Guest guest Posted November 7, 2010 Report Share Posted November 7, 2010 Welcome, Ray!!This is definitely the place for a whole lot of experience and research, to boot.I'm Gloria and hopefully, I am sustaining a viral response. Completed my 2nd treatment in the middle of January this year and was still negative at post 6 months.There is a whole lot to learn here, so get comfortable and ask any questions that come to mind. Honestly, the only dumb question, is the one you haven't ask yet. We were all in just about the same spot as you are right now. Except, in my case, there still wasn't such an availability to a support group or information. Now I'm just happy being here to help anyone who reaches out.Gloria Just want to say hello. New to the group and hep c. Haven't started treatment yet but that should come soon. Hope you can help me with info on symtoms and reactions to treatments. Thanks and appreciate the help. Ray Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2010 Report Share Posted November 9, 2010 Thanks SteveC, Haven't had the first shot yet and don't know what expect from the initial treatments Thanks again, Ray From: "schandler21@..." <schandler21@...> Sent: Sat, November 6, 2010 9:40:59 PMSubject: Re: [ ] Hi group ,Welcome! You've landed in the right spot, just set back and breathe regularly...This is a great group, with folks from just diagnosed to SVR, in treatment, waiting better stuff from Big Pharma or alternative sources, the whole gamut.I was diagnosed with genotype 2b in '08 and treated for 26 weeks. I'm now SVR, and love to stay active with this group as there's lots of folks like you out there just diagnosed and having somewhere between half a dozen to a ton of questions.There's usually someone around, or if you're more comfortable with your own research, Don's built an incredible links library second to none.Again, welcome, don't hesitate to ask that question or just vent, we're all here for you.SteveCLife is much more fun when thought of as a scavenger hunt as opposed to a surprise party. Jimmy Buffett [ ] Hi group Just want to say hello. New to the group and hep c. Haven't started treatment yet but that should come soon. Hope you can help me with info on symtoms and reactions to treatments. Thanks and appreciate the help.Ray Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2010 Report Share Posted November 9, 2010 Ray, It sounds like you have time to research and adjust, good for you. One issue that has come up here recently is some folks jumping into treatment too fast, so if you have some time to arm yourself, I have a couple suggestions. First, educate yourself. From personal experience, when I was first diagnosed I felt like I needed to shop for a headstone. When I attacked the internet and talked with my GP, I realized I had some time to play with. Ignorance causes fear, and both can be dissipated with knowledge. Second, do you like your doctor? Not your GP, but whoever is going to be administering your treatment? I was fortunate in finding a doctor and nurses I could work with on my first visit the the referred Gastroenterology Clinic. Some are not that fortunate, and those that go with someone they can't curse at later seem to have a rougher go with treatment. My doctor I wasn't really tight with, but his nurses...good god, they heard everything from me! And they just smiled and nodded and kept my treatment trucking...and yes, I could tell the doctor anything also, he just didn't have quite the sense of humor that his ladies did. A lady here, Teri, fired a few doctors before she decided to start treatment with a doctor and team she felt comfortable with...don't feel pushed into anything! Third, maybe you don't want to treat conventionally, especially after your research from #1. If not, more power to you! I've done a lot of maintenance with supplements, and there's others here that keep the dragon at bay daily the same way. Whatever you decide to do, you'll find support and understanding folks right here. Any questions you have, issues, fears, whatever, we're all here for you. Steve Life is much more fun when thought of as a scavenger hunt as opposed to a surprise party. Jimmy Buffett [ ] Hi group Just want to say hello. New to the group and hep c. Haven't started treatment yet but that should come soon. Hope you can help me with info on symtoms and reactions to treatments. Thanks and appreciate the help.Ray Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2010 Report Share Posted November 9, 2010 GREAT ADVISE STEVE!!! Getting informed is SO important. Have you had a biopsy yet ?? Maybe I missed it somewhere. You need to know the condition your liver is in and your genotype to relate to the information you find. It is very important to be your own advocate with this disease. Take your time and don't panic. I'm 76 and still here feeling fine. Oh yeah, DON " T DRINK ALCOHOL--just in case you do. Hugs, SuziQ > > > > Ray, > > It sounds like you have time to research and adjust, good for you. > > > > One issue that has come up here recently is some folks jumping into treatment too fast, so if you have some time to arm yourself, I have a couple suggestions. > > > > First, educate yourself. From personal experience, when I was first diagnosed I felt like I needed to shop for a headstone. When I attacked the internet and talked with my GP, I realized I had some time to play with. Ignorance causes fear, and both can be dissipated with knowledge. > > > > Second, do you like your doctor? Not your GP, but whoever is going to be administering your treatment? I was fortunate in finding a doctor and nurses I could work with on my first visit the the referred Gastroenterology Clinic. Some are not that fortunate, and those that go with someone they can't curse at later seem to have a rougher go with treatment. My doctor I wasn't really tight with, but his nurses...good god, they heard everything from me! And they just smiled and nodded and kept my treatment trucking...and yes, I could tell the doctor anything also, he just didn't have quite the sense of humor that his ladies did. > > > > A lady here, Teri, fired a few doctors before she decided to start treatment with a doctor and team she felt comfortable with...don't feel pushed into anything! > > > > Third, maybe you don't want to treat conventionally, especially after your research from #1. If not, more power to you! I've done a lot of maintenance with supplements, and there's others here that keep the dragon at bay daily the same way. Whatever you decide to do, you'll find support and understanding folks right here. > > > > Any questions you have, issues, fears, whatever, we're all here for you. > > > > Steve > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2010 Report Share Posted November 9, 2010 > > > > Ray, > > It sounds like you have time to research and adjust, good for you. > > > > One issue that has come up here recently is some folks jumping into treatment too fast, so if you have some time to arm yourself, I have a couple suggestions. > > > > First, educate yourself. From personal experience, when I was first diagnosed I felt like I needed to shop for a headstone. When I attacked the internet and talked with my GP, I realized I had some time to play with. Ignorance causes fear, and both can be dissipated with knowledge. > > > > Second, do you like your doctor? Not your GP, but whoever is going to be administering your treatment? I was fortunate in finding a doctor and nurses I could work with on my first visit the the referred Gastroenterology Clinic. Some are not that fortunate, and those that go with someone they can't curse at later seem to have a rougher go with treatment. My doctor I wasn't really tight with, but his nurses...good god, they heard everything from me! And they just smiled and nodded and kept my treatment trucking...and yes, I could tell the doctor anything also, he just didn't have quite the sense of humor that his ladies did. > > > > A lady here, Teri, fired a few doctors before she decided to start treatment with a doctor and team she felt comfortable with...don't feel pushed into anything! > > > > Third, maybe you don't want to treat conventionally, especially after your research from #1. If not, more power to you! I've done a lot of maintenance with supplements, and there's others here that keep the dragon at bay daily the same way. Whatever you decide to do, you'll find support and understanding folks right here. > > > > Any questions you have, issues, fears, whatever, we're all here for you. > > > > Steve > > > > Life is much more fun when thought of as a scavenger hunt as opposed to a surprise party.  Jimmy Buffett > > [ ] Hi group > >  > > > > > Just want to say hello. New to the group and hep c. Haven't started treatment yet but that should come soon. Hope you can help me with info on symtoms and reactions to treatments. Thanks and appreciate the help. > Ray > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2010 Report Share Posted November 9, 2010 And now I chime in!Ray, first of all, welcome. You have found a soft spot to land and a great resource for information. To piggy back on what Steve just said, and he covered it all, I had no problems firing a doctor to get to one that was exceptional. Faith and trust in the medical professional that is going to be working with you is paramount. There is an important question to ask your GP to get the best doctor around. It's a 60 dollar question and you can't be afraid to ask it.. Here it is: If this was you, or your father or your son who was in my position, what doctor would you send him to? That will catch the doctor off guard and he won't immediately tell you of the Gastro that is in his service. He's going to tell you about the Liver Specialist in the area. The good one. This is what I ALWAYS do with my GP. The first doc I got sent to was a gastro and he just wasn't on the ball enough to carry this treatment out the way I expected... Granted, I'm sure he was a good doctor, but his bedside manner was horrible and he was just not as knowledgeable as I would have liked. The liver specialist on the other hand... wow, what a difference. Make sure you are comfortable and trusting of your doctor and his staff. This is important because you are going to need them to be open and available to you. I had almost a year between diagnosis and the time I started treatment. This is a slow moving virus. You have time to get yourself in the right place mentally and education wise before you start any protocol of treatment.. be it traditional or alternative. The library here will help you get started. Let me know what I can do to support you. I have cleared the virus. It's been 5 years. Ask any question.. the only dumb one is the one you didn't ask. Hugs,Teri On Tue, Nov 9, 2010 at 10:11 AM, SuziQ <ancientkron@...> wrote: > > > > Ray, > > It sounds like you have time to research and adjust, good for you. > > > > One issue that has come up here recently is some folks jumping into treatment too fast, so if you have some time to arm yourself, I have a couple suggestions. > > > > First, educate yourself. From personal experience, when I was first diagnosed I felt like I needed to shop for a headstone. When I attacked the internet and talked with my GP, I realized I had some time to play with. Ignorance causes fear, and both can be dissipated with knowledge. > > > > Second, do you like your doctor? Not your GP, but whoever is going to be administering your treatment? I was fortunate in finding a doctor and nurses I could work with on my first visit the the referred Gastroenterology Clinic. Some are not that fortunate, and those that go with someone they can't curse at later seem to have a rougher go with treatment. My doctor I wasn't really tight with, but his nurses...good god, they heard everything from me! And they just smiled and nodded and kept my treatment trucking...and yes, I could tell the doctor anything also, he just didn't have quite the sense of humor that his ladies did. > > > > A lady here, Teri, fired a few doctors before she decided to start treatment with a doctor and team she felt comfortable with...don't feel pushed into anything! > > > > Third, maybe you don't want to treat conventionally, especially after your research from #1. If not, more power to you! I've done a lot of maintenance with supplements, and there's others here that keep the dragon at bay daily the same way. Whatever you decide to do, you'll find support and understanding folks right here. > > > > Any questions you have, issues, fears, whatever, we're all here for you. > > > > Steve > > > > Life is much more fun when thought of as a scavenger hunt as opposed to a surprise party.  Jimmy Buffett > > [ ] Hi group > >  > > > > > Just want to say hello. New to the group and hep c. Haven't started treatment yet but that should come soon. Hope you can help me with info on symtoms and reactions to treatments. Thanks and appreciate the help. > Ray > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2011 Report Share Posted March 23, 2011 I just started the antibiotics almost two days ago, he has me on 3 a day of flagyl, and 6 a day of amoxil, quesy, gaseous, diarrhea, wide awake at 5am itch rash legs, and I dont even know if I have lyme, I had the test done with igenex and a couple bands came back inconclusive and a few months went by and the lyme doctor thought we should try the AB(x). I dont know if the abbreviation is AB or ABX, I am just so confused right now, but it has taking me about 15 plus years to get here and I keep getting sicker with new medical prblems and everyone tells me that its probably all from the lyme..............I just want to give up right now. I am scared of getting yeast infections and thrush, never had them before so ZI am taking heavy duty probiotics 2x a day. I am just looking to hear what anyone has to say. Thanks, Myra in NH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2011 Report Share Posted March 23, 2011 Hi Carol, no, I am only on those two ABX for 7 days, so I am hoping not long enough to cause a yeast infection. What do you think about the 'just 7 days.' I am on day 3 now. Myra In a message dated 3/23/2011 11:27:08 A.M. Eastern Daylight Time, carolff1212@... writes: I was on those same two antibiotics. Being on long term antibiotics you are very likely to get a yeast infection. I don't think just taking probiotics is enough to counteract the antibiotics. Does your dr also have you on an antifungal such as Diflucan or Nystatin? I took both of those at different times and also took 2 different probiotics and totally quit eating all sweets including natural sweetners and fruit as well as being gluten free, yeast free and limiting carbs. I still got a yeast infection. Carol ________________________________ From: jpmyra <_JPMyra@..._ (mailto:JPMyra@...) > _ _ (mailto: ) Sent: Wed, March 23, 2011 5:21:16 AM Subject: [ ] Hi Group I just started the antibiotics almost two days ago, he has me on 3 a day of flagyl, and 6 a day of amoxil, quesy, gaseous, diarrhea, wide awake at 5am itch rash legs, and I dont even know if I have lyme, I had the test done with igenex and a couple bands came back inconclusive and a few months went by and the lyme doctor thought we should try the AB(x). I dont know if the abbreviation is AB or ABX, I am just so confused right now, but it has taking me about 15 plus years to get here and I keep getting sicker with new medical prblems and everyone tells me that its probably all from the lyme..............I just want to give up right now. I am scared of getting yeast infections and thrush, never had them before so ZI am taking heavy duty probiotics 2x a day. I am just looking to hear what anyone has to say. Thanks, Myra in NH [Non-text portions of this message have been removed] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2011 Report Share Posted May 26, 2011 Erez,In the early days of the 90's, when I was working closely with , we used FCz/CPz one-channel bipolar montages with theta down and beta up for inattentive type, and C3/C4 theta and high-beta down and SMR up for greater control. We also trained at C3/A1, Cz/A2 and C4/A2, so I don't think was fixed on any one thing. I try different options and find which tends to work best. The pIR sensor (the old one) with the wooden box, is not as good as the more recent (several years old now) made of hard rubber. The new one provides better coverage across the central portion of the forehead and is a lot more comfortable for the client. Pete-- Van Deusenpvdtlc@...http://www.brain-trainer.comUSA 305 433 3160BR 47 3346 6235 The Learning Curve, Inc. On Thu, May 26, 2011 at 2:50 PM, Erez <erez1333@...> wrote: .. recently i read again " Getting start with neurofeedback " Demos state that Lubar train ADD(H)D along the midline 1. i wonder if someone have some expeience with such training? 2. i wonder if training at Fz-Cz-pz(L) link, will make the two hemisphere to be more in balance (say,if i train 15-19 @ fz what kind of balance i should suspect if any? are the two site f3-f4 will be more alike? 3. do yow think that the new Pir sensor is better from the old one (which i have) do you recomend to buy the new one? best regard and thanks for your wonderful answers erez Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2011 Report Share Posted May 26, 2011 Erez,In the early days of the 90's, when I was working closely with , we used FCz/CPz one-channel bipolar montages with theta down and beta up for inattentive type, and C3/C4 theta and high-beta down and SMR up for greater control. We also trained at C3/A1, Cz/A2 and C4/A2, so I don't think was fixed on any one thing. I try different options and find which tends to work best. The pIR sensor (the old one) with the wooden box, is not as good as the more recent (several years old now) made of hard rubber. The new one provides better coverage across the central portion of the forehead and is a lot more comfortable for the client. Pete-- Van Deusenpvdtlc@...http://www.brain-trainer.comUSA 305 433 3160BR 47 3346 6235 The Learning Curve, Inc. On Thu, May 26, 2011 at 2:50 PM, Erez <erez1333@...> wrote: .. recently i read again " Getting start with neurofeedback " Demos state that Lubar train ADD(H)D along the midline 1. i wonder if someone have some expeience with such training? 2. i wonder if training at Fz-Cz-pz(L) link, will make the two hemisphere to be more in balance (say,if i train 15-19 @ fz what kind of balance i should suspect if any? are the two site f3-f4 will be more alike? 3. do yow think that the new Pir sensor is better from the old one (which i have) do you recomend to buy the new one? best regard and thanks for your wonderful answers erez Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2011 Report Share Posted May 27, 2011 Pete, You probably remember me as the guy who drove the subject of the AD(H)D subtypes into the ground. But ... could you define for the group what you meant by " greater control " . Seems so many (from my experience) overlook the high beta when it is an issue and just use theta down/SMR up for all types. What are the typical symptoms of AD(H)D in subjects with high beta where it should be considered? Tim Fishel ______________________________________________________________ > > > > > > > . recently i read again " Getting start with neurofeedback " > > Demos state that Lubar train ADD(H)D along the midline > > > > 1. i wonder if someone have some expeience with such training? > > > > 2. i wonder if training at Fz-Cz-pz(L) link, will make the two hemisphere > > to be more in balance (say,if i train 15-19 @ fz what kind of balance i > > should > > suspect if any? are the two site f3-f4 will be more alike? > > > > 3. do yow think that the new Pir sensor is better from the old one (which i > > have) do you recomend to buy the new one? > > > > best regard > > and thanks for your wonderful answers > > erez > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2011 Report Share Posted May 27, 2011 Tim,I really still don't think much about " types " of ADHD--or really even about ADHD, since it's such an incredibly broad category. If high-beta is an issue in the assessment--or is appearing strongly in the EEG where one is training, I'd inhibit it. Same with eyes-open alpha. Same with any frequency. With the new 1C Options protocol sets, I can switch from 2-6 (thelta) to 4-8 (theta) to 6-10 (thalpha) to 2-11 (all slow) on the slow frequency end (by clicking a button) and from 19-38 to 23-38 on the high end--and graph any or all of these I'm NOT training to see when they are going up--then add them to the protocol on the fly. Pete-- Van Deusenpvdtlc@...http://www.brain-trainer.comUSA 305 433 3160BR 47 3346 6235 The Learning Curve, Inc. On Fri, May 27, 2011 at 9:51 AM, timfishel <.Fishel@...> wrote: You probably remember me as the guy who drove the subject of the AD(H)D subtypes into the ground. But ... could you define for the group what you meant by " greater control " . Seems so many (from my experience) overlook the high beta when it is an issue and just use theta down/SMR up for all types. What are the typical symptoms of AD(H)D in subjects with high beta where it should be considered? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2011 Report Share Posted May 27, 2011 Tim,I really still don't think much about " types " of ADHD--or really even about ADHD, since it's such an incredibly broad category. If high-beta is an issue in the assessment--or is appearing strongly in the EEG where one is training, I'd inhibit it. Same with eyes-open alpha. Same with any frequency. With the new 1C Options protocol sets, I can switch from 2-6 (thelta) to 4-8 (theta) to 6-10 (thalpha) to 2-11 (all slow) on the slow frequency end (by clicking a button) and from 19-38 to 23-38 on the high end--and graph any or all of these I'm NOT training to see when they are going up--then add them to the protocol on the fly. Pete-- Van Deusenpvdtlc@...http://www.brain-trainer.comUSA 305 433 3160BR 47 3346 6235 The Learning Curve, Inc. On Fri, May 27, 2011 at 9:51 AM, timfishel <.Fishel@...> wrote: You probably remember me as the guy who drove the subject of the AD(H)D subtypes into the ground. But ... could you define for the group what you meant by " greater control " . Seems so many (from my experience) overlook the high beta when it is an issue and just use theta down/SMR up for all types. What are the typical symptoms of AD(H)D in subjects with high beta where it should be considered? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2011 Report Share Posted May 27, 2011 Pete, I guess I read to much about this subtype stuff and have listened to a couple of hard headed people that swear by SMR training for all. This is why the TLC Assessment is so great and simple so that one can look at the whole picture instead. Thanks. > > > You probably remember me as the guy who drove the subject of the AD(H)D > > subtypes into the ground. But ... could you define for the group what you > > meant by " greater control " . Seems so many (from my experience) overlook the > > high beta when it is an issue and just use theta down/SMR up for all types. > > What are the typical symptoms of AD(H)D in subjects with high beta where it > > should be considered? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2011 Report Share Posted October 21, 2011 Probably not so good ---- carrot, swt pot chips, banana, spelt toast. Maybe not too much but just the wrong things. K On Wed, Oct 12, 2011 at 4:23 PM, Forrester <bigpondaussies@...>wrote: > ** > > > Exercise has eluded me. My feet have hurt all week. Now today when my feet > feel some better it has stormed all day. It's a mud hole out there. I > think the reason my feet aren't hurting is being more careful not to eat > any > wheat. How are you doing? I think I exercised some at my granddaughters > volley ball game last night. Oh, yeah....that was her. They won too. > Tonight it is game 3 in the playoff game between the Brewers and the > Cardinals. I will watch that. It is 1:1 right now. > I'm going to have Tilapia tonight baked in the oven with sweet potato and > salad. I ate some beef for lunch with carrots and sweet potato chips. > Breakfast was egg omlette, spelt toast and a banana. I'm wondering if I am > eating too much? > > > -- > www.bigpondaussies.com > > Quote Link to comment Share on other sites More sharing options...
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