Thanks

[Guest guest]

Dear Aubyn, I cannot tell you how happy I am for you that you will not have to have a icd. I can't imagine the joy this must bring to your life and to your family. I am sorry that you found little if any comfort on this board as this board helped to save my life a few years ago.

I wandered onto this board on one of the worst days of my life. I was scared, angry, disgusted, full of self pity, and any other feel you can put in there. I hated my icd, my friends and my family. I was tired of being sick and feeling lousy. My brain was not letting me remember much and I had forgot a lot of my skills, like sewing, crafting, and such. I oured my heart out to this board. I t hink it was eady at the time as know one new who I was. Within a matter of hours I had support and started developing friends. Some of them weird, some very religious telling me how I had sinned and God was paying me back, etc., etc. There was Bill, Bobby who then had a boat and lived in a different state, the was Sue and Becky, Turk, Stacie, and many that I can't even remember right this minute. What I do remember is they offered me a place to be and listened.

Through the years named have changed and people have come and gone. It was the rule that we didn't do religion as it caused fome uproar and we agreed not to do politics and that is not or purpose. Bill always supplied excellent jokes, Bobby was always fishing or floating, heck we even planned virtual prom.

I wish you well and the best of health. If I remeber correctly you are taking the drug anironin, pls forgive spelling. I had hopped it would be my wonder drug too but I had a terrible reaction to it and it gave me Lupus. They say for those who can take it it is wonderful. My you find peace in your health and joy in your life for all the years to come.

I hope you will not leave us, but that is your choice.

Sharon in Ohio

[Guest guest]

I have been trying to stay out of this, and I don't want to say anything about the politics or my personal feelings towards the United States, but I will say that I feel that it is an inappropriate place to go into your own personal beliefs. That being said, I am leaving the group, once I figure out how, as I found some people less than supportive with me when I joined, and I don't have a CID, and it doesn't look like I will be having one. OH YEAH, not to mention the fact that it is a public list, and the porn, spam and such that has come into my house since joining this list.

Thanks for not much, except , her I will miss.

Aubyn

Re: thanks

I for one am very upset with the group and some of the remarks that have been made on here about the war and politics in general. This is not what we are here for. We are here for support and friendship and to help each other through sharing our feelings regarding icds.

I am very proud to be an American. I consider myself blessed to live in a country where everyone has the right to voice there opinion on what is going on in the world and how we feel about world wide situations and our own government. For that right many of our families have fought in various wars to give us that freedom. I hate war and killing. I hate knowing that in order to protect our freedom that many of our finest young people will have to put their lives on the line. My husband was in the Air Force, my oldest son is still in the military. He served in the gulf war and is currently in Baghdad. WE are not allowed to know for sure where or what he is doing but he is there and does not feel it is wrong to be there. Many of my sons friends have wives back here in the states with families.

You may not stand behind the government decision to go to war but please stand behind our troops. I am disgusted with the attitude of many on this board, where did all the old memers go what has happened to this group. Please visit the Zapper homepage athttp://www.ZapLife.org

[Guest guest]

Dear Dave, If I made it sound like this is only an American group I am terrible sorry. As far as I know this group is for everyone and I do mean everyone regardless of race, creed, color or religious or politics. I hate to hear of anyone's country or race being slammed or put down. I know that at times I have got tired of hearing people whine about what they can't do to help themselves and that is a short point with me.

I am on my 4 or 5th icd I have lost count without looking it up. First I had one then I didn't. Then this then that so and so on. What I can tell you the most though is that this group is a great group of people from all over the world. No matter what our state of living is or our incomes or environments we are all pioneers in a medical field that is still very new and to me sometimes very scary and frightening. The support I have found from people like you a Bill and Bob and Duffy and Stacie has helped me over some very rough spots and to hang on when there seemed no reason to hang on.

In May of this year after a very extended stay in the hospital I came home unable to care for myself, unable to sit up or get up without help. Walking from my room to the potty caused me severe pain. I know longer cared what happened as I was so sick it hurt to be sick. I don't know exactly how it all happened but I got cards from people on this board from all over the world. Letters or encouragement, Some wonder lady sent me coupons for Ben & Jerry's ice cream. Do you know what that meant to me? It made me feel blessed and humble but yet strong. Today I planted flowers in my flower bed by myself. I tied my own shoes. My brain still messes things up now and then I still fear my icd firing, I still afraid to die but I am not afraid to live thanks to all of you.

Sharon in Ohio

[Guest guest]

It seems that a lot of people in this group think it is a American only group. P.S. It is not !

I am a proud American but try very hard to keep my own political beliefs out of this group as it is not the proper forum to foist ones own political views on all us sick persons with serous heart conditions.

I know I do not fit in this group so will try to just be a quite member most of the time and wait on the occasions were I can learn something about my heart problem or maybe help someone with there problems hopefully, like as if this was a support group.

Dave 41 in Maine

Re: thanks

I for one am very upset with the group and some of the remarks that have been made on here about the war and politics in general. This is not what we are here for. We are here for support and friendship and to help each other through sharing our feelings regarding icds.

I am very proud to be an American. I consider myself blessed to live in a country where everyone has the right to voice there opinion on what is going on in the world and how we feel about world wide situations and our own government. For that right many of our families have fought in various wars to give us that freedom. I hate war and killing. I hate knowing that in order to protect our freedom that many of our finest young people will have to put their lives on the line. My husband was in the Air Force, my oldest son is still in the military. He served in the gulf war and is currently in Baghdad. WE are not allowed to know for sure where or what he is doing but he is there and does not feel it is wrong to be there. Many of my sons friends have wives back here in the states with families.

You may not stand behind the government decision to go to war but please stand behind our troops. I am disgusted with the attitude of many on this board, where did all the old memers go what has happened to this group. Please visit the Zapper homepage athttp://www.ZapLife.org Please visit the Zapper homepage athttp://www.ZapLife.org

[Guest guest]

Dear Dave, I have your card and picture right here along side my computer. I thought I thanked you but if I didn't it wasn't because I was being rude, its just the brain isn't quite what it use to be. Sometimes I start doing something and right in the middle I forget what I was doing. That sure has scared me a lot. The doctors tell me its from all the medication and steroids and things will get clearer. I sure hope so.

I am a dog lover. I am not sure if I have shared this with you before. When I was in better health my husband and I both worked for the Humane Society of Greater Akron. We have fostered 22 dogs and all but one was able to be placed in a good home. I have 2 wire hair fox terriers. Our friend travels a great deal with his job so I keep his Golden retriever when he goes. So I generally have a least three dogs under foot and love them to pieces.

Sharon in Ohio

[Guest guest]

Dave, this action is very unusual. I have been on the board (either reading and sometimes posting) for a little over 4 years. I do not have an ICD, my husband does. I have found this group very helpful. If there is something that I do not like I hit delete and go on. My husband does not need the stress, and with being bi-polar I do not either. I knnow sometimes once you start reading something you don't it sticks. But try to just turn it away. This really has been a life saver for me and my husband. I do not like the spam, and hit the delete on that also.

Just putting my foot further in my mouth,

Gail

Re: thanks

I for one am very upset with the group and some of the remarks that have been made on here about the war and politics in general. This is not what we are here for. We are here for support and friendship and to help each other through sharing our feelings regarding icds.

I am very proud to be an American. I consider myself blessed to live in a country where everyone has the right to voice there opinion on what is going on in the world and how we feel about world wide situations and our own government. For that right many of our families have fought in various wars to give us that freedom. I hate war and killing. I hate knowing that in order to protect our freedom that many of our finest young people will have to put their lives on the line. My husband was in the Air Force, my oldest son is still in the military. He served in the gulf war and is currently in Baghdad. WE are not allowed to know for sure where or what he is doing but he is there and does not feel it is wrong to be there. Many of my sons friends have wives back here in the states with families.

You may not stand behind the government decision to go to war but please stand behind our troops. I am disgusted with the attitude of many on this board, where did all the old memers go what has happened to this group. Please visit the Zapper homepage athttp://www.ZapLife.org Please visit the Zapper homepage athttp://www.ZapLife.org Please visit the Zapper homepage athttp://www.ZapLife.org

[Guest guest]

I was one of those people who sent you a card Sharon.

I included a picture of me with my two dogs, I am not sure you even received it, but I did send one to you with a nice note as well. That is what I think this group should be all about. 100% support and 0% religion or politics.

Someone, somewhere is bound to be offended by a political commentary.

We are living in a scary time but I do not think this is the place for these type of discussions.

I respect and empathize with all that you have been through.

And know your a special lady with a big heart to be sure

And I was not directing my statement about this not being an American only group to anyone in particular.

It just seems to be a fairly subtle yet consistent theme in the group from time to time and I am sure that is why a lot of people from outside the USA are not in this group because there put off by this kind of banter and it may be that some members unfortunately like it that way. I am not going to try and express my opinions anymore as I am only adding more negative vibes to this group and that is not my intentions.

All my best to you Sharon and also to everyone else in this group,

Dave 41 in Maine

Re: thanks

Dear Dave, If I made it sound like this is only an American group I am terrible sorry. As far as I know this group is for everyone and I do mean everyone regardless of race, creed, color or religious or politics. I hate to hear of anyone's country or race being slammed or put down. I know that at times I have got tired of hearing people whine about what they can't do to help themselves and that is a short point with me.

I am on my 4 or 5th icd I have lost count without looking it up. First I had one then I didn't. Then this then that so and so on. What I can tell you the most though is that this group is a great group of people from all over the world. No matter what our state of living is or our incomes or environments we are all pioneers in a medical field that is still very new and to me sometimes very scary and frightening. The support I have found from people like you a Bill and Bob and Duffy and Stacie has helped me over some very rough spots and to hang on when there seemed no reason to hang on.

In May of this year after a very extended stay in the hospital I came home unable to care for myself, unable to sit up or get up without help. Walking from my room to the potty caused me severe pain. I know longer cared what happened as I was so sick it hurt to be sick. I don't know exactly how it all happened but I got cards from people on this board from all over the world. Letters or encouragement, Some wonder lady sent me coupons for Ben & Jerry's ice cream. Do you know what that meant to me? It made me feel blessed and humble but yet strong. Today I planted flowers in my flower bed by myself. I tied my own shoes. My brain still messes things up now and then I still fear my icd firing, I still afraid to die but I am not afraid to live thanks to all of you.

Sharon in OhioPlease visit the Zapper homepage athttp://www.ZapLife.org

[Guest guest]

Diane, If you still have a low fizz problem after setting to brew in a

warmer place, just wanted to repeat the suggestion that when you set up

your next brew use the starter from the bottom of the previous brew.

This will help to bring up the amount of fizz by bringing more yeast

into the mix:).

Luv, Sprite

" When you drink the water, remember the spring. "

 Chinese proverb

Check out my Kombucha Information page, it has links to all kinds of KT

info and more:

<A HREF= " http://www.geocities.com/ladyfangs.geo/Page5.html " >Sprite's

Kombucha Page</A>

[Guest guest]

Thanks, Sprite! I always add some of the previous brew to the new, but I

haven't been taking it from the bottom. It's amazing to me that no matter

how much you read about KT, there's always something new to learn!

>From: WaterSprite1@...

>Reply-kombucha tea

>kombucha tea

>Subject: Re: Thanks

>Date: Thu, 14 Oct 2004 02:36:59 -0400

>

>Diane, If you still have a low fizz problem after setting to brew in a

>warmer place, just wanted to repeat the suggestion that when you set up

>your next brew use the starter from the bottom of the previous brew.

>This will help to bring up the amount of fizz by bringing more yeast

>into the mix:).

>

>

>

>Luv, Sprite

> " When you drink the water, remember the spring. "

> Chinese proverb

>

>Check out my Kombucha Information page, it has links to all kinds of KT

>info and more:

><A HREF= " http://www.geocities.com/ladyfangs.geo/Page5.html " >Sprite's

>Kombucha Page</A>

>

>

>

>

>

>

>

_________________________________________________________________

Check out Election 2004 for up-to-date election news, plus voter tools and

more! http://special.msn.com/msn/election2004.armx

[Guest guest]

Diane H.

You're welcome:) Actually, if you follow the rule of thumb that 10% of

the brew should be starter, you would actually need 12.8 ounces of

starter for each one gallon batch. To my best recollection Jo of

Scotland, who was on this list, and may still be(?), used 1 quart of

starter, and she had a very potent strain of kombucha.

Luv, Sprite

" When you drink the water, remember the spring. "

 Chinese proverb

Check out my Kombucha Information page, it has links to all kinds of KT

info and more:

<A HREF= " http://www.geocities.com/ladyfangs.geo/Page5.html " >Sprite's

Kombucha Page</A>

[Guest guest]

I wish you nothing but good luck Diane. Happy holidays to you and I look forward to when I can leave the group as well. Everyone is very helpful and I'm thankful for this on this Thanksgiving day.

Heidi

thanks

Hi Everyone,I just wanted to say thanks for all the information and advice everyone has offered but I'm going to leave the group. Based on what my Cardiologist has told me I do not have a cardiac or BP problem and I am thankful for that. He also feels that I do not have PA either so there's no sense in taking up space. If for some reason things change I will rejoin the group. Best wishes to everyone and a special thanks to Dr. Grim.Take care.Dianne

[Guest guest]

In a message dated 11/25/2004 8:25:39 PM Eastern Standard Time, " diane "

<dianne12315@...> writes:

>

>

>Hi Everyone,

>

>I just wanted to say thanks for all the information and advice

>everyone has offered but I'm going to leave the group. Based on what

>my Cardiologist has told me I do not have a cardiac or BP problem and

>I am thankful for that.

He also feels that I do not have PA either so

>there's no sense in taking up space.

I never trust a Dr. who " feels " a disease is or is not present. I do trust one

who does the proper tests and then " knows' with a certain degree of certainty

that a disease is or is not present.

My guess is she will be back as the problem gets worse.

>

>If for some reason things change I will rejoin the group. Best wishes

>to everyone and a special thanks to Dr. Grim.

>

>Take care.

>Dianne

>

>

>

>

>

>

>

>

[Guest guest]

Ruth,

You have made such great progress! You should be proud of those

pictures!! You are my inspiration to post mine at week #8. I was

going to wait until week 12; and do a before and after. But, you can

see a big difference in yours! I want to see the difference too!!

So, stand proud, girlie! You worked hard and it shows! Keep up the

great attitude and intense workouts!

Just think of what the next 8 weeks will show!!

YAY!

P.S. It's hard not to get riled up - when people are talking out of

their as*.

>

> I just wanted to thank Katrina, and Juls for the kind

words

> of encouragement. It was not easy to post those pictures. They

still

> frighten me, but there is a bit of improvement. Apparently, I lose

> my back-fat first. LOL.

>

> FYI, people who come to a message board, then start critisizing

what

> the message board is all about, generally are just trying to get

> people riled up.

[Guest guest]

Ruth,

You have made such great progress! You should be proud of those

pictures!! You are my inspiration to post mine at week #8. I was

going to wait until week 12; and do a before and after. But, you can

see a big difference in yours! I want to see the difference too!!

So, stand proud, girlie! You worked hard and it shows! Keep up the

great attitude and intense workouts!

Just think of what the next 8 weeks will show!!

YAY!

P.S. It's hard not to get riled up - when people are talking out of

their as*.

>

> I just wanted to thank Katrina, and Juls for the kind

words

> of encouragement. It was not easy to post those pictures. They

still

> frighten me, but there is a bit of improvement. Apparently, I lose

> my back-fat first. LOL.

>

> FYI, people who come to a message board, then start critisizing

what

> the message board is all about, generally are just trying to get

> people riled up.

[Guest guest]

,

Thank you so much! You are too kind! You should totally post at week

8! Since I'm not really doing challenges, and I have so much weight

to lose, and I plan to live by BFL principles, I figured that I

would do pictures every 8 weeks and measurements every 4 weeks.

The more I look at the pictures, the better I feel. My husband

totally opened my eyes to my upper back. It's funny how hard it is

to see differences when you feel so blubbery, even when the pictures

are right there! I definitely see some differences. I've been

looking at them constantly! LOL. Maybe at some point I won't be

embarassed of them!

Thanks again, and don't worry about negativity on this board. I've

been posting here on and off for about 7 months and I've seen people

who don't post except to say something negative. Sometimes I think

they're " trolls " (people who post things just for the purpose of

pissing people off and starting arguments) and sometimes, they're

just negative. In both cases, it's best to ignore them. They will go

away.

Take care and I hope you're doing well!

-Ruth

> >

> > I just wanted to thank Katrina, and Juls for the kind

> words

> > of encouragement. It was not easy to post those pictures. They

> still

> > frighten me, but there is a bit of improvement. Apparently, I

lose

> > my back-fat first. LOL.

> >

> > FYI, people who come to a message board, then start critisizing

> what

> > the message board is all about, generally are just trying to get

> > people riled up.

[Guest guest]

Ruth,

I am doing a challenge for the first twelve weeks. I measure every 4

weeks too... and I only weigh myself once a week. I was going to

take pictures at the half way point this weekend, but we didn't end

up doing it. So, I will make the commitment to do that at 8 weeks

and post them - eeeeek!!! My pics of me in a bikini on the internet -

holy crap.

I am just following the principals too - and plan on doing so for

the rest of my life. I have about 40 more lbs of fat to lose - so,

it's not something that will happen overnight!

Anywho, thanks for your words of encouragement too! Doing great

here - it's nice to be back on schedule with eating!

> > >

> > > I just wanted to thank Katrina, and Juls for the kind

> > words

> > > of encouragement. It was not easy to post those pictures. They

> > still

> > > frighten me, but there is a bit of improvement. Apparently, I

> lose

> > > my back-fat first. LOL.

> > >

> > > FYI, people who come to a message board, then start

critisizing

> > what

> > > the message board is all about, generally are just trying to

get

> > > people riled up.

[Guest guest]

Usually autistic children have a copper/zinc imbalance (not all of them, but a good majority) and the copper is high. High copper will cause high anxiety. You can help this be giving extra zinc (zinc monomethionine is a very absorbable form). You can find some good zincs at www.vrp.com for a very reasonable price. I give my son 50 mg of zinc a day and he is 52 lbs. His anxiety is much better with the zinc. You can also try GABA, but I would give this in the evening. Jane Mama to 7 (ASD) and 4 (NT) -- Thanks Thanks to everyone that responded to my question about anxiety. I think that I may have worded it wrong, though.. I know that Tyler has sensory issues. I was just wondering if these may be along the same line as anxiety. I know that places that like make me a little anxious, too. That was why I was wondering if maybe anxiety medicine may help. If it has benefited any other autistic children. Also, if anyone know of a more natural way (vitamins, etc) to help with anxiety I would love some feed back. That is the way that I would prefer to go.

[Guest guest]

good thing this isn't the same as plumbing, because when you mix copper and zink you get electrolyses.

Thanks

Thanks to everyone that responded to my question about anxiety. I

think that I may have worded it wrong, though.. I know that Tyler

has sensory issues. I was just wondering if these may be along the

same line as anxiety. I know that places that like make me a little

anxious, too. That was why I was wondering if maybe anxiety medicine

may help. If it has benefited any other autistic children.

Also, if anyone know of a more natural way (vitamins, etc) to help

with anxiety I would love some feed back. That is the way that I

would prefer to go.

[Guest guest]

good thing this isn't the same as plumbing, because when you mix copper and zink you get electrolyses.

Thanks

Thanks to everyone that responded to my question about anxiety. I

think that I may have worded it wrong, though.. I know that Tyler

has sensory issues. I was just wondering if these may be along the

same line as anxiety. I know that places that like make me a little

anxious, too. That was why I was wondering if maybe anxiety medicine

may help. If it has benefited any other autistic children.

Also, if anyone know of a more natural way (vitamins, etc) to help

with anxiety I would love some feed back. That is the way that I

would prefer to go.

[Guest guest]

Dearest Sue,

WOW, What a woman, WOW, what a wife, WOW, what a parent, Wow, What a family. I sit here a 4:31A.M. reading about your incredible journey with tears of joy and sadness running down my face.

The Joy is for all that you are and all that you have had with your amazing life partner and family unit. For the love that fills you now even in this time of such great pain and the sorrowful days ahead but then joy again because it is that very love and the incredible experiences you have had that will lead you from this valley up onto new mountain. You have much to give fro all that you have shared.

The sadness that washes over me is the realization that I will leave this earth never knowing that type of love or closeness to my partner. Anyone can have love and be in love but to me when you combine love with total intimacy (the kind where there is one heart beat for the two of you. I am not talking about sex I am talk about total full blown intimacy. A total commitment to love and all its goods, bad, and ugly.

I believe Sue that you are one of the very richest woman I have ever meet and I admire your strength, and your courage and your devotion. You live with a full and loving heart.

I want you to now that I will cherish all that you have shared with us about Rich and your family and I will look around me with my eyes wide open. I will fill myself up with all the good that there is in my children and my grandchildren. My husband and I may never ever be close again but I will cherish what we have shared together in a different light.

In your grief you have made me think and you have made me cry and you have made me open my eyes.

May you continue to be blessed as Rich continues to be the wind beneath your wings and may his eagle soar for all eternity.

Love and Blessing Sharon in Ohio

[Guest guest]

Sue--I am sitting here with tears running down my face...the love that you and Rich shared (and still have) is priceless, thank you for allowing us a glimpse of what true love is.

Have a heart that never hardens, a temper that never tires, and a touch that never hurts."

-- Dickens

[Guest guest]

Dear Sue;

Thank you for sharing sooo much with us. I would just like to ditto what Sharon has shared. You are both such great writers - WOW is all I can say.

Sue I know you will get through this, you have such a positive outlook and so many beautiful memories. Rich is smiling, sending his love and is surrounded around you. What a beautiful passing, soaring above you and with you.

Please keep in touch,

~guin

[Guest guest]

Sue that was beautiful, glad to hear that Rich was spread around where he wanted to be. As for getting your pilots licence Go girl Go good luck to you in the future.Sue Owens <susie77@...> wrote:

Thanks to all you guys for your kind words about Rich. Now I got an incredible story to tell you. We belong to the local VFW post. One guy there is a pilot, and he volunteered to take me up in a small plane to scatter Rich's ashes where he wanted them to be. So today, even though it was horribly windy and I'd never been in a tiny plane before and have a horrible fear of heights, off we went. That poor little plane was getting SLAMMED by the winds. But somehow, Rich was there with me and I was not afraid.... I was exhilarated beyond belief! We flew up here where we live, and scattered his ashes in all his favorite places. By the river, some of my kids were waiting to salute him, holding up Owl feathers.... Owl being Rich's spirit guide. We waved back to them by tipping the wings of the little

teeny plane to them. We came by our house and scattered some ashes here, and also over the VFW hall. Then.... the pilot let ME fly! I flew the plane to Illinois and back, despite the terrible turblence and wind gusts. My only flying experience to now has been sitting in the back of a commercial jet eating airline peanuts and asking for more rum n cokes, stat! It was so awesome. Rich had worked for an airline for 17 yrs. before it went bankrupt, but had never flown in a small plane either until today. He was laughing the whole time, and was truly the wind beneath my wings. My heart and my spirit soared with his. Death is nothing, just a transition, he taught me this day. If the will is there, you can do anything you want to.... no matter how frightening it seems. Yeah, I know I still will have terrible sad days ahead, but at least I have this awesome day to cherish

forever. Guess who's gonna get her pilot's license? Thanks, friends, for being there for me thru all this sorrow and grief. Sue-- "She was not quite what you would call refined.She was not quite what you would call unrefined.She was the kind of person that keeps a parrot."-- Mark TwainRich and Sue OwensRich: http://www.nothnbut.net/~reo77/rich.htmlOur Birds: http://www.geocities.com/Yosemite/Meadows/7457/index3.htmlScience: http://www.nothnbut.net/~reo77/aurora.htmlFamily: http://www.nothnbut.net/~reo77/family.htmlPlease visit the Zapper homepage athttp://www.ZapLife.org

Find local movie times and trailers on Movies.

[Guest guest]

thats what we are here for Robin,, glad we could make you feel better,,

hugs

jaxrob7036 <rob7036@...> wrote:

Just want to thank those who responded to my messages. You all were kind and helpful when I was so dismayed.Sincerely,Robin Jackie

[Guest guest]

You are very welcome,, please feel free to ask any questions and we will all try to help you out with the answers,, hugs jaxfowlereagles2004 <fowlereagles2004@...> wrote: Thanks for the info on sex and hep and spread of it. Jackie