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mjh,

I had something called a neuro-physical assessment which is somewhat

like neurofeedback. You can learn more about it by visiting

www.themindspa.com .

Good luck.

Lamar

foxhillers@... wrote:

> Hiya all

> Have any of you used neurofeedback to deal with gran mal seizures

> and

> other brain disorders?

> Thanks

> mjh

>

>

>

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Zoe,

Yes, pls on the links. I'm about to order a unit for Charlie.... he so

wants to be successful in school and with his heavy meds and other learning

challenges, we hope this will be a good path for him.

mjh

In a message dated 7/13/02 2:59:43 PM Eastern Daylight Time,

Zll51@... writes:

>

> Hi Marilyn,

> I had neurofeedback training four years ago as I was getting my

> seizures under control (Mine were complex partials which did not

> often go into gran mals). My training was aimed at learning to

> consciously produce a pattern of brain wave activity (dubbed SMR)

> that is known to raise the seizure threshold. It was very helpful and

> improved some of my brain injury difficulties as well. The brain

> problems it helped with was my too extreme physical reactions to

> emotional upsets, began to level out and stayed improved over the

> years.

> I have started neurofeedback training again here a few weeks ago.

> This is similar training with a focus on improving my concentration

> and attention span. I'm real impressed with it thus far. The program

> we're using here is easier than what was used before.

> Over a period of about thirty years now, neurofeedback training is

> ranking about on par with drugs for improving seizure frequency and

> intensity. Do you want a bunch of links to sites and articles?

> Zoe

>

>

> > Hiya all

> > Have any of you used neurofeedback to deal with gran mal

> seizures and

> > other brain disorders?

> > Thanks

> >

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Guest guest

Hi Marilyn,

I had neurofeedback training four years ago as I was getting my

seizures under control (Mine were complex partials which did not

often go into gran mals). My training was aimed at learning to

consciously produce a pattern of brain wave activity (dubbed SMR)

that is known to raise the seizure threshold. It was very helpful and

improved some of my brain injury difficulties as well. The brain

problems it helped with was my too extreme physical reactions to

emotional upsets, began to level out and stayed improved over the

years.

I have started neurofeedback training again here a few weeks ago.

This is similar training with a focus on improving my concentration

and attention span. I'm real impressed with it thus far. The program

we're using here is easier than what was used before.

Over a period of about thirty years now, neurofeedback training is

ranking about on par with drugs for improving seizure frequency and

intensity. Do you want a bunch of links to sites and articles?

Zoe

> Hiya all

> Have any of you used neurofeedback to deal with gran mal

seizures and

> other brain disorders?

> Thanks

> mjh

>

>

>

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Guest guest

Marilyn,

I will fill your head with neurofeedback information. I had to

laugh when I came across the press release just posted

saying " psychological treatments are ineffective for epilepsy. " So

why am I and numerous others seizure free when drugs and surgery

failed? This abstract gives some perspective. Did you ever contact

Donna s at the s\Reiter clinic

(http://www.andrewsreiter.com)?

I had a bad experience with buying a unit for myself. Are you

and\or Charlie getting hands on training for how to use it properly?

Where are you getting advice for this? You can check out the

group on biofeedback, lots of professionals who can likely answer

your questions. I'll send you more links, etc. later.

Smiles,

Zoe

1: Clin Electroencephalogr 2000 Jan;31(1):45-55 Related Articles,

Books, LinkOut

Basic concepts and clinical findings in the treatment of seizure

disorders with EEG operant conditioning.

Sterman MB.

Department of Neurobiology, School of Medicine, University of

California at Los Angeles 90085-1763, USA.

Two issues concerning sensorimotor EEG operant conditioning, or

biofeedback, as a therapeutic modality for the treatment of seizure

disorders are the focus of this review. The first relates to the

question of whether relevant physiological changes are associated

with this procedure. This question is addressed through review of an

extensive neurophysiological literature that is likely unfamiliar to

many clinicians but that documents both immediate and sustained

functional changes that are consistent with elevation of seizure

thresholds. The second focuses on the clinical efficacy of this

method and whether it should carry the designation of " experimental " .

This designation is challenged through an assessment of over 25 years

of peer-reviewed research demonstrating impressive EEG and clinical

results achieved with the most difficult subset of seizure patients.

Publication Types:

Review

Review, Tutorial

PMID: 10638352 [PubMed - indexed for MEDLINE]

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  • 2 years later...

vilma_negron wrote:

>Does anyone have experience with neurofeedback?

>

>

I've been looking into this recently, too. Is it any good? Would love

to hear from anyone who's tried it.

Sara

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>

> >Does anyone have experience with neurofeedback?

> >

> >

> I've been looking into this recently, too. Is it any good? Would

love

> to hear from anyone who's tried it.

>

> Sara

I am new to the whole subject of neurology, so please forgive me,

but, What is neurofeedback?

Thanks!

Joanna

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Well, from what I can gather, it seems to measure which parts of the

brain are active in certain activities and to reward and encourage

desirable brain activity while not responding to the undersired. In

ASD, the idea is to develop the areas of the brain required for focus,

concentration or interaction with low levels of stimulation, enhancing

the sensitivity in those areas. It works, or the ones I have heard of

work, with a computer and a head set which picks up brain activity, and

the patient/victim/player has to use the correct part of the brain to

control a game or activity on the computer screen.

The theory seems ok to me, but does anyone know if it works, and whether

it is something that an ASD child will actually do? It seems to me that

low-stimulus games which require you to use a part of the brain which is

underdeveloped might be so dull that a child might well refuse to have

anything to do with it. That said, of course the systems I've so far

read about are staged, so that development can happen. Hence my

interest in whether anyone has tried it and their actual experience.

Please note: this is only what I have gathered from my initial reading

about neurofeedback and I could be misunderstanding things completely!

If there is anyone with a clearer, better picture, please post it!

Sara

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Hi Sara

At a seminar I went to recently here in Brisbane (Australia), a local

psychologist spoke about neuro-feedback. (Devin Houston also spoke at

this seminar introducing me to enzymes.) From memory, you give a good

description of how it works except rather than a specific part of the

brain, it’s the brain waves which are being monitored. The psychologist

has been doing some clinical studies to prove its efficacy though none

are written up yet in the journals. I believe he was trying it with

several different groups of children including ASD and having favourable

results.

The “game” the child is watching on-screen that he talked about

specifically is rockets going through outer space – the child has to

quicken up /slow down different rockets. I think he was working on

devising a game for younger children and even babies. I have a video of

the session so will have to watch it and get back to you with any

further details. It was a fascinating session.

Re: Neurofeedback

Well, from what I can gather, it seems to measure which parts of the

brain are active in certain activities and to reward and encourage

desirable brain activity while not responding to the undersired. In

ASD, the idea is to develop the areas of the brain required for focus,

concentration or interaction with low levels of stimulation, enhancing

the sensitivity in those areas. It works, or the ones I have heard of

work, with a computer and a head set which picks up brain activity, and

the patient/victim/player has to use the correct part of the brain to

control a game or activity on the computer screen.

The theory seems ok to me, but does anyone know if it works, and whether

it is something that an ASD child will actually do? It seems to me that

low-stimulus games which require you to use a part of the brain which is

underdeveloped might be so dull that a child might well refuse to have

anything to do with it. That said, of course the systems I've so far

read about are staged, so that development can happen. Hence my

interest in whether anyone has tried it and their actual experience.

Please note: this is only what I have gathered from my initial reading

about neurofeedback and I could be misunderstanding things completely!

If there is anyone with a clearer, better picture, please post it!

Sara

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I watched the video – apparently neurofeedback has been successfully

used for 30 years or more for epilepsy. The speaker - see him at

http://www.markdarlingneurotherapy.com/ - had been using it also to

treat depression, anxiety, ADHD kids . . . and then his son was ASD and

so he started looking at treating ASD kids about 4 years ago.

The left parieto-temporal area and the left anterior cingulate gyrus

have “non-normal” brain wave patterns in ASD kids (often have very high

“anxiety” waves) so these are the areas that treatment targets.

When target the temporal-parietal area, biggest effects are – emotional

calming, reduced rages (esp in Asperger’s), increased eye contact and

better speech

When target anterior cingulate gyrus biggest effects are reduced need

for routine, increased flexibility.

Overall, there are improvements in sleep/wake cycle, normalizing effect

on sensation and increased organization of memory and many more

He has done one study with 20 kids in each of the test and control

groups which demonstrated an average of 26% improvement in given

parameters. He said that ASD kids need treatments over a longer period

than the other kids he treats (eg ADHD) and that home / school

treatments are a better way to go than going to his clinic. With that in

mind, he is currently overseeing a pilot study in a small special school

where he has trained the teachers to apply the sensors / adjust

thresholds / etc and the treatment is part of the kids IEP.

His website has some interesting testimonies, information and links.

Re: Neurofeedback

Well, from what I can gather, it seems to measure which parts of the

brain are active in certain activities and to reward and encourage

desirable brain activity while not responding to the undersired. In

ASD, the idea is to develop the areas of the brain required for focus,

concentration or interaction with low levels of stimulation, enhancing

the sensitivity in those areas. It works, or the ones I have heard of

work, with a computer and a head set which picks up brain activity, and

the patient/victim/player has to use the correct part of the brain to

control a game or activity on the computer screen.

The theory seems ok to me, but does anyone know if it works, and whether

it is something that an ASD child will actually do? It seems to me that

low-stimulus games which require you to use a part of the brain which is

underdeveloped might be so dull that a child might well refuse to have

anything to do with it. That said, of course the systems I've so far

read about are staged, so that development can happen. Hence my

interest in whether anyone has tried it and their actual experience.

Please note: this is only what I have gathered from my initial reading

about neurofeedback and I could be misunderstanding things completely!

If there is anyone with a clearer, better picture, please post it!

Sara

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!

Thanks so much for this. It sounds so interesting. I'd be really glad to

hear from you if you have any further thoughts, and if you can recall or

rediscover the name of the psychologist concerned. My sister in law has

two dyspraxic children in Oz, so even if I can't get the benefit here in

the UK, at least she might over there. Thanks again!

Sara

Haks wrote:

>I believe he was trying it with

>several different groups of children including ASD and having favourable

>results.

>

>The “game” the child is watching on-screen that he talked about

>specifically is rockets going through outer space – the child has to

>quicken up /slow down different rockets. I think he was working on

>devising a game for younger children and even babies. I have a video of

>the session so will have to watch it and get back to you with any

>further details. It was a fascinating session.

>

>

>

>

>

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There is a ! group discussing these issues,

autism-nf

HTH

Elena

Re: Neurofeedback

> !

>

> Thanks so much for this. It sounds so interesting. I'd be really glad to

> hear from you if you have any further thoughts, and if you can recall or

> rediscover the name of the psychologist concerned. My sister in law has

> two dyspraxic children in Oz, so even if I can't get the benefit here in

> the UK, at least she might over there. Thanks again!

>

> Sara

>

> Haks wrote:

>

> >I believe he was trying it with

> >several different groups of children including ASD and having favourable

> >results.

> >

> >The “game” the child is watching on-screen that he talked about

> >specifically is rockets going through outer space – the child has to

> >quicken up /slow down different rockets. I think he was working on

> >devising a game for younger children and even babies. I have a video of

> >the session so will have to watch it and get back to you with any

> >further details. It was a fascinating session.

> >

> >

> >

> >

> >

>

>

>

>

>

>

>

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  • 1 year later...

I dont blame you we all need to vent its good .I would like to say these

drugs are or can be very powerful alone or when combined with another Take

your

time do research talk to your pharmacist not the doctor about medicnesA

pharmacist may be able to tell you more in detail after all they are drug

information specialists. and from my experience personally the doctors just

write

the perscription they are not for me when it comes to questions about drugs

good luck hopefully you find the right drug.berta

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  • 7 months later...
Guest guest

I have heard good things about it. My sons' psychologist is trained in

Neurofeedback and runs a clinic here. The downfall, from what I've heard, is

the

cost and the intensity you need to conduct it to get good results. Lots of

parents around here are in debt from doing it. I guess insurance reimburses

some but not all. Pam :)

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Guest guest

My Son had neurofeedback, and my advice is the more times you can have it

done every week, like at least 3 times in a week, the better it will help, my

son had a lot of results with it for insomnia and anxiety.

My Mom also had it and it helped her with PTSD.

So it does work, but only if you can get at least 3 sessions in on a week,

when he only went 1-2 times, I didn't notice any difference.

Lynda

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  • 1 year later...

Has anyone used neurofeedback withtheir child? If so,could you share your

experience.

thanks

sharon

myra.bauza@... wrote:

I can only tell you that my son did not sleep a full night until about 3.5

yrs old. He would get up several times a night. I didn't do anything

different to change things. I just stuck with a nightly routine almost to

the minute. And that seem to work. Today, he knows that he goes to bed

right after a certain tv show. He doesn't fight it. And he sleeps 10-11hrs

a night. I paid my dues!

" apraxiaconcerns "

<apraxiaconcerns@

> To

Sent by:

childrensapraxian cc

et@...

m Subject

[ ] sleep

concerns

01/29/2008 11:53

AM

Please respond to

childrensapraxian

et@...

m

I have a 3 year old daughter recently diagnosed with apraxia now

receiving ST, OT, on Omegas, Vit E. She is a very energetic little

girl who has never been a very good sleeper. Unfortunately, for the

past five months she has been tossing and turning from about 12 am to

3 am and will usually get out of bed numerous times during this time

period. We have tried behavioral interventions, have had her off of

naps for some time, and now at the recommendation of our developmental

pediatrician, have started 2 mg of Melatonin per night with no results.

Has anyone had to deal with this problem and if so, any suggestions?

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  • 3 months later...
Guest guest

I am currently doing it for my 16 yr old that has a seizure disorder.

It has been a positive treatment for her in many ways.

Dramatic decrease in seizures, improvement in school, better mood,

better focus. My daughter is med free, however she is making

nutritional changes, and taking supplements that support brain function.

I highly recommend it from a practitioner with good credentials.

We are going to the EEGInstitute.com in Woodland Hills, CA

We have not tackled the mercury in her system yet, as I want her

seizures to be controlled (per Andy's suggestion). She is not

autistic, but as a child had speech delay.

>

> hihi

> I am thinking of starting neurofeedback for my 6 yrs old son.

> Anyone who has done this for your kid....please both positive and

negative experience.

> many thanks

> daisy

>

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Guest guest

Daisy,

What symptoms are you specifically trying to improve? Do you have a

practitioner picked out? Where do you live?

>

> hihi

> I am thinking of starting neurofeedback for my 6 yrs old son.

> Anyone who has done this for your kid....please both positive and

negative experience.

> many thanks

> daisy

>

>

> Toolbar is now powered with Search Assist.Download it

now!

> http://sg.toolbar./

>

>

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Guest guest

hi, daisy -

we are doing NF with our 4 yr old. he has had 4 or 5 sessions. He enjoys it and

seems

relaxed and engaged while he's doing it.

after only a few sessions, it is difficult to measure his success. however, NF

is the only new

intervention we're doing right now so it seems fair to attribute at least some

of his recent

changes to it.

the latest thing our guy is doing is asking " where " questions for the first

time. " Where is

grandma? " and " mommy, where are you? " so that's pretty major.

some of the reasons we chose to do NF (because it's expensive for us) is that we

felt our

son would like it (and therefore do it), and of the alternative therapies we

were

considering, we thought it would be one the most powerful. that is after

discussing it with

our DAN doctor and the behavioral therapist in her practice.

i thought our son would like it because he loves tv/computer screen time and we

don't

give him any. knowing that he would enjoy it definitely played a role in our

decision.

hope this helps,

maggie

>

> >

> > hihi

> > I am thinking of starting neurofeedback for my 6 yrs old son.

> > Anyone who has done this for your kid....please both positive and

> negative experience.

> > many thanks

> > daisy

> >

> >

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  • 10 months later...
Guest guest

It hasn't come up here much. Just sent out a tweet about this and will let you

know if anyone answers at Twitter. But in the meantime here are some archives

and one research study I found:

ADHD and Stuttering: Similar EEG Profiles Suggest Neurotherapy as an Adjunct to

Traditional Speech Therapies

These similarities suggest that neurofeedback, which has proven successful in

the treatment of ADHD, may hold promise as a viable adjunct treatment to

traditional speech therapies for stuttering.

http://www.informaworld.com/smpp/content~content=a902215698~db=all

Product that has come up here

http://www.playattention.com/answers/neurofeedback/

Archive;

Re: [ ] help and advice from South Africa!!

Dear Temesgen,

I have had varying reports of neurofeedback, and believe that it is largely

what suits the individual child. Paediatric Occupational therapy, however,

is pretty well essential - integrating sensory information so that it is

stored in the brain accurately and can be reliably recalled to use.

If you would like to send me your postal address, we shall send you an

information pack!

I look forward to hearing from you.

Best wishes,

Judy.

Judy Davies Q.S.M

The Dyspraxia Centre

P.O.Box 20292

Bishopdale

CHRISTCHURCH

Phone:03 359 7072

Fax: 03 359 7074

email: praxisnz@...

Website: www.dyspraxia.org.nz

[ ] help and advice from South Africa!!

> Greetings from South Africa!!

>

> Our son, Amanuel, was formally diagnosed as having developmental

> dyspraxia in October 2003. By that time he was 5 years and six

> months old (His date of Birth is May 4, 1998). We had never heard of

> dyspraxia, before that. WWe are now coping with stress and

> depression.

>

> Currently we heard about neurofeedback. Before deciding taking our

> Amanuel overseas for neurofeedback training we need some

> explanations if you recommend the trial!!

>

> With best regards!!

>

> Temesgen

>

> *****************************************************************

> * Temesgen Zewotir

> * School of Mathematics, Statistics and Information Technology

> * Statistics and Biometry Division

> * University of KwaZulu-Natal Pietermaritzburg

> * Private Bag X01

> * sville 3209

> * SOUTH AFRICA

> * email: zewotir@... zewotir at nu.ac.za

=====

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  • 6 months later...

Hi Vinutha,

I'm just starting to look into this myself. It looks like it was originally

developed to treat seizures but has been found to be very useful for alot of

other disorders. A type of neurofeedback called LENS has come to my attention

which sounds interesting- google Larsen or Dr. Ochs on this one. From

what I've read this treatment can be very effective, but you don't see much

publicity about it because (in my humble opinion) unlike pharmaceuticals there

isn't tons and tons of money to be made.

Good luck!

Tamsin

________________________________

From: vinutha c shekhar <chendu@...>

Sent: Sun, October 25, 2009 8:56:27 PM

Subject: [ ] neurofeedback

Hello,

Is anyone familar with neurofeedback therapy? Can you provide me with

some info on it.

Thanks

Vinutha Shekar

____________ _________ _________ _________ _________ _________ _

Best Weight Loss Program - Click Here!

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  • 4 months later...
Guest guest

We did neurofeedback and saw mild improvements. Our son was slightly happier and

less anxious. I would do it again some day, I do think it does something.

Maggied.

>

> Hi group,

> Thanks for the recent help-started working on issues.

>

> New questions -has anyone done Neurofeedback and seen good results.

> I am looking for the social piece.

>

> Thanks,

> Alice

>

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Guest guest

We did Neurofeedback for my 7 yo son who is diagnosed as PDD-NOS/ADHD. We did

see some good things such as focusing better to be able to read a whole book but

overall his behaviors (yeast and some refusing to do things)kept getting in the

way and we felt at 30 sessions he couldn't proceed until the behaviors got more

under control so we quite for now. If your child doesn't have many behavior

issues, then I would definitely try it because it did benefit us until the

behaviors became an issue. Make sure to find a doctor that specializes in this

for ADHD/Autism and not just any Psychologist that states they do Neurofeedback.

Also there is a group called neurofeedback that you might want to check

out and ask questions.

Sandy

> >

> > Hi group,

> > Thanks for the recent help-started working on issues.

> >

> > New questions -has anyone done Neurofeedback and seen good results.

> > I am looking for the social piece.

> >

> > Thanks,

> > Alice

> >

>

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  • 5 months later...
Guest guest

Can anyone tell me how Dr Goldberg feels about neurofeedback? Will he allow his

patients to do this?

Thank you!

Sheryl

Sent from my iPhone

On Aug 8, 2010, at 3:42 PM, " ElyseG " <elyse-g@...> wrote:

http://www.ncbi.nlm.nih.gov/pubmed/20643381

Neurotherapeutics. 2010 Jul;7(3):283-92.

Immune dysfunction in autism: a pathway to treatment.

Careaga M, Van de Water J, Ashwood P.

Department of Medical Microbiology and Immunology, University of California at

, Sacramento, California 95817, USA.

Abstract

Autism is a complex and clinically heterogeneous disorder with a spectrum of

symptoms. Clinicians, schools, and service agencies worldwide have reported a

dramatic increase in the number of children identified with autism. Despite

expanding research, the etiology and underlying biological processes of autism

remain poorly understood, and the relative contribution from genetic,

epigenetic, and environmental factors remains unclear. Although autism affects

primarily brain function (especially affect, social functioning, and cognition),

it is unknown to what extent other organs and systems are disrupted. Published

findings have identified widespread changes in the immune systems of children

with autism, at both systemic and cellular levels. Brain specimens from autism

subjects exhibit signs of active, ongoing inflammation, as well as alterations

in gene pathways associated with immune signaling and immune function. Moreover,

many genetic studies have

indicated a link between autism and genes that are relevant to both the nervous

system and the immune system. Alterations in these pathways can affect function

in both systems. Together, these reports suggest that autism may in fact be a

systemic disorder with connections to abnormal immune responses. Such immune

system dysfunction may represent novel targets for treatment. A better

understanding of the involvement of the immune response in autism, and of how

early brain development is altered, may have important therapeutic implications.

© 2010 The American Society for Experimental NeuroTherapeutics, Inc. Published

by Elsevier Inc. All rights reserved.

PMID: 20643381 [PubMed - in process]

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Guest guest

Thank you so much for answering so quickly. It's a great relief.

Sheryl

Sent from my iPhone

On Aug 9, 2010, at 10:26 AM, " Dahlia " <donnaaron@...> wrote:

Dr. Goldberg is very supportive of Neurofeedback. We did it for six months, with

good results, for about six months. It is NOT a cure by any means, but my son

showed improved skills in several areas and his brain-map (measurement of

brainwave activity) showed marked improvement.

Donna

>

> http://www.ncbi.nlm.nih.gov/pubmed/20643381

>

> Neurotherapeutics. 2010 Jul;7(3):283-92.

>

> Immune dysfunction in autism: a pathway to treatment.

> Careaga M, Van de Water J, Ashwood P.

>

> Department of Medical Microbiology and Immunology, University of California at

, Sacramento, California 95817, USA.

>

> Abstract

> Autism is a complex and clinically heterogeneous disorder with a spectrum of

symptoms. Clinicians, schools, and service agencies worldwide have reported a

dramatic increase in the number of children identified with autism. Despite

expanding research, the etiology and underlying biological processes of autism

remain poorly understood, and the relative contribution from genetic,

epigenetic, and environmental factors remains unclear. Although autism affects

primarily brain function (especially affect, social functioning, and cognition),

it is unknown to what extent other organs and systems are disrupted. Published

findings have identified widespread changes in the immune systems of children

with autism, at both systemic and cellular levels. Brain specimens from autism

subjects exhibit signs of active, ongoing inflammation, as well as alterations

in gene pathways associated with immune signaling and immune function. Moreover,

many genetic studies have

> indicated a link between autism and genes that are relevant to both the

nervous system and the immune system. Alterations in these pathways can affect

function in both systems. Together, these reports suggest that autism may in

fact be a systemic disorder with connections to abnormal immune responses. Such

immune system dysfunction may represent novel targets for treatment. A better

understanding of the involvement of the immune response in autism, and of how

early brain development is altered, may have important therapeutic implications.

© 2010 The American Society for Experimental NeuroTherapeutics, Inc. Published

by Elsevier Inc. All rights reserved.

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> PMID: 20643381 [PubMed - in process]

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