makes sense b/c it is hard for the liver to process the perkoset. I no longer take perkoset, mainly because my pain is much less since on the anti candida diet!!! This is HUGE for anyone w/ endometriosis!!! I still take something called Vicoprofen when the pain is bad, but it has gotten much better. Vicoprofen is vicoden and ibuprofen... not great to still need pain meds, but I am getting there! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2008 Report Share Posted September 10, 2008 > > I'm hoping that someone that shed some light on this topic. For > almost 2 yrs now, I've had pain on my right side right under my ribs. It comes & goes but lately after starting this program it's actually gotten worse. When I bend or stretch, it actually hurts as well. > > I've had a CT & Ultrasound last yrear & everything looked fine. Last week I had an MRI and I get the results next week. I asked my doctor abt liver pain & she says that the pain there is due to my intestines & gas. > So is there really such a thing as liver pain. And what can i do > about it? I was reading that increase in fats worsen it so could the diet be making it worse? Or perhaps the detox is too strong for the liver to handle? > > Please advice what I should do to protect my liver. Would taking milk thistle help? +++Hi Shirin. It is common for the liver to hurt more when starting on this program because of the high numbers of toxins which have to be handled by the liver. I had terrible liver pains when I was on the program too. There are a number of things on this program which help the liver as follows: 1) coffee enemas 2) Electrolyte Drink 3) dry skin brushing or jumping rope or rebounding on a mini trampoline 4) " good " fats along with other oil supplements (omega 3, vitamins A, D & E) 5) Epsom salt baths I have also just added another good treatment, which is Castor Oil Packs, which I recommend you do: http://www.healingnaturallybybee.com/articles/pack.php Also you can drink 4 cups of Milk Thistle Tea per day to help support the liver. But the pains might not diminish until you are through the worst of the die-off/healing/detoxifying symptoms. > > I'm really quite scared. My aunt died of liver damage at 46 and I'm > only 36 with little kids. Don't be concern Shirin. You are in control and you are helping your liver do better. You are on the best diet for helping your liver, or your total health for that matter. It just takes time, patience and persistence. Luv, Bee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2008 Report Share Posted September 10, 2008 > > Very interesting. I have that same exact pain, have had MRIs, CAT scans > etc... and have always been told that the liver does not hurt, and that it is > probably a muscle. It would hurt mainly when I took pain medications such as > perkoset for endometriosis. Now I understand that it actually could be liver > pains... which makes sense b/c it is hard for the liver to process the perkoset. > I no longer take perkoset, mainly because my pain is much less since on the > anti candida diet!!! This is HUGE for anyone w/ endometriosis!!! I still take > something called Vicoprofen when the pain is bad, but it has gotten much > better. Vicoprofen is vicoden and ibuprofen... not great to still need pain meds, > but I am getting there! Hi . My friend's son was put in intensive care at 10 years old, for low liver function and his liver hurt bad. I'd been telling her since he was born that he had candida, but she wouldn't listen to me. The hospital did all kinds of tests and couldn't find anything wrong with im. My friend finally took him to a naturopath who put him on the candida program. 2 years later and his liver function is perfect! Go figure. That's good you're trying to get off the pain meds . You will succeed; just keep on the program and as your body gets stronger you will find less need for pain meds. The sooner, the better. But I understand what it's like to have bad pain. Then I just wanted someone to hit me over the head with a hammer! Instead I also took pain meds, just anything to not have the pain! The best to you, Bee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2008 Report Share Posted September 10, 2008 > > Very interesting. I have that same exact pain, have had MRIs, CAT scans > etc... and have always been told that the liver does not hurt, and that it is > probably a muscle. It would hurt mainly when I took pain medications such as > perkoset for endometriosis. Now I understand that it actually could be liver > pains... which makes sense b/c it is hard for the liver to process the perkoset. > I no longer take perkoset, mainly because my pain is much less since on the > anti candida diet!!! This is HUGE for anyone w/ endometriosis!!! I still take > something called Vicoprofen when the pain is bad, but it has gotten much > better. Vicoprofen is vicoden and ibuprofen... not great to still need pain meds, > but I am getting there! , if you have endometriosis I recommend you take extra vitamin A for 2-3 months. Take 60,000 - 90,000 IUs in split doses daily for 1 month; stop taking it for 2 days and do another month, and so on. Also ensure you are taking omega 3 and vitamin D from cod liver oil, or fish oil and enough sun exposure during the Summer. After 2-3 months lower vitamin A to the usual doses of 20,000 - 30,000 IUs per day. Buy halibut, cod or shark liver oil capsules which only contain vitamin A and not vitamin D. For more information about women's health see this article too: http://www.healingnaturallybybee.com/articles/women7.php Bee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2008 Report Share Posted September 10, 2008 What time is best to do the castor oil packs? Should it be after a meal or before a meal? I've still been a coward & not able to do even the water enema so cant even imagine doing the coffee yet. I have read amazing things about the coffee enema. I wish there was someone who could do it for me.... Anyway, I've ordered the bulb type enema from the site & it'll arrive in 10 to 20 days. Thank you Bee. I really wonder how u manage to patiently answer everyone's questions. I will go hunting for the castor oil & milk thistle this weekend. I've gotten to know the people at some health stores due to my repeated visits, so I can just ring them... haha... Shirin > There are a number of things on this program which help the liver as > follows: > 1) coffee enemas > 2) Electrolyte Drink > 3) dry skin brushing or jumping rope or rebounding on a mini > trampoline > 4) " good " fats along with other oil supplements (omega 3, vitamins A, > D & E) > 5) Epsom salt baths > > I have also just added another good treatment, which is Castor Oil > Packs, which I recommend you do: > http://www.healingnaturallybybee.com/articles/pack.php > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2008 Report Share Posted September 11, 2008 > > What time is best to do the castor oil packs? Should it be after a > meal or before a meal? +++Hi Shirin. It doesn't matter when you do them, but it is good to get into a routine that works well in your schedule. > > I've still been a coward & not able to do even the water enema so > cant even imagine doing the coffee yet. I have read amazing things > about the coffee enema. I wish there was someone who could do it for me.... Anyway, I've ordered the bulb type enema from the site & it'll arrive in 10 to 20 days. +++That's great! > > Thank you Bee. I really wonder how u manage to patiently answer > everyone's questions. +++I am patient because I was very sick with candida so I understand. > > I will go hunting for the castor oil & milk thistle this weekend. > I've gotten to know the people at some health stores due to my > repeated visits, so I can just ring them... haha... Great! Quote Link to comment Share on other sites More sharing options...
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